The Positives of Caregiving: Mothers’ Experiences Caregiving for a Child with Autism

Corman, Michael

doi:10.1606/1044-3894.3923

Cited by 26 publications

(17 citation statements)

References 33 publications

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“…These findings could indicate that the psychological well-being of parents may not only be directly attributed to stress-causing behaviors but also to parents’ definitions of the behaviors perceived to be difficult. Thus, having positive perceptions about the child may preserve the psychological well-being of parents, despite the diagnosis of autism, 87 – 89 such as the joy and love parents expressed for their child in the synthesized results. It might therefore be of benefit in health care practices to help parents redefine their perceptions of the child to a positive one, in order to cope with the child – an approach known as positive coping.…”

Section: Discussionmentioning

confidence: 99%

A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

101

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BackgroundThe lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services.MethodsA systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included.ResultsA total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation.ConclusionHealth care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism.

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Section: Discussionmentioning

confidence: 99%

A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

101

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“…The other benefits of caring for children with ASD include positive personality changes in family members such as becoming more patient, less judgmental, and gaining resiliency using problem-focused coping strategies [ 7 , 8 ]. Despite the joy of parenting [ 9 ], providing daily care for adult children with ASD can be overwhelming and constant, contributing to caregiver burden [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden

2021

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Background Despite the joy of parenting, the burden of daily caregiving for children with autism spectrum disorders (ASD) can be overwhelming and constant. Parents can expect to provide enduring care for their children with ASD. Given that the majority of individuals with autism spectrum disorders (ASD) remain in their family homes well into adulthood, often the need for assistance with activities of daily living (ADLs) is placed on parents. Providing ongoing support to adult children who have difficulty with completing ADLs can increase parental caregiving demands. Therefore, the purpose of this study was to examine the relationship between the ability of adults with ASD to perform ADLs with parental perceptions of caregiver burden. Methods Quantitative analysis of cross-sectional multi-state data gathered electronically using Qualtrics from 320 aging parents of adults with ASD was conducted. Regression models were fit to examine the association of ADL challenges with total caregiver burden and its four domains (emotional, financial, time dependence, and developmental). Results Parental perceptions of caregiver burden decreased, particularly time dependence and developmental burden, when adult children were less dependent in ADLs, even after adjusting for parental health and behavioral challenges. Conclusions Findings support the need for family-centered interventions to improve the capacity of adults with ASD to perform ADLs independently.

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“…Although parents acknowledge the strengths and family contributions of their children with EBP (Corman, 2009; Yatchmenoff, Koren, Friesen, Gordon, & Kinney, 1998), they also report high levels of caregiving burden and strain (Angold et al, 1998; Brannan & Heflinger, 2006; Brannan, Heflinger, & Foster, 2003). However, the relationship between caregivers’ conceptualization of children’s EBP and their own emotional response and experience of caregiving strain remains unclear.…”

Section: Literature Reviewmentioning

confidence: 99%

How Caregivers Make Meaning of Child Mental Health Problems: Toward Understanding Caregiver Strain and Help Seeking

Mayberry¹,

Heflinger

2013

Families in Society

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Family caregivers’ conceptualizations of their child’s emotional and behavioral problems (EBP) influence help-seeking for the child and caregiver strain. We analyzed 21 interviews with caregivers to explore their conceptualizations about the cause of their child’s EBP, their experiences of strain, and their reported help-seeking behaviors. Caregivers had divergent conceptualizations of their child’s EBP: 12 caregivers viewed the EBP as caused by a disorder and described the onset of symptoms as the central stressful event, whereas 9 caregivers described their child’s problems as a response to an earlier stressor (e.g. trauma, abuse, divorce). Different patterns of caregiver strain and help-seeking were associated with caregiver conceptualization. All caregivers voiced a need for peer-to-peer support for caregivers and youth with EBP.

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The Positives of Caregiving: Mothers’ Experiences Caregiving for a Child with Autism

Cited by 26 publications

References 33 publications

A meta-synthesis on parenting a child with autism

A meta-synthesis on parenting a child with autism

Empirical evaluation of the association between daily living skills of adults with autism and parental caregiver burden

How Caregivers Make Meaning of Child Mental Health Problems: Toward Understanding Caregiver Strain and Help Seeking

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