The Potential of Instagram to Reduce Stigmatization of People with Psoriasis: A Randomized Controlled Pilot Study

Maspero, Simona; Ebert, Christopher; Moser, Selina; Zink, Alexander; Sichert, Pablo; Schielein, Maximilian; Weis, Johanna; Ziehfreund, Stefanie

doi:10.2340/actadv.v103.3513

Cited by 6 publications

(4 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Thus, the people affected by psoriasis are among themselves and do not experience external stigmatization. However, it was previously described that addressing psoriasis on digital media had the potential to reduce stigmatization [35].…”

Section: Principal Results and Comparison With Prior Workmentioning

confidence: 99%

Beyond the Screen: Exploring Digital Health Experiences of Individuals Affected by Psoriasis – A Qualitative Interview Study

Erbas,

Ziehfreund,

Biedermann

et al. 2024

Preprint

View full text Add to dashboard Cite

Background: Psoriasis, a chronic inflammatory skin disorder, imposes a high burden on those affected, often leading to stigma and increased depression risk. With the increasing importance of digital media in medical contexts, there is a notable prevalence of misinformation and low-quality content. This study aims to explore the experiences of individuals affected by psoriasis regarding their disease-related digital media use. Methods: Semi-structured interviews with open-ended questions were conducted with psoriasis-affected people between August 2020 and January 2022 in Germany. The participants were recruited through digital media platforms, professional contacts, and in person at a university hospital department in southern Germany and were interviewed via video call. The recorded data was pseudonymized, transcribed verbatim, and analyzed using qualitative content analysis by Mayring which also allowed a quantitative evaluation of the category placements. Results: Eight participants (50% female) with a median age of 40.5 years (range: 25 – 80 years) were included. Four main categories emerged: (1) strengths and (2) difficulties of digital media in the context of psoriasis, (3) digital media in the context of the physician-patient relationship, and (4) suggestions for improvement. Commonly mentioned strengths were the positive impact on one’s well-being and the access to alternative therapy options. Frequently named problems were qualitative shortcomings and commercial interests. Most participants reported that digital media was not addressed in the physician-patient communication. Nevertheless, instances where it was discussed revealed predominantly negative reactions from physicians. Participants desired an increased availability of online resources and enhanced cooperation between digital media platforms and physicians. Conclusions: This study underscores the opportunities and challenges presented by digital media in managing psoriasis. Physicians should ensure that their patients access reliable platforms. Collaboration between physicians and affected individuals on digital media and adapting the traditional physician-patient relationship to an increasingly digitalized world are suggested to enhance patient care.

show abstract

Section: Principal Results and Comparison With Prior Workmentioning

confidence: 99%

Beyond the Screen: Exploring Digital Health Experiences of Individuals Affected by Psoriasis – A Qualitative Interview Study

Erbas,

Ziehfreund,

Biedermann

et al. 2024

Preprint

View full text Add to dashboard Cite

show abstract

“…The limited presence of psoriasis-related content on digital media platforms highlights a missed opportunity to effectively engage a wider audience and disseminate accurate information about psoriasis [ 8 ]. Our ballpark estimates highlight the need to increase collaboration, targeted efforts, and partnerships among low-, middle-, and high-income countries especially in Africa, as shown in previous publications [ 9 , 10 ].…”

Section: Discussionmentioning

confidence: 99%

Evaluating the Global Digital Impact of Psoriasis Action Month and World Psoriasis Day: Serial Cross-Sectional Study

Malhotra,

Aggarwal,

Malhotra

et al. 2023

JMIR Dermatol

View full text Add to dashboard Cite

“…As shown in our study, skin disease may profoundly affect an individual's personal and work life due to the visibility of the condition and the resistance of others to accept any deviations from a socially described norm. Familiarizing the public with prevalent skin diseases as part of a potential skin appearance may assist to reduce disease-related stereotypes 18 and separate 'normal' from 'healthy'. 19 In conclusion, our study provides new information on the prevalence of skin diseases in the Southern European country of Greece and highlights the impact of skin disease on personal life and life-altering decisions.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The prevalence of skin diseases in Greece, impact on quality of life and stigmatization: A population‐based survey study

Stratigos,

Richard,

Dessinioti

et al. 2023

JEADV Clinical Practice

View full text Add to dashboard Cite

BackgroundThere is no population‐based evidence on the prevalence and impact of skin diseases in Greece.ObjectivesTo describe the prevalence of 12 main skin diseases and their impact on quality of life (QoL) and feelings of stigmatization in the Greek population.MethodsA population‐based survey in an adult Greek representative sample was carried out as part of the multinational ‘EADV burden of skin diseases study’. Quality of life (QOL) was measured using the Dermatology Life Quality Index (DLQI) and the Visual Analogue Scale (VAS) from the EuroQol‐5D (EQ. 5D) questionnaires.ResultsIn 1010 participants, 47.8% (n = 483) declared at least one skin disease or condition or skin‐related unpleasant sensation in the last 12 months. Fungal skin infection was reported with the higher prevalence (7.5%), followed by alopecia (5.7%), atopic dermatitis (5%), acne (3.6%), sexually transmitted diseases (2.7%), psoriasis (2.2%) chronic urticaria (1.5%), rosacea (1.3%), nonmelanoma skin cancer (1.5%), vitiligo (0.6%), cutaneous melanoma (0.6%) and hidradenitis suppurativa (0.3%). Mean VAS‐EQ. 5D and DLQI scores were 77.8 and 2.2, respectively. Among those reporting at least one skin problem, 68.1% reported an impact of the skin condition on their personal life and 51% reported an impact on time to take care of themselves. Regarding the impact on work‐life decisions, 22.2% reoriented their professional activity, 13% were refused a professional offer, 22.2% did not get the job they hoped to and 16.7% chose their work with their skin problem in mind. Regarding feelings of stigmatization, 12% felt left out/rejected by others, 6.6% were refused access to leisure facilities and 9.8% reported the impression to be looked at with disgust.ConclusionsOur population‐based study provides new information on the prevalence of skin diseases in the Southern European country of Greece and highlights the impact of prevalent skin disease on life‐altering decisions and stigmatization.

show abstract

The Potential of Instagram to Reduce Stigmatization of People with Psoriasis: A Randomized Controlled Pilot Study

Cited by 6 publications

References 26 publications

Beyond the Screen: Exploring Digital Health Experiences of Individuals Affected by Psoriasis – A Qualitative Interview Study

Beyond the Screen: Exploring Digital Health Experiences of Individuals Affected by Psoriasis – A Qualitative Interview Study

Evaluating the Global Digital Impact of Psoriasis Action Month and World Psoriasis Day: Serial Cross-Sectional Study

The prevalence of skin diseases in Greece, impact on quality of life and stigmatization: A population‐based survey study

Contact Info

Product

Resources

About