The relationship between daily stressors, social support, depression and anxiety among dementia family caregivers: a micro-longitudinal study

Puga, Frank; Wang, Danny; Rafford, Meghan; Poe, Abigail; Pickering, Carolyn

doi:10.1080/13607863.2022.2116392

Cited by 8 publications

(5 citation statements)

References 52 publications

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“…The variables included in the obtained model explained almost 50% of the variance in depressive symptoms over time. Although the scores in depressive symptoms remained stable through the study period (2 years), as expected, over time increases in reaction to BPSD, and decreases in leisure activities, were associated with significant increases in depressive symptoms, findings that are not new in the scientific literature 28,29 . In addition, being a younger caregiver and having less formal education was associated with increases in depressive symptoms across time.…”

Section: Discussionsupporting

confidence: 61%

“…Although the scores in depressive symptoms remained stable through the study period (2 years), as expected, over time increases in reaction to BPSD, and decreases in leisure activities, were associated with significant increases in depressive symptoms, findings that are not new in the scientific literature. 28,29 In addition, being a younger caregiver and having less formal education was associated with increases in depressive symptoms across time. Neither changes in cognitive and functional status nor frequency of BPSD were significantly associated with increases in depressive symptoms in this study.…”

Section: Discussionmentioning

confidence: 98%

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Longitudinal effects of ambivalent and guilt feelings on dementia family caregivers' depressive symptoms

Losada‐Baltar,

Mausbach,

Romero‐Moreno

et al. 2024

J American Geriatrics Society

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BackgroundThe world prevalence of people with dementia is increasing. Most of the care received by people with dementia is provided by family caregivers, and this prolonged activity has a significant impact on caregivers' levels of depression. Stressors and frequency of leisure are known predictors of caregivers' depressive levels. The longitudinal impact of caregivers' ambivalent and guilt feelings is unknown.MethodsParticipants were 177 family caregivers of relatives with dementia who were assessed three times during a 2‐year period. In addition to demographic variables, psychological symptoms of the dementias, and frequency of leisure activities, caregivers' ambivalent feelings, guilt, and depressive symptoms were measured. The longitudinal association of changes in these variables with changes in caregivers' depressive symptoms over time was assessed using mixed linear models.ResultsChanges over time in the assessed variables predicted 48.05% of variance of changes over time in depressive symptoms. Even when variables strongly associated with increased depressive symptoms were controlled (lower caregivers' age and educational level, higher reaction to BPSD, and lower leisure activities), increases in ambivalence and guilt contributed to an increase of 9.22% of the variance of changes depressive symptoms over a 2‐year period. The effects of ambivalent feelings on depression are indirect, mediated by guilt feelings. Cessation of caregiving do not seem to alter these findings.ConclusionsCaregivers' ambivalent and guilt feelings are significant predictors of caregivers' mental health. Caregivers may significantly benefit from early detection of ambivalent and guilt feelings and preventive strategies targeting triggers associated with ambivalent and guilt symptoms.

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Section: Discussionsupporting

confidence: 61%

Section: Discussionmentioning

confidence: 98%

Longitudinal effects of ambivalent and guilt feelings on dementia family caregivers' depressive symptoms

Losada‐Baltar,

Mausbach,

Romero‐Moreno

et al. 2024

J American Geriatrics Society

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“…Instrumental support from paid and nonprofessional caregivers can help caregivers in caring tasks and household chores (41) . On days, caregivers received instrumental support and the daily odds of depressive symptoms decreased (42) .…”

Section: Discussionmentioning

confidence: 99%

Nursing interventions to empower the family caregiver of person with lower limb amputation: scoping review

Rodrigues,

Castanheira,

Carvalho

et al. 2024

Rev. Bras. Enferm.

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Objectives: to map nursing interventions that empower the Family caregiver of the person with lower limb amputation for is role. Methods: scoping review guided by Joanna Briggs Institute methodology conducted in different databases (including gray literature). Results: six studies published between 2009 and 2021 were included. Interventions of counselling and support for patients and family; peer support interventions performed by a certified pair; involvement of caregivers or family members in support groups; and key interventions for patient and family caregiver psychological balance. Two studies discussed the importance of caregiver and amputee training and development of coping skills. Another study recommended Interventions of informative support for caregivers regarding care for the amputee and adaptation to home. Conclusions: results of this review allow the identification of recommendations (guidelines) for practice and recommendations/suggestions for interventions according with identified needs of family caregivers of patients with lower limb amputation.

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“…The DD methodology encompasses various assessment techniques enabling researchers to investigate individuals’ experiences, behaviors, and situations in their natural environments, nearly in real time, and through repeated measurements spanning from a few days to months. Daily diaries have been previously used to quantitatively examine the day-to-day experiences of dementia caregivers including daily stress and well-being [ 13 - 15 ]. Overall, this research design enables the exploration of intraindividual variability (eg, fluctuations in daily experiences) and interindividual differences (eg, variations within distinct groups such as those with high levels of familism or religiosity vs those with low levels) and potential relationships among them [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study

Mildrum Chana,

Álvarez,

Poe

et al. 2024

JMIR Res Protoc

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Background The Hispanic and Latinx community is disproportionately affected by Alzheimer disease and related dementias (ADRDs). In the United States, approximately 8.5 million caregivers of individuals with ADRDs identify as Hispanic and Latinx people, and caregiving-related stress and burden place caregivers at elevated risk for poor mental health outcomes, as well as loneliness and social isolation. To date, there is limited knowledge about the daily stress experiences of Hispanic and Latinx caregivers. Given this knowledge gap, it is critical to examine how personal, cultural, and contextual factors influence daily stress, mental health, and resilience over time among Hispanic and Latinx ADRD caregivers. Objective The goal of this protocol report is to present the rationale, methodology, planned analytical strategy, progress completed to date, and implications of future findings for “Nuestros Días” (Spanish for “our days”), a fully remote daily diary (DD), observational cohort study examining the day-to-day experiences of Hispanic and Latinx ADRD caregivers. Methods The study will recruit a cohort of up to 500 Hispanic and Latinx caregivers of individuals living with ADRD. Participants will complete measures assessing contextual, individual-level, and cultural factors at 3 intervals (enrollment, 6 months, and 12 months). Each of the timepoints will be followed by 21 days of DD surveys to report on daily stress, stress moderators, and mental health variables. Results Data collection began in March 2023 and is projected to end in December 2026. As of March 2024, we have enrolled 60 caregivers in the Nuestros Días study, 78.9% (n=15) of whom are Spanish speakers. The current completion rate for DD surveys is 79.4%, averaging approximately 18 surveys out of 21 completed. We expect to enroll 10 to 15 participants per month moving forward to achieve our enrollment goal. Conclusions Results from this study will identify which Hispanic and Latinx ADRD caregivers, and under what circumstances, appear to be at the greatest risk of experiencing poor mental health outcomes over time. This study represents a critical step forward in providing key guidance to develop effective, culturally sensitive interventions to support the health and well-being of Hispanic and Latinx ADRD caregivers, a historically underrepresented and underserved population in aging and caregiving research. International Registered Report Identifier (IRRID) DERR1-10.2196/55216

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The relationship between daily stressors, social support, depression and anxiety among dementia family caregivers: a micro-longitudinal study

Cited by 8 publications

References 52 publications

Longitudinal effects of ambivalent and guilt feelings on dementia family caregivers' depressive symptoms

Longitudinal effects of ambivalent and guilt feelings on dementia family caregivers' depressive symptoms

Nursing interventions to empower the family caregiver of person with lower limb amputation: scoping review

The Daily Experiences of Hispanic and Latinx Dementia Caregivers Study: Protocol for a Fully Remote Daily Diary Observational Cohort Study

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