The process of transformation in rehabilitation: what does it look like?

Dubouloz, Claire Jehanne; King, Judy; Ot, MA Brenda Ashe; Paterson, Barbara; Chevrier, Jacques; Moldoveanu, Mirela

doi:10.12968/ijtr.2010.17.11.79541

Cited by 21 publications

(4 citation statements)

References 35 publications

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“…GPs can mitigate against the negative experiences of patients and trainees, and potentially some of their own challenges, through explicit discussion and exploration of the experiences of each group during interactions. A good starting point may be education and discussion based on the transformation model, 48 which details patients’ responses to receiving a diagnosis of, and living with, a chronic illness. Empirical work is required to investigate the value of this model in the context of multimorbidity and its effect on individualising care, improving patient experiences and promoting agreed goal setting.…”

Section: Discussionmentioning

confidence: 99%

Lived experiences of multimorbidity: An interpretative meta-synthesis of patients’, general practitioners’ and trainees’ perceptions

Cottrell

Yardley

2015

Chronic Illness

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ObjectivesMultimorbidity is an increasing challenge. Better understanding of lived experiences of patients, GPs and trainees, may advance patient care and medical education. This interpretative metasynthesis sought to i) understand lived experiences of patients, GPs and trainees regarding multimorbidity, ii) identify how similarities and differences in experiences should shape future solutions. MethodsEmpirical studies containing qualitative data and pertaining to lived experiences from our recent realist synthesis (PROSPERO 2013:CRD42013003862) were included. Following quality assessment, data were extracted from key studies to build an integrated analytic framework.Data from remaining studies were utilised to expand and refine the framework through thematic analysis of concepts within and between perspectives. Results21 papers were included in the meta-synthesis. Analysis of 70 concepts produced five themes: 1) goals of care and decision-making, 2) complexity, 3) meeting expectations, 4) logistics and 5) interpersonal dynamics. The complexities of multimorbidity lead to shared feelings of vulnerability, uncertainty and enforced compromises. Barriers to optimal care/education included system constraints, inadequate continuity and role uncertainty. DiscussionThere was little evidence of shared discussion of these challenges. Addressing these issues and more explicit exploration of the experiences of each group during interactions may improve delivery and satisfaction in care and education.

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Section: Discussionmentioning

confidence: 99%

Lived experiences of multimorbidity: An interpretative meta-synthesis of patients’, general practitioners’ and trainees’ perceptions

Cottrell

Yardley

2015

Chronic Illness

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“…Various models have been developing based upon this approach to learning within rehabilitation. One such model is found in the work of Dubouloz (Dubouloz et al, 2010;Dubouloz, Laporte, Hall, Ashe, & Smith, 2004) and colleagues (King, Klinovski, & Dubouloz, 2016). This model provides insight regarding the complexity of patients' experiences of learning to live with long-term health conditions.…”

Section: Embodied Transformative Learningmentioning

confidence: 99%

Meanings of “acceptance” for patients with long-term pain when starting rehabilitation

Biguet

Wikmar

Bullington

et al. 2015

Disability and Rehabilitation

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Healthcare professionals should be aware that individuals with long-term pain conceptualize and hold different meanings of acceptance when starting rehabilitation; this should be considered and addressed in rehabilitation programmes. The meaning given to acceptance is related to the experience of the lived body and the sense of self, as well as to getting legitimization/acceptance by others; therefore these aspects need to be considered during rehabilitation. The process of achieving acceptance seems to embrace different processes which can be understood as, and facilitated by, an embodied learning process. The bodily existential challenges presented in the present study, for example to develop an integrated and cooperative relationship with the painful body, can inspire health professionals to develop interventions and communication strategies focusing on the lived body. A wide range of competencies in rehabilitation clinics seems to be needed.

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“…Having a child with ADHD has several implications on family life, and requires parental management of their child’s daily behavior. Parents often need to take on the role of case manager or “gatekeepers” and need to manage the home, school, and social behaviors, as well as medications, the daily routine, and therapy sessions, including communication with the therapist, if in treatment [3,10]. Not surprisingly, family members of children with ADHD face daily strains and search for information and solutions to these issues [11].…”

Section: Introductionmentioning

confidence: 99%

Seeking Web-Based Information About Attention Deficit Hyperactivity Disorder: Where, What, and When

Rosenblum¹,

Yom-Tov²

2017

J Med Internet Res

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BackgroundAttention Deficit Hyperactivity Disorder (ADHD) is a common neurodevelopmental disorder, prevalent among 2-10% of the population.ObjectiveThe objective of this study was to describe where, what, and when people search online for topics related to ADHD.MethodsData were collected from Microsoft’s Bing search engine and from the community question and answer site, Yahoo Answers. The questions were analyzed based on keywords and using further statistical methods.ResultsOur results revealed that the Internet indeed constitutes a source of information for people searching the topic of ADHD, and that they search for information mostly about ADHD symptoms. Furthermore, individuals personally affected by the disorder made 2.0 more questions about ADHD compared with others. Questions begin when children reach 2 years of age, with an average age of 5.1 years. Most of the websites searched were not specifically related to ADHD and the timing of searches as well as the query content were different among those prediagnosis compared with postdiagnosis.ConclusionsThe study results shed light on the features of ADHD-related searches. Thus, they may help improve the Internet as a source of reliable information, and promote improved awareness and knowledge about ADHD as well as quality of life for populations dealing with the complex phenomena of ADHD.

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The process of transformation in rehabilitation: what does it look like?

Cited by 21 publications

References 35 publications

Lived experiences of multimorbidity: An interpretative meta-synthesis of patients’, general practitioners’ and trainees’ perceptions

Lived experiences of multimorbidity: An interpretative meta-synthesis of patients’, general practitioners’ and trainees’ perceptions

Meanings of “acceptance” for patients with long-term pain when starting rehabilitation

Seeking Web-Based Information About Attention Deficit Hyperactivity Disorder: Where, What, and When

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