The relationship between burden and caregiver’s sleep disturbances in dementia: a systematic review

Monteiro, Bárbara Cristina da Costa; Santos, Tatiana Teresa Belfort Almeida dos; Nogueira, Marcela Moreira Lima; Dourado, Marcia Cristina Nascimento

doi:10.1590/1980-5764-dn-2023-0030

Cited by 1 publication

(4 citation statements)

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“…15,16,19 Notably, the burden described by these caregivers instigating poor mental health status and depressive and anxiety symptoms is previously reported in the literature. 11,12 National…”

Section: Discussionmentioning

confidence: 99%

“…Notably, the burden described by these caregivers instigating poor mental health status and depressive and anxiety symptoms is previously reported in the literature. 11,12 National data indicate that caregivers providing dementia care report caregiving as more stressful compared with caregivers of people without dementia. 9,28 Caregivers having concerns about their own health were consistent with the previous studies.…”

Section: Discussionmentioning

confidence: 99%

“…poor physical and mental health. 10,12 Unfortunately, caregivers of adults with dementia experiencing high levels of burden (negative physical and psychosocial impact) can become ill themselves. 13,14 Caregivers managing HF and vascular dementia in rural settings often have less access to specialty care and fewer caregiving resources and suffer negative outcomes.…”

mentioning

confidence: 99%

“…3,11 These variables contribute to the caregiving burden, leading to poor physical and mental health. 10,12 Unfortunately, caregivers of adults with dementia experiencing high levels of burden (negative physical and psychosocial impact) can become ill themselves. 13,14…”

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confidence: 99%

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Family Caregiving of Patients With Heart Failure and Vascular Dementia in Rural Appalachia: A Mixed-Methods Study

Piamjariyakul,

Wang,

Smith

et al. 2024

West J Nurs Res

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Introduction: Vascular dementia and heart failure (HF) are common co-existing conditions among adult populations. Each condition requires extensive home caregiving from family caregivers, especially those in rural Appalachia. This study aimed to assess caregivers’ burden and their physical and mental health status, as well as explore their experiences and needs. Methods: This study used an exploratory mixed-methods design combining quantitative and qualitative research (N = 20 caregivers). We collected data using questionnaires, short-answered interviews, and focus group discussions. The multivariable generalized linear model (GLiM) was used to analyze quantitative data; content analysis was used for qualitative data. Results: The average age of family caregivers was 64.95 years. The generalized linear model showed that the caregiving burden was associated with caregivers’ depression/anxiety ( r = 0.68, P < .001) and their number of dementia caregiving years ( r = 0.54, P < .05). Caregivers’ poor physical health status was associated with better preparedness for HF and dementia home caregiving ( r = 0.52, P < .05) and male caregivers ( r = −0.46, P < .01). Caregivers’ mental health status was associated with depression/anxiety ( r = −0.80, P < .001). The qualitative data identified key caregiving themes: emotional impact and physical demands of caregiving, lack of help in rural areas, dealing with multiple disease progression, and relationship changes with their loved ones. Conclusion: Caregiving burden was associated with caregivers’ home care responsibilities and the need for support. Nurse-led home caregiving preparedness interventions tailored for family caregivers of patients with HF and dementia in rural areas are recommended.

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