The register of children with special needs — An approach

O'Mahony, Mary C.; Allsop, Margaret; Heath, Cherry; Deaves, Christopher; Morris, Robert W.

doi:10.1016/s0033-3506(87)80023-9

Cited by 3 publications

(1 citation statement)

References 1 publication

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“…[2][3][4][5][6][7] Aims, development, and organisation The three aims of the West Sussex SCR are to improve the care of individual children by ensuring that all those with ongoing medical, developmental or learning problems are identified and followed up, to monitor, evaluate, and plan services, and to facilitate epidemiological research.…”

Section: Introductionmentioning

confidence: 99%

A special conditions register.

Woodroffe

Abra

1991

Archives of Disease in Childhood

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A special conditions register (SCR) linked to the child health system's register of ail children has been in use in West Sussex since 1977. This paper describes the aims, organisation, and use of the SCR and gives examples of the aggegated data that may be obtained. Of the 155 000 children aged 0-17 resident in West Sussex in 1990, 4-3% were included on the SCR. Altogether 45.7% of children on the SCR had physical conditions with mild or no disability and 17-2% had moderate educational problems. The prevalence of severe hearing loss as defined was 1-7 per 1000 aged 5-17. The prevalence of diabetes mellitus was 1.2 per 1000 children aged 0-17. Validation of the SCR for diabetes mellitus found 35/36 of the eligible children were correctly registered and no child was incorrectly included. The conflicting priorities for maintaining a register for the care of individual children, for service planning, and for epidemiological research are discussed.

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Section: Introductionmentioning

confidence: 99%

A special conditions register.

Woodroffe

Abra

1991

Archives of Disease in Childhood

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The Prehospital Care of Children With Special Health Care Needs

Brent

2014

Clinical Pediatric Emergency Medicine

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Establishing a register of children with special needs.

Colver¹,

Robinson²

1989

Archives of Disease in Childhood

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Northumberland health district has maintained for three years a computerised register of children aged 0-16 years with long term special needs. We report the thinking behind this register, the practical implementation and validation of the register, and the uses to which it has been put. We hope that this will promote discussion and help other districts to maintain more accurate and useful registers. Thinking behind the registerThe objectives of our register are to: (a) improve the care of individual children; (b) improve the planning of services for children; and (c) improve opportunities for research and epidemiology.Northumberland had kept a manual register for 10 years but there was no clear policy about which children should be registered. We decided that the criterion for registration would be that the child had some 'long-term special need for multi-disciplinary help or review that can be better planned and performed by being recorded centrally. The need should arise at least in part from a physical, sensory or mental impairment or chronic illness'. In practice, most registrations are: (a) children with chronic illness; (b) children who are the subject of a

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The register of children with special needs — An approach

Cited by 3 publications

References 1 publication

A special conditions register.

A special conditions register.

The Prehospital Care of Children With Special Health Care Needs

Establishing a register of children with special needs.

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