The Psychology of Facial Disfigurement: Implications for Whole Face Transplantation

Rumsey, Nichola

doi:10.1007/s40136-014-0058-5

Cited by 5 publications

(3 citation statements)

References 31 publications

(36 reference statements)

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“…Além das preocupações relacionadas à imagem, estudos enfatizam que os receptores também podem experimentar ansiedade constante devido ao medo da rejeição do enxerto. Essa questão destaca ainda mais a importância de um acompanhamento contínuo com uma equipe multidisciplinar (Rumsey, 2014).…”

Section: Metodologiaunclassified

Psychosocial Impact of Face Transplantation for the Recipient: A Literature Review

Rangel,

Regis,

Suassuna

et al. 2024

REASE

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INTRODUÇÃO: O primeiro enxerto facial bem-sucedido ocorreu no ano de 2005 desde de então progressos são vistos na área com objetivo de promover uma melhora da qualidade de vida do paciente decorrente ao impacto psicossocial conseguido com o procedimento. Nesse contexto, o objetivo deste estudo bibliográfico consiste em analisar os impactos que o transplante social provoca na vida dos receptores. METODOLOGIA: Esse estudo é uma revisão bibliográfica que busca compreender o impacto psicossocial do transplante facial. Utilizando bases de dados como PubMed e Scielo, foram selecionados artigos que abordam os efeitos do transplante facial na qualidade de vida do paciente. Após a análise dos estudos, foram encontrados 11 artigos relevantes. RESULTADOS E DISCUSSÃO: Com base nos trabalhos é de extrema importância que se tenha uma avaliação psicológica dos pacientes uma vez que o procedimento afeta significativamente sua percepção de si mesmos e sua intenção social. O acompanhamento pré e pós-operatório é essencial devido aos desafios psicológicos e mudanças no estilo de vida que podem ocorrer. Após a realização do transplante é possível perceber uma melhora na reintegração social, nos aspectos psicológicos e na qualidade de vida do paciente, além disso, foi possível perceber melhorias na saúde física, como habilidades de deglutição, respiração, comunicação verbal e sensibilidade facial. CONCLUSÃO: conclui-se que o transplante facial tem impacto psicossocial importante na vida dos pacientes. A avaliação cuidadosa e o acompanhamento contínuo são essenciais. Além disso, informar sobre os riscos e ter uma abordagem mais abrangente é crucial. Entretanto, são necessários estudos para entender o impacto a longo prazo.

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Section: Metodologiaunclassified

Psychosocial Impact of Face Transplantation for the Recipient: A Literature Review

Rangel,

Regis,

Suassuna

et al. 2024

REASE

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“…Therefore they too require support and counselling throughout this process. 2,11,13 As increasing evidence emerges on the cosmetic end-outcomes of facial transplant patients, it has been reported that patients tend to acquire a hybrid appearance incorporating their existing facial features with that of the donor, with the underlying bony skeleton of the recipient contributing far greater to the overall appearance. 3,12,14,15 Allowing recipients to visualise what their appearance may resemble following the procedure has been made possible in some centres through the use of technology such as advanced three-dimensional (3D) imaging.…”

Section: Patient Considerationsmentioning

confidence: 99%

A review of the world’s published face transplant cases: ethical perspectives

Theodorakopoulou

Meghji

Pafitanis

et al. 2017

Scars, Burns & Healing

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The highly publicised case of the first ever partial facial transplant in 2005 sparked fierce ethical debates, moral arguments and strong opinions, both within the medical community as well as the general public and mass media. As more patients have undergone facial transplantation over the last decade, some of this initial scepticism has given way to a wider acceptance of this significant reconstructive development. However, despite an improved understanding of the perioperative technicalities and postoperative perils, the risks remain significant and the long-term outcomes are still largely unknown. This article examines the major ethical challenges that have accompanied facial allo-transplantation since its inception. We discuss these ethical dilemmas in the context of the patients, donor families, healthcare professionals and society as a whole, while evaluating some of the emerging evidence and outcomes associated with the physical and psycho-emotional risks linked to this procedure.

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“…Interestingly, psychological adjustment could not be fully predicted by etiology and severity of disfigurement [ 4 ]. Good predictors of adjustment are psychosocial factors, such as perceptions of social support and acceptance as well as self-perceived appearance [ 4 , 6 , 7 ]. Therefore, specialists involved in ocular rehabilitation, such as ocularists, prosthetists, or maxillofacial prosthodontists, are required to have competence in the management of both physical and psychological difficulties in these patients.…”

Section: Introductionmentioning

confidence: 99%

Psychosocial distress and psychological adjustment in patients with ocular loss: a framework analysis

et al. 2022

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Background Patients with ocular loss tend to have physical and psychosocial difficulties. Maxillofacial prosthetic specialists involved in the treatment should be trained with competence to manage psychological complications. However, due to the multifactorial origin of the psychosocial distress, designing such training activities can be challenging. This research aimed to construct a conceptual framework illustrating the effects of ocular loss on patients’ physical and psychosocial well-being and their coping strategies, to propose the learning content of training sessions. Methods A semi-structured interview and a topic guide were employed to explore the perceptions from patients who were receiving their first custom ocular prosthesis, fabricated by maxillofacial prosthodontists. The participants were selected using a purposeful sampling up until data saturation. The data were analyzed using framework analysis. Results Twelve patients participated in this research. Four main themes emerged from the data analysis: (1) Impact of ocular loss, (2) Factors influencing psychosocial distress, (3) Psychological adjustment, and (4) Expected treatment outcomes. Each theme appeared to have influence on the other, rather than presenting itself independently. Although patients with ocular loss experienced both physical and psychosocial difficulties, psychological distress was greatly influenced by self-perceived disfigurement, etiology, and social status. Therefore, they needed to develop their coping strategies including rehabilitation with ocular prosthesis. Conclusion Various forms of psychological adjustments were necessary in these patients with ocular loss to resume their daily lives. The specialist involved in the treatment should also partake in patients’ psychological adjustment and should be competent in psychological management skills, such as supporting patients to meet their expectations.

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The Psychology of Facial Disfigurement: Implications for Whole Face Transplantation

Cited by 5 publications

References 31 publications

Psychosocial Impact of Face Transplantation for the Recipient: A Literature Review

Psychosocial Impact of Face Transplantation for the Recipient: A Literature Review

A review of the world’s published face transplant cases: ethical perspectives

Psychosocial distress and psychological adjustment in patients with ocular loss: a framework analysis

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