The quality of radiation care: The results of focus group interviews and concept mapping to explore the patient’s perspective

Nijman, Jessica; Sixma, H.; Triest, Baukelien van; Keus, Ronald B.; Hendriks, Michelle

doi:10.1016/j.radonc.2011.08.005

Cited by 27 publications

(23 citation statements)

References 29 publications

(47 reference statements)

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“…This may be considered a limitation. However, CQI questionnaires for specific subgroups have been or are being developed for breast cancer care [10] and for radiotherapy [43]. The combination of these questionnaires will result in both complete and specific information on the experiences of the cancer population.…”

Section: Discussionmentioning

confidence: 99%

Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients

et al. 2013

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BackgroundTo develop a Consumer Quality Index (CQI) Cancer Care questionnaire for measuring experiences with hospital care of patients with different types of cancer.MethodsWe derived quality aspects from focus group discussions, existing questionnaires and literature. We developed an experience questionnaire and sent it to 1,498 Dutch cancer patients. Another questionnaire measuring the importance of the quality aspects was sent to 600 cancer patients. Data were psychometrically analysed.ResultsThe response to the experience questionnaire was 50 percent. Psychometric analysis revealed 12 reliable scales. Patients rated rapid and adequate referral, rapid start of the treatment after diagnosis, enough information and confidence in the healthcare professionals as most important themes. Hospitals received high scores for skills and cooperation of healthcare professionals and a patient-centered approach by doctors; and low scores for psychosocial guidance and information at completion of the treatment.ConclusionsThe CQI Cancer Care questionnaire is a valuable tool for the evaluation of the quality of cancer care from the patient’s perspective. Large scale implementation is necessary to determine the discriminatory powers of the questionnaire and may enable healthcare providers to improve the quality of cancer care. Preliminary results indicate that hospitals could improve their psychosocial guidance and information provision.

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Section: Discussionmentioning

confidence: 99%

Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients

et al. 2013

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“…The current study achieved a high consent rate compared with recent research examining cancer outpatient satisfaction with care,13 and to the best of our knowledge, it is also the first large study to assess patient-centred care in RT outpatients 53. Heterogeneous cancer sites and stages were included to provide clinics with information about which patient groups may be missing out on elements of patient-centred care.…”

Section: Discussionmentioning

confidence: 99%

“…Heterogeneous cancer sites and stages were included to provide clinics with information about which patient groups may be missing out on elements of patient-centred care. The quality of care measure was developed following extensive pilot testing and with reference to the literature, and the domains have been supported by a recent qualitative study with radiation oncology patients 53. Therefore, it appears to have face validity as well as internal reliability.…”

Section: Discussionmentioning

confidence: 99%

Radiation oncology outpatient perceptions of patient-centred care: a cross-sectional survey

et al. 2013

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ObjectivesWe aimed to describe the proportion and characteristics of cancer patients who perceived that better care would have greatly improved their well-being in (1) specific and (2) multiple domains of patient-centred care.DesignCross-sectional touchscreen computer survey.SettingFour Australian radiation therapy departments located within major urban public hospitals.ParticipantsRadiation therapy outpatients were invited to participate in a touchscreen computer survey. Eligible patients were at least 18 years old, diagnosed with cancer and had sufficient English to complete the survey.Primary outcome measureParticipants were asked whether their well-being could have been greatly improved if better care had been provided across eight domains of patient-centred care. Characteristics of those respondents who identified (1) specific and (2) multiple domains where it was perceived that better care would have greatly improved their well-being were examined.ResultsOf 508 eligible radiation therapy patients, 344 (68%) completed the survey. Patients most frequently perceived that better care in the following domains could have improved their well-being: information and communication about their cancer (22%; 95% CI 18% to 27%); emotional and spiritual support (22%; 95% CI 18% to 27%); management of physical symptoms (21%; 95% CI 17% to 26%) and involvement of friends and family (21%; 95% CI 17% to 26%). Just under one-third of respondents (31%; 95% CI 26% to 36%) indicated that their well-being could have been improved by better care across two or more domains of care. Patients in younger age groups and migrants to Australia had higher odds of endorsing multiple domains where better care would have improved their well-being.ConclusionsFurther investigation of patients’ perceptions of how their perceived quality of care might be improved is warranted, particularly among patients in younger age groups and migrants to Australia.

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“…[9] Similarly, patients with prostate and breast cancer shared expectations related to quality care during radiation therapy and identified several needs such as additional information about radiation therapy, sequence of treatment, and potential side-effects. [10] In addition, participants felt that an individualized patient-centered approach was important, and they preferred contact information post treatment if problems arose, for example, with a nurse specialist who had expertise in radiation therapy. [10] The gaps associated with meeting the needs of patients undergoing radiation therapy are important, and there is certainly room for improvement in management and information.…”

Section: Introductionmentioning

confidence: 99%

“…[10] In addition, participants felt that an individualized patient-centered approach was important, and they preferred contact information post treatment if problems arose, for example, with a nurse specialist who had expertise in radiation therapy. [10] The gaps associated with meeting the needs of patients undergoing radiation therapy are important, and there is certainly room for improvement in management and information.…”

Section: Introductionmentioning

confidence: 99%

Blended learning continuing education using virtual animated characters: A novel radiation therapy course for nurses

Crawford¹,

Brudnoy²,

Soong

et al. 2015

JNEP

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Introduction: A blended radiation therapy course was developed to meet continuing education needs of nurses working with patients diagnosed with cancer in diverse health care settings. The purpose of this paper is to describe the design, development, and evaluation of an innovative blended radiation therapy course including eLearning modules using virtual animated character guides, an independent self-managed project, and a one-day face-to-face symposium. Methods: A pre/post-test group design was employed using standardized program evaluation measures. Participant data included self-reported confidence in knowledge of radiation therapy. Additional evaluation included assessment of the virtual animated character guides, and open-ended feedback of the overall course and areas of improvement. Results: A total of 51 participants enrolled in two separate iterations of the course with a 71% response rate. In Group A (n = 17) statistically significant improvements were identified at post-test in self-perceived confidence levels in knowledge for 11 of 12 radiation therapy domains (p < .05). In Group B (n = 19), statistically significant improvements in self-perceived confidence levels in knowledge were identified in all domains (p < .05). Discussion/Conclusions: The course provided a learning environment that drew on a variety of technologies and delivery methods. The improved confidence levels in knowledge may enhance individual nurses' ability to address the needs of patients undergoing radiation therapy. Interactivities, virtual animated character guides, discussion forums, the project assignment, and the symposium were activities perceived to be conducive to learning. Further evaluation may elucidate if confidence level in knowledge gained from the course was assimilated into practice and improved information and education needs of patients.

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The quality of radiation care: The results of focus group interviews and concept mapping to explore the patient’s perspective

Cited by 27 publications

References 29 publications

Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients

Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients

Radiation oncology outpatient perceptions of patient-centred care: a cross-sectional survey

Blended learning continuing education using virtual animated characters: A novel radiation therapy course for nurses

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