The preferences of young adults with Type 1 diabetes at clinics using a discrete choice experiment approach: the D1 Now Study

Morrow, L Mc; O’Hara, Mary Clare; Hynes, Lisa; Cunningham, Aine; Caulfield, A.; Duffy, Ciara; Keighron, C.; Mullins, Monica; Long, Michelle; Walsh, Deirdre; Byrne, Molly; Kennelly, Brendan; Gillespie, Paddy; Dinneen, Seán F.; Doherty, Edel

doi:10.1111/dme.13809

Cited by 8 publications

(7 citation statements)

References 22 publications

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“…Corroborating these recommendations and in accordance with an increased focus on patient involvement, it would be rational to have more patient involvement in the planning of appointments and other contacts to the diabetes clinic. Such a change would also correspond to the results of studies finding that patients want more flexible booking systems and better accessibility, organisation, and coordination of the services offered …”

supporting

confidence: 54%

Leaving the responsibility of booking appointments to parents in a paediatric diabetes outpatient clinic resulted in a deterioration of metabolic control

Kofoed

Thomsen

2019

Pediatr Diabetes

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It is recommended that children and adolescents with diabetes are seen at paediatric diabetes clinics at least four times a year. This study examined whether an increased involvement of parents in planning the contacts would help them take more responsibility and thus lead to better metabolic control.Methods: Patients with type 1 diabetes at the paediatric outpatient clinic at Lillebaelt Hospital were included in a before-after study. During the intervention, the parents were asked to contact the clinic whenever they needed help or wanted to book a consultation. HbA1c levels 1 year before, at the start of, and 1 year after the intervention were compared, as were the number of consultations and telephone contacts during the year prior to and during the intervention.Results: 139 patients were included in the analyses. The mean HbA1c levels were

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supporting

confidence: 54%

Leaving the responsibility of booking appointments to parents in a paediatric diabetes outpatient clinic resulted in a deterioration of metabolic control

Kofoed

Thomsen

2019

Pediatr Diabetes

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“…Early interventions, which can be more effective in adolescence than in adulthood, can prevent delayed harm [ 9 ]. Further evidence suggests that young people form explicit opinions about healthcare service delivery [ 10 , 11 ]. Researching their preferences is vital for understanding determinants of healthcare demand and designing effective health promotion and early intervention strategies.…”

Section: Introductionmentioning

confidence: 99%

The application of discrete choice experiments eliciting young peoples’ preferences for healthcare: a systematic literature review

Williams

Kinchin

2022

Eur J Health Econ

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Objectives Understanding young people’s preferences for healthcare is critical for reducing the negative effect of undesirable choices. This review aims to synthesise the evidence obtained from discrete choice experiments (DCEs) eliciting young people’s preferences for healthcare interventions and service deliveries, specifically, to (1) examine the methodology, including a selection of attributes and levels, experimental design, estimation procedure and validity; (2) evaluate similarities, differences and rigour of designs to the general population DCEs; and, (3) compare the DCEs’ application to the seven health priority areas defined by the World Health Organisation (WHO). Methods A systematic review searching Medline, EconLIT, PsychINFO, Scopus, and Web of Science was performed up until May 2021. Inclusion criteria: a DCE, eliciting young peoples’ preferences (10–24 years of age), on a healthcare-related topic defined by WHO, peer-reviewed, full-text available in English. A bespoke checklist was used to assess the methodological quality of the included studies. Results Eighteen DCE studies were included in the review, exploring interventions and service in sexual and reproductive health (n = 9; 50%), smoking cessation (n = 4; 22%), mental health (n = 1), nutrition (n = 1), unintentional injuries (n = 1), vaccination against severe but rare diseases (n = 1); and diabetes (n = 1). Compared to the general population, DCEs eliciting young people’s preferences had a high proportion of monetary measures and a smaller number of choices per respondent with the overwhelming number of surveys using fractional factorial design. The majority of studies were of moderate quality (50–75% of the criteria met). Conclusions While identified DCEs touched on most health priority areas, the scope was limited. The conduct and reporting of DCEs with young people could be improved by including the state-of-the-art design, estimation procedures and analysis.

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“…Asthma self-management is affected by this unstable development period. Furthermore, engaging young adults in self-management research often proves challenging in asthma [ 29 ] and other chronic conditions [ 30 , 31 ]. Therefore, this population requires attention and there is a clear need to establish appropriate supports to improve self-management, especially adherence to ICS, at this challenging point in the lifespan.…”

Section: Introductionmentioning

confidence: 99%

A Smartphone App to Support Adherence to Inhaled Corticosteroids in Young Adults With Asthma: Multi-Methods Feasibility Study

et al. 2021

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Background Young adults with asthma often report low adherence to inhaled corticosteroids (ICS), leading to uncontrolled symptoms and poor disease outcomes. Technology-enabled digital supports such as mobile health (mHealth) asthma smartphone apps have the potential to support adherence to ICS and asthma self-management. There is a need for feasibility studies to determine the usability, acceptability, and feasibility of these interventions. In addition, it is essential to determine the feasibility of recruiting and retaining young adults to plan future efficacy and effectiveness trials and therefore, establish evidence-based asthma apps. Objective This study aimed to determine (1) the feasibility of recruiting and retaining young adults to a trial and (2) the usability, acceptability, and feasibility of using the AsthmaMD app to support adherence to ICS in a population of young adults living with asthma. Methods A multi-methods feasibility study was conducted. Young adults aged 18-30 years with asthma and current prescription for ICS were eligible and invited to take part through a university circular email, social media, and general practice sites. Participation involved completing a baseline self-report questionnaire, downloading and using the AsthmaMD app for 2 weeks, and completing the follow-up assessment, including self-report and open-ended questions about participants’ experience of using the app. Primary outcomes included participant recruitment and retention and the usability, acceptability, and feasibility of using AsthmaMD. Quantitative self-report data were analyzed using descriptive statistics, and qualitative open-ended data were analyzed using inductive reflexive thematic analysis. Results A total of 122 young adults (females, n=101, 82.8%) with a mean age of 24.4 (SD 3.8) years were recruited and they completed baseline measures. Of the 122 young adults, 59 (48.4%) completed the study. The AsthmaMD app received a mean score of 63.1/100 (SD 20.1) on the System Usability Scale (ie, a standardized measure of usability for technology-based apps), and an overall user satisfaction score of 5.8/10 (SD 2.2). Of the 59 participants who completed the study, 49 (83%) participants used the app ≥1 day per week. Two main themes were identified in the qualitative analysis of user experiences: (1) learning how to use the app to suit the individual and (2) benefits and relevance of using the app. Conclusions The findings from this study indicate that it is feasible to recruit and retain young adults to examine efficacy and effectiveness in a future trial and that young adults living with asthma may find AsthmaMD to be usable, acceptable, and feasible to support adherence to ICS. Our findings also identified opportunities to further optimize the usability of AsthmaMD and similar apps. Based on our findings, we recommend providing more accessible information on how to use the app and replacing medical terminology with simplified language within the app to improve usability. Trial Registration ISRCTN Registry ISRCTN11295269; https://www.isrctn.com/ISRCTN11295269

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The preferences of young adults with Type 1 diabetes at clinics using a discrete choice experiment approach: the D1 Now Study

Cited by 8 publications

References 22 publications

Leaving the responsibility of booking appointments to parents in a paediatric diabetes outpatient clinic resulted in a deterioration of metabolic control

Leaving the responsibility of booking appointments to parents in a paediatric diabetes outpatient clinic resulted in a deterioration of metabolic control

The application of discrete choice experiments eliciting young peoples’ preferences for healthcare: a systematic literature review

A Smartphone App to Support Adherence to Inhaled Corticosteroids in Young Adults With Asthma: Multi-Methods Feasibility Study

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