The psychosocial well-being of parents of children with cerebral palsy: a comparison study

Cheshire, Anna; Barlow, Julie H.; Powell, Lesley

doi:10.3109/09638281003649920

Cited by 103 publications

(82 citation statements)

References 28 publications

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“…The results of this study are consistent with research demonstrating enhanced parenting stress in parents of children with CP [4][5][6][7]. Further, this study suggests that the theoretical framework of chronic sorrow theory may be useful in understanding the experiences of parents of children with CP [8][9][10][11].…”

Section: Discussionsupporting

confidence: 80%

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

Whittingham

Wee

Sanders

et al. 2012

Disability and Rehabilitation

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Purpose: To explore the grieving, coping and resiliency experiences of parents of children with CP and to investigate the suitability of chronic sorrow theory as a framework to understand those experiences.Method: This study combined focus groups with a web-based cross-sectional survey to explore chronic sorrow in parents of children with CP. Eight parents of children with CP participated in focus groups. The discussion was transcribed verbatim and thematic analysis was performed. A further 94 parents participated in the web-based survey study in which they completed the Adapted Burke Questionnaire on chronic sorrow. A content analysis of responses was used to confirm the primary qualitative analysis.Results: The reports of parents in the focus group were consistent with chronic sorrow theory, as were the responses of parents to the web-based survey. Some parents found the diagnosis itself a distressing time whereas others found it a relief. Parents reported that times of medical and allied health intervention were particularly challenging.Conclusion: Chronic sorry theory is a useful way of understanding the experiences of parents of children with CP. It is recommended that health practitioners are mindful that, even years after diagnosis, parents of children with CP may experience intensified chronic sorrow symptoms following a triggering event and that this is normal.

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Section: Discussionsupporting

confidence: 80%

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

Whittingham

Wee

Sanders

et al. 2012

Disability and Rehabilitation

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“…In this study, the physical, psychological, and total scores of WHOQOL-BREF TR and BDI of the caregivers of children with CP were statistically significantly correlated with their wards' GMFCS scores. Contrary to this, other previous studies have shown no significant correlations among caregivers' QoL, emotional stress, and the children's GMFCS levels [19,22]. However, our study showed coincident results with Basaran et al [24].…”

Section: Discussioncontrasting

confidence: 57%

“…In literature, the caregivers of children with severe clinical impairments, especially with regard to motor function, are more likely to have greater physical and mental distress than other caregivers [17][18][19][20][21]. In addition, caregivers' QoL was significantly affected by the motor function of children with CP in this study.…”

Section: Discussionmentioning

confidence: 47%

Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy

Yun

2017

PTRS

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Objective: The purpose of this study was to evaluate the relationship between quality of life (QoL) of the caregiver and disease severity with motor function in children with cerebral palsy (CP). Design: Cross-sectional study. Methods: Research data were collected in the Rehabilitation Clinic of Daegu University. The Gross Motor Function Measure (GMFM-88) and the functional independence measure (FIM) were used for assessment by three occupational therapists, and the 36-item short form health survey (SF-36) were applied to the caregivers. One hundred six caregivers of under 18 years who were diagnosed with CP completed a survey and interview. The caregivers' QoL was evaluated using Medical Outcomes Study SF-36. The children's motor function was scored using GMFM-88 in five dimensions: lying and rolling; sitting; crawling and kneeling; standing and walking, running and jumping and CP's FIM scores. Results: Out of the 8 domains of the Medical Outcomes Study SF-36, the "physical functioning", "physical role functioning", "mental health", and "bodily pain" domains were significantly correlated to "total" percentage scores of the GMFM-88 (p<0.05). In addition, the "mental health" domain was correlated to each subdomain of the GMFM-88, which includes, "lying and rolling", and "crawling and kneeling". Similarly, of Medical Outcomes Study SF-36, "physical functioning", "bodily pain", and "mental health" domains were significantly correlated with "transfer" and "locomotion" of FIM scores (p<0.05). Conclusions: This study showed that the QoL of the caregivers were well correlated with the motor function of children with CP. It is also important to support not only physical health but also psychological health of caregivers of children with CP, especially those with severe motor function.

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“…이상에서 살펴본 바와 같이, 뇌성마비 아동 어머니 대상의 국내외 연구들은 양육스트레스 [1,6,14,[17][18][19]26]가 주를 이루고 있으며 이 와 관련된 심리사회적 변인들로 우울 [1,4,5], 부담감 [22], 삶의 질 [13], 대처 [13,26,27] …”

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Factors Influencing Burnout among Mothers of Children with Cerebral Palsy

Seo

이혜진²,

유미애

2017

J Korean Acad Nurs

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This is an Open Access article distributed under the terms of the Creative Commons Attribution NoDerivs License. (http://creativecommons.org/licenses/by-nd/4.0)If the original work is properly cited and retained without any modification or reproduction, it can be used and re-distributed in any format and medium. Purpose: The purpose of this study was to examine the effects of parental stress, social support, and coping behavior on burnout among mothers caring for children with cerebral palsy. Methods: Participants in this cross-sectional, descriptive study were 185 mothers who completed a self-report structured questionnaire. The data were analyzed using descriptive statistics, t-test, one-way ANOVA, correlation and multiple linear regression analyses with IBM SPSS Win 22 program. Results: Parental stress and coping behavior were strong predictors of burnout among mothers of children with cerebral palsy. These variables explained 50.0% of the variance in burnout. Social support was not a predictor of burnout. A higher level of burnout was associated with higher levels of parental stress and lower levels of social support and coping behavior. Conclusion: Mothers of children with cerebral palsy are vulnerable to burnout. These results show that effective strategies for reducing parental stress and improving positive coping behavior are needed to reduce burnout in these mothers.

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The psychosocial well-being of parents of children with cerebral palsy: a comparison study

Abstract: These results suggest caring for a child with CP may put parents at risk from poor psychosocial well-being. Interventions to improve parental well-being are urgently needed.

Cited by 103 publications

References 28 publications

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy

Factors Influencing Burnout among Mothers of Children with Cerebral Palsy

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