The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

Argyriou, Konstantinos; Roma, Elefthería; Kapsoritakis, Andreas; Tsakiridou, Eirini; Oikonomou, Konstantinos; Manolakis, Anastassios C.; Potamianos, Spyridon

doi:10.1155/2017/6267175

Cited by 6 publications

(14 citation statements)

References 41 publications

(71 reference statements)

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“…Following the results of the original exploratory factor analysis, Drossman et al 4 grouped 22 of the 25 items related to worries and complaints into 4 subscales: "impact of the disease", "sexual intimacy", "complications of the disease", and "body stigma". This factor structure of the original English language version was supported (with minor adaptations) in other language versions 5,6 . However, a 6-factor structure was also suggested in the Norwegian version 7 , which included the following factors: "impact of the disease", "expectancy", "treatment", "sexual intimacy", "complications of the disease", and "body stigma".…”

Section: Introductionmentioning

confidence: 61%

“…However, a 6-factor structure was also suggested in the Norwegian version 7 , which included the following factors: "impact of the disease", "expectancy", "treatment", "sexual intimacy", "complications of the disease", and "body stigma". The RFIPC has been translated and validated in several languages [5][6][7][8][9] . Across all versions, this instrument was shown to be a reliable and valid measure of worries and concerns of patients with IBD, which can be used in both research and clinical settings.…”

Section: Introductionmentioning

confidence: 99%

“…Across all versions, this instrument was shown to be a reliable and valid measure of worries and concerns of patients with IBD, which can be used in both research and clinical settings. For research purposes, it has been used to identify patients' worries and concerns 4,6 , to compare them between patients with different disease types (e.g., CD vs. UC) 4,6 and disease activities (e.g., active disease vs. remission) 8 , to track the changes in worries over time [6][7][8] , and to perform cross-cultural comparisons of disease-specific worries 10 . In clinical practice, it can be used by physicians and nurses to offer more personalized education and treatment by focusing on the most burdensome IBD-related worries of a specific patient.…”

Section: Introductionmentioning

confidence: 99%

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Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Walentynowicz

Pavert

Coenen

et al. 2020

Scandinavian Journal of Gastroenterology

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Objectives: Worry is the most common psychological complaint among patients with Inflammatory Bowel Disease (IBD). This study aimed to translate and test the psychometric properties the Rating Form of IBD Patient Concerns (RFIPC) among Dutch-speaking patients with IBD in Belgium. It also aimed to describe worries and concerns, and to examine possible differences in worry patterns between patients with different disease types and disease activities. Methods:The RFIPC was translated into Dutch following the guidelines of the Rome Foundation and was completed by patients with Crohn's disease (CD, n = 336) and ulcerative colitis (UC, n = 160). To test concurrent validity, the Depression Anxiety Stress Scales (DASS-21) were used. Factor structure was examined with confirmatory factor analysis. Results:The 4-factor structure including subscales "impact of the disease", "sexual intimacy", "complications of the disease", and "body stigma" was confirmed in the Dutch sample. All factors had high internal consistency (> .70). Correlations with DASS-21 suggest good concurrent validity, all rs > .30, ps < .001. No differences in the RFIPC scores were observed between patients with CD and UC. Patients with active disease (53%) had higher scores than patients in remission (47%). Across all groups, the order of top concerns was consistent and included worries about energy level, side effects of medication, having an ostomy bag/surgery, and uncertain nature of the disease. Conclusions:The Dutch version of the RFIPC is a valid and reliable measure of IBD-specific worries and concerns which can be used in both research and clinical settings.

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Section: Introductionmentioning

confidence: 61%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Walentynowicz

Pavert

Coenen

et al. 2020

Scandinavian Journal of Gastroenterology

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“…The IBDQ-32 was also used as an important outcome in randomized controlled trials [ 71 – 75 ]. The RFIPC had at least 6 translated versions [ 76 – 82 ]. The SIBDQ had 4 translated versions [ 40 – 43 ].…”

Section: Resultsmentioning

confidence: 99%

Inflammatory bowel disease-specific health-related quality of life instruments: a systematic review of measurement properties

Chen

Zhong

Wen

et al. 2017

Health Qual Life Outcomes

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BackgroundThis review aims to critically appraise and compare the measurement properties of inflammatory bowel disease (IBD)-specific health-related quality of life instruments.MethodsMedline, EMBASE and ISI Web of Knowledge were searched from their inception to May 2016. IBD-specific instruments for patients with Crohn’s disease, ulcerative colitis or IBD were enrolled. The basic characteristics and domains of the instruments were collected. The methodological quality of measurement properties and measurement properties of the instruments were assessed.ResultsFifteen IBD-specific instruments were included, which included twelve instruments for adult IBD patients and three for paediatric IBD patients. All of the instruments were developed in North American and European countries. The following common domains were identified: IBD-related symptoms, physical, emotional and social domain. The methodological quality was satisfactory for content validity; fair in internal consistency, reliability, structural validity, hypotheses testing and criterion validity; and poor in measurement error, cross-cultural validity and responsiveness. For adult IBD patients, the IBDQ-32 and its short version (SIBDQ) had good measurement properties and were the most widely used worldwide. For paediatric IBD patients, the IMPACT-III had good measurement properties and had more translated versions.ConclusionsMost methodological quality should be promoted, especially measurement error, cross-cultural validity and responsiveness. The IBDQ-32 was the most widely used instrument with good reliability and validity, followed by the SIBDQ and IMPACT-III. Further validation studies are necessary to support the use of other instruments.Electronic supplementary materialThe online version of this article (10.1186/s12955-017-0753-2) contains supplementary material, which is available to authorized users.

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“…It is well known that recovery working is possibly prompt to encourage CD patients who experienced bowel resection to facilitate psychological and mental health. Employment independently influences the overall disability in CD patients [24]. IBD patients without employment were with active disease, having lower HRQoL and higher anxiety and depression rates [25].…”

Section: Discussionmentioning

confidence: 99%

Assessment of Patients’ Future Outlook after Bowel Resection in Crohn’s Disease

Tang

et al. 2019

Gastroenterology Research and Practice

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Background Many patients with Crohn's disease (CD) require surgery in their life. Their future outlook is crucial to psychological and mental health after surgery. This study is aimed at assessing CD patient's outlook after experiencing bowel resection and determining factors associated with patient's outlook. Methods We used an ad hoc questionnaire (modified WHOQOL-BREF) to assess patients' outlook for the future after bowel resection in CD. All patients who experienced bowel resection for CD from 2015 to 2017 were included in this study. Patients were divided into two groups according to the questionnaire. Patients who had a positive outlook were compared with those who had a negative outlook. The patients' view on timing of surgery was also recorded. Results Of 114 eligible patients surveyed, 103 (90.4%) responded. 65 (63.1%) reported that the timing of surgery was appropriate, and 26 patients felt it should have been performed earlier, while remaining 12 preferred a later surgery. 61 (59.2%) patients had a positive outlook of their future lives, while 42 patients had a negative outlook. Factors as the financial burden, employment status, patients' view on timing of surgery, and clinical recurrence were associated with patients' outlook. In the multivariate analysis, only clinical recurrence was an independent risk factor for patient's future outlook. Conclusion From this survey, it is clear that most patients who underwent an elective bowel resection for CD are satisfied with their timing of surgery. Patients who have clinical recurrence carry a significant negative outlook for their future life. Postoperative management which focuses on preventing clinical recurrence may enhance patients' outlook for the future.

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The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

Cited by 6 publications

References 41 publications

Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Inflammatory bowel disease-specific health-related quality of life instruments: a systematic review of measurement properties

Assessment of Patients’ Future Outlook after Bowel Resection in Crohn’s Disease

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