The Relationship Between Dialysis Patients' Quality of Life and Caregivers' Quality of Life

Nagasawa, Hiroyuki; Sugita, Ikuto; Tachi, Tomoya; Esaki, Hiroki; Yoshida, Aki; Kanematsu, Yuta; Noguchi, Yoshihiro; Kobayashi, Yukio; Ichikawa, Etsuko; Tsuchiya, Teruo; Teramachi, Hitomi

doi:10.3389/fphar.2018.00770

Cited by 30 publications

(25 citation statements)

References 20 publications

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“…Patients on dialysis require caregiving and assistance in their daily lives from family members and others for hospital visitation and supervised administration which places a considerable burden on caregivers. 4 The family burden is mainly caused by the combination of physical work, emotional pressure, social restrictions, and economic demands during the provision of care to their patients and this has been found to be associated with a significant reduction in caregivers' quality of life and their health status. 5 Therefore, this study aims to study the level of burden among caregivers of patient undergoing hemodialysis.…”

Section: Introductionmentioning

confidence: 99%

Caregiver Burden among Caregivers of patient undergoing Hemodialysis in Tertiary Care Center : A Descriptive Cross-sectional Study

Chhetri

Baral

2020

J Nepal Med Assoc

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Introduction: Chronic kidney disease affects almost all aspects of life of the patients and caregivers. Dialysis is a common treatment modality for Chronic Renal Failure. The caregivers of patients undergoing hemodialysis bear the emotional and psychological stress of having a chronically ill patient. The physical and psychological distress, limitations in personal and social activities, loss of freedom, financial limitations directly or indirectly affect the level of burden among caregivers. This study aims to study the level of burden among caregivers of patient undergoing hemodialysis. Methods: A descriptive cross-sectional study among 123 caregivers giving care to hemodialysis patients for at least 3 months at Teaching Hospitals, Chitwan was carried out using simple random sampling technique. Level of burden was evaluated using the burden questionnaire (Zarit Burden Interview). Results: The study revealed that 60 (48.78%) had mild to moderate, 53 (43.08%) had moderate to severe. The median scores for burden among the caregivers was (39.30±11.68) with 44.65%. Conclusions: Coping Strategies, social support, support interventions has greater impact on caregivers in achieving their roles in caring the patients and increases the capability to cope effectively with the patient’s condition.

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Section: Introductionmentioning

confidence: 99%

Caregiver Burden among Caregivers of patient undergoing Hemodialysis in Tertiary Care Center : A Descriptive Cross-sectional Study

Chhetri

Baral

2020

J Nepal Med Assoc

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“…Several previous studies reported that the QOL and mental conditions of patients and their caregivers/families were affected negatively by chronic kidney disease and haemodialysis [ 42 , 43 , 44 ]. Clinically, scores lower than 40 for SF-36v2 are considered to indicate deterioration of QOL compared to the Japanese general population [ 10 , 31 ].…”

Section: Resultsmentioning

confidence: 99%

Impacts of Interaction of Mental Condition and Quality of Life between Donors and Recipients at Decision-Making of Preemptive and Post-Dialysis Living-Donor Kidney Transplantation

Hasegawa

Nishikawa

Tamura

et al. 2021

JPM

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Pre-emptive kidney transplantation (PEKT) is considered one of the most effective types of kidney replacement therapies to improve the quality of life (QOL) and physical prognosis of patients with end-stage renal disease (ESRD). In Japan, living-donor kidney transplantation is a common therapeutic option for patients undergoing dialyses (PDKT). Moreover, during shared decision-making in kidney replacement therapy, the medical staff of the multidisciplinary kidney team often provide educational consultation programmes according to the QOL and sociopsychological status of the ESRD patient. In Japan, the majority of kidney donations are provided by living family members. However, neither the psychosocial status of donors associated with the decision-making of kidney donations nor the interactions of the psychosocial status between donors and recipients have been clarified in the literature. In response to this gap, the present study determined the QOL, mood and anxiety status of donors and recipients at kidney transplantation decision-making between PEKT and PDKT. Deterioration of the recipient’s QOL associated with “role physical” shifted the decision-making to PEKT, whereas deterioration of QOL associated with “role emotional” and “social functioning” of the recipients shifted the decision-making to PDKT. Furthermore, increased tension/anxiety and depressive mood contributed to choosing PDKT, but increased confusion was dominantly observed in PEKT recipients. These direct impact factors for decision-making were secondarily regulated by the trait anxiety of the recipients. Unlike the recipients, the donors’ QOL associated with vitality contributed to choosing PDKT, whereas the physical and mental health of the donors shifted the decision-making to PEKT. Interestingly, we also detected the typical features of PEKT donors, who showed higher tolerability against the trait anxiety of reactive tension/anxiety than PDKT donors. These results suggest that choosing between either PEKT or PDKT is likely achieved through the proactive support of family members as candidate donors, rather than the recipients. Furthermore, PDKT is possibly facilitated by an enrichment of the life–work–family balance of the donors. Therefore, multidisciplinary kidney teams should be aware of the familial psychodynamics between patients with ESRD and their family members during the shared decision-making process by continuing the educational consultation programmes for the kidney-replacement-therapy decision-making process.

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“…Recently, Short-Form 36 has been widely used to assess the health-related quality of life in dialysis patients [16,20,21]. It is a multicultural scale consisting of 36 questions and categorized into an eightdomain profile of scores: physical functioning, general health, role physical, bodily pain, social functioning, vitality, role emotional, and mental health [22][23][24].…”

Section: Health-related Quality Of Lifementioning

confidence: 99%

Clinical outcomes, quality of life, and costs evaluation of peritoneal dialysis management models in Shanghai Songjiang District: a multi-center and prospective cohort study

Tao

et al. 2021

Renal Failure

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Background:The new Family-Community-Hospital (FCH) three-level comprehensive management aimed to improve the efficiency and scale of peritoneal dialysis (PD) to meet the increased population of end-stage renal disease (ESRD). Our study focused on the clinical outcomes, quality of life, and costs evaluation of this model in a multi-center and prospective cohort study. Methods: A total of 190 ESRD patients who commenced PD at Shanghai Songjiang District were enrolled. According to different PD management models, patients were divided into the Family-Community-Hospital three-level management model (n ¼ 90) and the conventional all-course central hospital management model (n ¼ 100). The primary outcome was clinical outcomes of PD. The secondary outcomes were health-related quality of life (HRQOL) and medical costs evaluation. Results: Compared to conventional management, community-based FCH management achieved a similar dialysis therapeutic effect, including dropout rate (p ¼ 0.366), peritonitis rate (p ¼ 0.965), patient survival (p ¼ 0.441), and technique survival (p ¼ 0.589). Follow-up data showed that similar levels of the renal and peritoneal functions, serum albumin, cholesterol and triglyceride, PTH, serum calcium, and phosphorus between the two groups (all p > 0.05). HRQOL survey showed that the FCH management model helped to improve the psychological status of PD patients, including social functioning (p ¼ 0.006), role-emotional (p ¼ 0.032), and mental health (p ¼ 0.036). FCH management also reduced the hospitalization (p ¼ 0.009) and outpatient visits (p ¼ 0.001) and saved annual hospitalization costs (p ¼ 0.005), outpatient costs (p ¼ 0.026), and transport costs (p ¼ 0.006). Conclusions: Compared with conventional management, community-based FCH management achieved similar outcomes, improved psychological health, reduced medical budgets, and thus had a good social prospect.

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The Relationship Between Dialysis Patients' Quality of Life and Caregivers' Quality of Life

Cited by 30 publications

References 20 publications

Caregiver Burden among Caregivers of patient undergoing Hemodialysis in Tertiary Care Center : A Descriptive Cross-sectional Study

Caregiver Burden among Caregivers of patient undergoing Hemodialysis in Tertiary Care Center : A Descriptive Cross-sectional Study

Impacts of Interaction of Mental Condition and Quality of Life between Donors and Recipients at Decision-Making of Preemptive and Post-Dialysis Living-Donor Kidney Transplantation

Clinical outcomes, quality of life, and costs evaluation of peritoneal dialysis management models in Shanghai Songjiang District: a multi-center and prospective cohort study

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