The quality of life of parents of children with autism spectrum disorder: A systematic review

Vasilopoulou, Eleni; Nisbet, J. D.

doi:10.1016/j.rasd.2015.11.008

Cited by 267 publications

(203 citation statements)

References 75 publications

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“…A recent systematic review found that the QoL of parents of children with ASD is lower than that of parents of typically developing children or the general population (Vasilopoulou & Nisbet, 2016). Various factors are associated with parents of children with ASD reporting lower QoL.…”

Section: Mothers' Experiences When There Is a Child With Asd In Theirmentioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed.

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Section: Mothers' Experiences When There Is a Child With Asd In Theirmentioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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“…Stress, coping style, and parental self-efficacy emerged as important factors associated with QoL. The results of a recently published review [58] suggested that parental stress was negatively associated with QoL and also that parents of children with ASD are more likely to experience high levels of stress [59].…”

Section: Main Findingsmentioning

confidence: 99%

Family Quality of Life in Autism Spectrum Disorders (ASD)

Predescu¹,

Sipos²

2017

Autism - Paradigms, Recent Research and Clinical Applications

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In latest years the concept of quality of life (QoL) has been acknowledged as an important outcome in psychiatric pathology fields. Most researchers consider that social indicators and the perception of personal wellbeing also, should be considered when measuring the quality of life. Our purpose was to investigate the QoL of the families of children with autism spectrum disorders (ASD) and to determine whether in this population, the potential mediators (irrational cognitions, negative automatic thoughts, coping strategies) relate significantly with the emotional distress reported. We also aimed to assess the parents' irrational cognitions and negative automatic thoughts as mediators in the relationship between the overall assessment of family QoL and their emotional distress. We found significant correlations between the emotional distress reported by the parents and their automatic negative thoughts, irrational cognitions, and different coping strategies. The relationship between the overall assessment of family QoLand the parents' emotional distress was partially explained by their negative automatic thoughts and irrational cognitions. In this view, the specialised services should include also interventions for the parents of children with developmental disorders (ASD, ADHD) in order to improve their overall assessment of family QoL.

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“…Furthermore, the experiences of parents and typically developing (TD) siblings (hereafter, just "siblings"), and the strategies they use to adjust to having a child with autism in the family are different (Lovell & Wetherell, 2016;McHale, et al, 2016;Vasilopoulou & Nisbet, 2016). For example, while parents may focus on how to improve their child with autism's abilities, siblings may care more about the behaviour of their brother or sister with autism which makes them feel embarrassed (Lock & Finstein, 2009).…”

Section: Introductionmentioning

confidence: 99%

Siblings’ experiences of growing up with children with autism in Taiwan and the United Kingdom

Tsai

Cebula

Liang

et al. 2018

Research in Developmental Disabilities

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Background: A child's diagnosis of autism impacts their whole family, in both positive and negative ways, that may be influenced by cultural beliefs. Aims: We aimed to describe the experiences of mothers and typically-developing siblings of children with autism in two cultural contexts. Methods: Fourteen mother-sibling dyads from Taiwan and the UK participated in semi-structured interviews. Results: Whilst there were similarities in sibling experiences, a negative tone regarding the influence of autism was more evident in Taiwan, where families also cited societal judgement and culturalspecific expectations. In the UK, a more balanced tone was apparent: mothers emphasised educating and involving the siblings. It is speculated that UK siblings had a greater understanding of their parents' stress, leading to more adaptive family dynamics. Various types of support service were mentioned in the UK, whereas the availability of social services and support appeared to be relatively limited in Taiwan. Implications:Our data suggest that cultural context may have a significant impact on the responses of the family members. This is mediated by both differences in attitudes and traditions, and availability of resources. Support for family members needs to be sensitive to such cultural differences, as well as recognising positive experiences.3

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The quality of life of parents of children with autism spectrum disorder: A systematic review

Cited by 267 publications

References 75 publications

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Family Quality of Life in Autism Spectrum Disorders (ASD)

Siblings’ experiences of growing up with children with autism in Taiwan and the United Kingdom

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