The PREPARE for Your Care program increases advance care planning engagement among diverse older adults with cancer

Nouri, Sarah; Barnes, Deborah E.; Shi, Ying; Volow, Aiesha; Shirsat, Nikita; Kinderman, Anne; Harris, Heather A.; Sudore, Rebecca L.

doi:10.1002/cncr.33676

Cited by 8 publications

(5 citation statements)

References 36 publications

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“…The PREPARE for Your Care tool, used in 15 studies, innovatively incorporated a hybrid delivery method, offering adaptability across varying patient needs. 13 – 27 Conversely, tools such as PROVEN 28 – 33 and Hello Project 34 – 38 used video and game-based approaches respectively, illustrating the variety of delivery methods. The web-based tool, Making Your Wishes Known, 39 – 43 offers wide accessibility, while PC-ACP 44 – 48 and SPIRIT 49 – 53 highlight the significance of individual counseling in ACP.…”

Section: Resultsmentioning

confidence: 99%

Tools for tomorrow: a scoping review of patient-facing tools for advance care planning

Riley,

Voisin,

Stevens

et al. 2024

Palliat�Care

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Advance care planning (ACP) supports individuals in aligning their medical care with personal values and preferences in the face of serious illness. The variety of ACP tools available reflects diverse strategies intended to facilitate these critical conversations, yet evaluations of their effectiveness often show mixed results. Following the Arskey and O’Malley framework, this scoping review aims to synthesize the range of ACP tools targeted at patients and families, highlighting their characteristics and delivery methods to better understand their impact and development over time. Studies included focused on patient-facing ACP tools across all settings and mediums. Exclusions were applied to studies solely targeting healthcare providers or those only aiming at completion of advance directives without broader ACP discussions. Searches were conducted across PubMed, Embase, CINAHL, The Cochrane Library, and Web of Science. Data were extracted using a predesigned spreadsheet, capturing study population, setting, intervention modality, and intervention theme. Tools were categorized by delivery method and further analyzed through a year-wise distribution to track trends and developments. We identified 99 unique patient-facing tools, with those focusing on counseling (31) and video technologies (21) being the most prevalent while others incorporated online platforms, print materials, games, or some combination of different delivery methods. Over half the tools were designed for specific patient groups, especially for various diseases and racial or ethnic communities. Recent years showed a surge in tool variety and innovation, including integrated patient portals and psychological techniques. The review demonstrates a broad array of innovative ACP tools that facilitate personalized and effective ACP. Our findings contribute to an enhanced understanding of their utilization and potential impacts, offering valuable insights for future tool development and policy making in ACP.

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Section: Resultsmentioning

confidence: 99%

Tools for tomorrow: a scoping review of patient-facing tools for advance care planning

Riley,

Voisin,

Stevens

et al. 2024

Palliat�Care

View full text Add to dashboard Cite

show abstract

“…Recognizing that ACP is achieved through a process of iterative conversations and that content changes over time, collecting measures longitudinally may provide a more complete picture of clinical activity than what cross-sectional measures allow. Longitudinal, patient-reported measures may be particularly useful in evaluating interventions to improve communication, such as the Serious Illness Care Program [ 37 ] or PREPARE For Your Care [ 38 ]. Future studies could explore the longitudinal congruency between patient-perceived rates of ACP discussion and rates of discussion as documented in their medical records, as well as the similarities and differences in what patients and their HCPs find meaningful to discuss and to document during clinical encounters.…”

Section: Discussionmentioning

confidence: 99%

Colorectal Cancer Patients’ Reported Frequency, Content, and Satisfaction with Advance Care Planning Discussions

Hussein,

Lim,

Manokaran

et al. 2024

Current Oncology

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(1) Background: This observational cohort study describes the frequency, content, and satisfaction of advance care planning (ACP) conversations with healthcare providers (HCPs), as reported by patients with advanced colorectal cancer. (2) Methods: The patients were recruited from two tertiary cancer centers in Alberta, Canada. Using the My Conversations survey with previously validated questions, the patients were asked about specific ACP elements discussed, with which HCPs these elements were discussed, their satisfaction with these conversations, and whether they had a goals of care designation (GCD) order. We surveyed and analyzed data from the following four time points: enrollment, months 1, 2, and 3. (3) Results: In total, 131 patients were recruited. At enrollment, 24% of patients reported discussing at least one ACP topic. From enrollment to month 3, patients reported a high frequency of discussions (80.2% discussed fears, 71.0% discussed prognosis, 54.2% discussed treatment preferences at least once); however, only 44.3% of patients reported discussing what is important to them in considering health care preferences. Patients reported having ACP conversations most often with their oncologists (84.7%) and cancer clinic nurses (61.8%). Patients reported a high level of satisfaction with their ACP conversations, with over 80% of patients reported feeling heard and understood. From enrollment to month 3, there was an increase in the number of patients with a GCD order from 53% to 74%. (4) Conclusions: Patients reported more frequent conversations compared to the literature and clinical documentation. While the satisfaction with these conversations is high, there is room for quality improvement, particularly in eliciting patients’ personal goals for their treatment.

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“…Closely related to chronic pain, it was found that this RCT, in which a planned HL intervention program was analyzed in comparison with an intervention directive between oncological and non-oncological patients, whose secondary outcomes were depression and/or anxiety and HL, among others. Ease of use of the documentation and satisfaction were high, and depression/anxiety was low, with no differences based on the study arm or whether the patient had cancer or not ( 107 ). In another geographical context and with the same objective, the prevalence of symptoms of depression and anxiety and mental health literacy (MHL) in outpatients with or without cancer was evaluated.…”

Section: Discussionmentioning

confidence: 99%

Effectiveness of health literacy interventions on anxious and depressive symptomatology in primary health care: A systematic review and meta-analysis

Magallón-Botaya

Méndez-López

Oliván-Blázquez

et al. 2023

Front. Public Health

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BackgroundAffective disorders are a debilitating and very prevalent problem throughout the world. Often these are associated with the onset of comorbidities or a consequence of chronic diseases. Anxiety and depression are associated with poor social and personal relationships, compromised health. We aimed to synthesize evidence from studies measuring the impact of a health literacy (HL) intervention on the improvement of affective disorders.MethodsFor this systematic review and meta-analysis, we searched PubMed/MEDLINE, Embase, Web of Science, Ibecs, Cuiden, Scielo, Science Direct and Dialnet for exclusively randomized controlled trial studies (RCTs) published between 1 Jan 2011, and 31 May 2022. The search terms employed were “health literacy,” “health knowledge,” “anxiety,” “anxiety disorder,” “depression,” “depressive disorder,” and “adult.” The risk of bias assessment was performed using the Cochrane Collaboration Revised Risk of Bias tool (RoB2). We conducted random-effects meta-analyses and explored heterogeneity using meta-regression and a stratified survey.ResultsOf 2,863 citations found through the initial screening, 350 records were screened by the title and abstract for their themes and relevance. Finally, nine studies complied with the inclusion criteria for the meta-analysis. 66.66% of studies (n = 6) were rated as having a low risk of bias and 33.33% (n = 3) were judged to raise some concerns. The health literacy interventions were associated with −1.378 reduction in depression and anxiety questionnaires scores [95% CI (−1.850, −0.906)]. Low mood disorder scores are associated with better mental health and wellbeing.ConclusionOur findings demonstrate that an HL intervention in relation to the symptoms associated with affective disorders improves the emotional state of patients in PHC, with a moderately positive effect in reducing depression and anxiety.

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The PREPARE for Your Care program increases advance care planning engagement among diverse older adults with cancer

Cited by 8 publications

References 36 publications

Tools for tomorrow: a scoping review of patient-facing tools for advance care planning

Tools for tomorrow: a scoping review of patient-facing tools for advance care planning

Colorectal Cancer Patients’ Reported Frequency, Content, and Satisfaction with Advance Care Planning Discussions

Effectiveness of health literacy interventions on anxious and depressive symptomatology in primary health care: A systematic review and meta-analysis

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