The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia

Chu, Shin Ying; Rafi, Adlina Binti Mohamed; Lee, Jaehoon; Fierro, Veronica; Gan, Chun Hong; Singh, Susheel Joginder; Hersh, Deborah; Lin, Ling-Yi

doi:10.1080/09638288.2022.2153304

Cited by 3 publications

(1 citation statement)

References 57 publications

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“…1 The primary limitation of CP is motor dysfunction, although the prevalence of sensory, cognitive, and social deficits significantly affects how severe the disability is. 2 The Gross Motor Function Classification System (GMFCS) classifies motor impairment severity into five levels, ranging from Level I, which denotes less motor impairment and corresponds to when the patient can walk without any restrictions, to Level V, which denotes severe motor impairment and the requirement for a wheelchair for mobility. 3 With an incidence of 2 to 3 cases per 1000 live births, cerebral palsy is the most prevalent chronic illness that causes impairment in children.…”

Section: Introductionmentioning

confidence: 99%

Perceived stress among caregivers of children with cerebral palsy.

Siddiqa

Haider

Babar

et al. 2023

TPMJ

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Objective: The study aims to ascertain the degree of felt stress among parents of cerebral palsy patients at HIT and POF Hospitals. Study Design: Cross-sectional. Setting: Department of Pediatrics, HIT & POF Hospitals. Period: February 2022 to May 2022. Material & Methods: The study was approved by IRB of HITEC-IMS under approval number HITEC-IRB-22-2021. Using the purposive sampling method, the study included CP children aged 3 to 10 and caregivers who had experienced stress for three consecutive months. The total score was determined using Sheldon Cohen's perceived stress scale. Scores between 0 and 13 were classified as low perceived stress, 14 to 26 as moderate, and 27 to 40 as high felt stress. Results: Children with the spastic form of CP made up 50% of the population, while those with the dyskinetic ataxic and mix types made up 16%, 8%, and 5% of the total. 66 percent of the children were under 5, 22 percent were between the ages of 6 and 10, and just 12 percent were under 3. With level 4 on the second, the GMFCS level of 3 was the most prevalent. The parents’ average age was 31±7.2. Respondents' average stress score was 18.03±8.8. Conclusion: Parents of CP children experience moderate to high levels of stress that are significantly influenced by the employment status of moms and family income. Parents must be stress-free in order to raise children with poor health.

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Section: Introductionmentioning

confidence: 99%

Perceived stress among caregivers of children with cerebral palsy.

Siddiqa

Haider

Babar

et al. 2023

TPMJ

View full text Add to dashboard Cite

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Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia

Elkholi,

Awad,

Alotaibi

2024

Medicina

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Background and Objectives: Many children with (CP) and their families in Saudi Arabia struggle emotionally. Unfortunately, there have not been many studies conducted on how to help them with these challenges. This research aims to bring attention to this gap and to explore how a lack of proper mental health care might affect these children’s ability to participate in everyday activities. Materials and Methods: In this cross-sectional descriptive study, a survey was conducted between August and October 2023. A total of 300 parents of CP children from Saudi Arabia participated in the study. The impact of psychological care negligence on the occupational engagement of CP children and their families was assessed by designing a valid questionnaire. Results: A total of 300 parents of children with CP participated in this study. The majority of the sample, 71% of parents, said that their children did not receive any psychological care, and 59.7% of the participants said that their children did not even receive a referral to a psychologist. However, 60.3% of parents of children noticed a significant decline in the occupational performance of their children, and 65.7% predicted an improvement in their children’s performance with future psychological care. Conclusions: It is clear that there is a lack of awareness about the importance of mental health care for children with CP in Saudi Arabia. This lack of care hinders these children and their families’ occupational engagement and social participation.

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