The Promise of Telemedicine for Movement Disorders: an Interdisciplinary Approach

Ben‐Pazi, Hilla; Browne, Patrick; Chan, Piu; Cubo, Esther; Guttman, Mark; Hassan, Anhar; Hatcher-Martin, Jaime M.; Mari, Zoltán; Moukheiber, Emile; Okubadejo, Njideka; Shalash, Ali

doi:10.1007/s11910-018-0834-6

Cited by 86 publications

(88 citation statements)

References 68 publications

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“…Many CPs in this study implied they had access to movement disorders specialists, but many individuals in the United States and elsewhere may not have access to subspecialty care. Telemedicine and comprehensive care clinics are potential ways to improve access to specialists, but evaluations have shown that their reach and services are limited . Hence, further research is needed to understand how to overcome system‐level barriers of access to high‐quality PCC for PwP.…”

Section: Discussionmentioning

confidence: 99%

Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of “off” periods

Rastgardani

Armstrong

Marras

et al. 2019

Health Expectations

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Objective This study explored how care partners (CPs) of persons with Parkinson's (PwP) are engaged in discussions of “off” symptoms. Methods During qualitative interviews, CPs of PwP sampled by convenience through the Michael J Fox Foundation online clinical trial matching service were asked to describe their familiarity with “off” symptoms, how “off” symptoms were discussed with clinicians, and the impact of “off” symptoms on them. Data were analysed using constant comparative technique by all members of the research team. Results A total of 20 CPs were interviewed. Compared with PwP, they were more likely to describe “off” symptoms to clinicians. CPs identified important aspects of patient‐centred care for PD: establishing a therapeutic relationship, soliciting and actively listening to information about symptoms, and providing self‐management support to both PwP and CPs. CPs said that clinicians did not always engage CPs, ask about “off” symptoms or provide self‐management guidance, limiting their ability to function as caregivers. Conclusion By not engaging and educating CPs, “off” symptoms may not be identified or addressed, leading to suboptimal medical management and quality of life for PwP. These findings must be confirmed on a broader scale through ongoing research but suggest the potential need for interventions targeted at clinicians and at CPs to promote patient‐centred care for PwP.

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Section: Discussionmentioning

confidence: 99%

Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of “off” periods

Rastgardani

Armstrong

Marras

et al. 2019

Health Expectations

View full text Add to dashboard Cite

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“…Fortunately, the validity of telemedicine to assess PD patients has been well documented in many studies, which is feasible because most physical examinations can be visualized. 25 Indeed, many core features of the disease, except rigidity and postural reflex impairment, can be videotaped or watched with video consultations. The International Parkinson and Movement Disorder Society has developed a practical step-by-step guide for how to implement telemedicine for a movement disorders clinic on their website, including the example of providers and some regional specifics (https://www.movementdisorders.org/MDS/About/ Committees--Other-Groups/Telemedicine-in-Your-Movement -Disorders-Practice-A-Step-by-Step-Guide.htm).…”

Section: A Special Role Of Telemedicine During the Covid-19 Pandemicmentioning

confidence: 99%

Impact of the COVID‐19 Pandemic on Parkinson's Disease and Movement Disorders

Papa

Brundin

Fung

et al. 2020

Movement Disord Clin Pract

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“…Parkinson's disease (PD) is the second most common neurodegenerative disease, and the healthcare burden of this disease is increasing across the world. Recently, telemedicine has been increasingly adopted for managing PD patients, owing to the rising burden, limited availability of specialists, recent evidence of its applicability, and advances in technology (1,2). Furthermore, healthcare services for chronically ill patients, including PD patients, were compromised during the COVID-19 pandemic, owing to the lockdown and the direction of healthcare resources toward its containment.…”

Section: Introductionmentioning

confidence: 99%

Adopting Virtual Visits for Parkinson's Disease Patients During the COVID-19 Pandemic in a Developing Country

et al. 2020

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Objective: Telemedicine has been increasingly used, especially during the COVID-19 pandemic; however, limited data are available from developing countries. The present study aimed to evaluate the feasibility, satisfaction of patients and physicians, and quality of service provided during virtual visits for Parkinson's disease (PD) patients during the COVID-19 pandemic and the associated limitations. Methods: Thirty-nine PD patients were contacted to schedule virtual visits using the Zoom application. Thereafter, we rated the feasibility, satisfaction, and quality of service provided by virtual visits using patients' and physicians' questionnaires. Results: Twenty-one out of 39 PD patients were scheduled for virtual visits. Nineteen virtual visits out of 21 (90.5%) were conducted successfully; 16 of these were accomplished in the first attempt (76.2%). The scores of satisfaction, quality of service, and set-up/preparation were 9.5 (8.5-10), 9.5 (9-10), and 8 (5-10) for the patients and 9 (7-10), 8 (6-10), and 10 (10-10) for the physicians, respectively. The average time that was saved was 270.79 ± 142.17 min, while an average of 76.38 ± 95.15 km of travel was avoided for the patients per visit. The most common limitations for conducting virtual visits were a lack of Internet connection and the inability to use technology (75%). Conclusions: The present study showed the feasibility and the high satisfaction level of patients and physicians as well as the favorable service quality of virtual visits for PD in a developing country during the COVID-19 pandemic. However, the lack of Internet connectivity and the inability to use technology were the main limitations.

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The Promise of Telemedicine for Movement Disorders: an Interdisciplinary Approach

Cited by 86 publications

References 68 publications

Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of “off” periods

Improving patient‐centred care for persons with Parkinson's: Qualitative interviews with care partners about their engagement in discussions of “off” periods

Impact of the COVID‐19 Pandemic on Parkinson's Disease and Movement Disorders

Adopting Virtual Visits for Parkinson's Disease Patients During the COVID-19 Pandemic in a Developing Country

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