The Perception of the Quality of Life in Turkish Children Who Have Undergone Surgical Correction of a Congenital Gastrointestinal and Abdominal Anomaly

Çavuşoğlu, Yusuf Hakan; Üneri, Özden Şükran; Yağız, Beytullah; Karaman, Ayşe; Erdoğan, Derya; Karaman, Íbrahím; Özgüner, İsmet Faruk

doi:10.5336/medsci.2011-26391

Cited by 4 publications

(4 citation statements)

References 23 publications

(35 reference statements)

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“…Findings in several studies have shown no differences in HRQoL between male and female patients, which also corresponds to our findings[ 26 , 46 - 48 ]. Furthermore, there is evidence suggesting that HRQoL varies with increasing age and is influenced by factors like coping strategies[ 23 , 48 , 49 ] and psychological changes accompanying life events, including puberty[ 11 , 16 , 25 , 26 , 49 - 54 ].…”

Section: Discussionsupporting

confidence: 93%

“…Findings in previous studies have shown that parents tend to overestimate problems and impairments in patients with chronic diseases[ 41 , 55 - 58 ]. This in turn may be influenced by their cultural, social and educational background[ 39 , 46 , 53 , 59 ] . Also anxiety in parents of patients with HD may play an important role as well[ 54 , 60 ].…”

Section: Discussionmentioning

confidence: 99%

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Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis

Huizer¹,

Wijekoon²,

Roorda³

et al. 2022

WJG

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BACKGROUND Patients with Hirschsprung disease (HD) are at risk of persistent constipation, fecal incontinence or recurrent enterocolitis after surgical treatment, which in turn may impact physical and psychosocial functioning. Generic health-related quality of life (HRQoL) and disease-specific health-related quality of life are relevant outcome measures to assess the impact of HD on the QoL of these patients. AIM To summarize all available evidence on HRQoL of patients with HD after surgery and the impact of possible moderating factors. METHODS Pubmed, Web of Sciences, PsycInfo and Embase were searched with search terms related to ‘Hirschsprung disease’, ‘Pediatrics’ and ‘Quality of life’. Mean and standard deviation of generic HRQoL overall and domain scores were extracted from each study, as well as data describing potential factors associated with QoL. Random effect models were used for meta-analytic aggregation of generic HRQoL scores. Meta-regression was used to assess the relationship between patient and clinical characteristics and generic HRQoL. Disease-specific HRQoL outcomes of patients with HD were systematically reviewed. RESULTS Seventeen articles were included in the systematic review ( n = 1137 patients) and 15 in the quantitative meta-analysis ( n = 1024 patients). Four studies reported disease-specific HRQoL. Patient’s age ranged between 0 and 21 years. Meta-analytic aggregation showed a non-significantly impaired generic HRQoL ( d = -0.168 [95%CI: -0.481; 0.145], P = 0.293, I 2 = 94.9) in patients with HD compared to healthy controls. Physical ( d = -0.042 [95%CI: -0.419; 0.335], P = 0.829, I 2 = 95.1), psychosocial ( d = -0.159 [95%CI: -0.458; 0.141], P = 0.299, I 2 = 93.6) and social HRQoL ( d = -0.092 [95%CI: -0.642; 0.457], P = 0.742, I² = 92.3) were also not significantly lower compared to healthy controls. There was no relation between health-related outcomes and the sex of the patients and whether generic HRQoL was measured by parental proxy or self-report. Disease-specific complaints of patients with HD impaired physical HRQoL, but not psychosocial and social HRQoL. CONCLUSION In this systematic review and meta-analysis, no evidence was found for impaired generic HRQoL in patients with HD compared to healthy controls, neither for moderating effects of sex, parental proxy or self-report.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionmentioning

confidence: 99%

Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis

Huizer¹,

Wijekoon²,

Roorda³

et al. 2022

WJG

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“…Çocuklarda akranları ile arasında HK'leri açısından fark olmadığını gösteren yayının yanında, erişkin yaş grubunda düşük HK skorları da rapor edilmiştir. 7,8 Dışkı kontinansının sağlanması için normal anal his, sağlam sfinkter mekanizması ve uygun kolonik motilite gereklidir. 5 Posterior sagittal anorektoplasti ameliyatının yapılmaya başlanmasıyla ARM'li hastalarda gözlenen ameliyat sonrası ana sorun, kolon motilite bozukluğuna bağlı kronik kabızlık ve taşma inkontinansıdır.…”

Section: Discussionunclassified

Incontinence Results of Patients with Anorectal Malformation and Their Response to Treatment

Çavuşoğlu¹,

Karaman²,

Afşarlar³

et al. 2013

Turkiye Klinikleri J Med Sci

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“…Eight studies were excluded because they did not contain long-term outcomes [11][12][13][14][15][16][17][18]. Twelve studies did not differentiate duodenal obstruction cases from other pathology [19][20][21][22][23][24][25][26][27][28][29]. Two studies for which the complete manuscripts were unavailable were excluded because the abstracts did not contain enough detail [30,31].…”

Section: Included and Excluded Studiesmentioning

confidence: 99%

Post-discharge follow-up of congenital duodenal obstruction patients: a systematic review

Lum Min,

Imam,

Zrinyi

et al. 2023

Pediatr Surg Int

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Long-term follow-up of congenital duodenal obstruction patients often falls on care providers with little experience of this condition. We performed a systematic review of the long-term outcomes of duodenal obstruction and provide a summary of sequelae care providers should anticipate. METHODSIn 2022, after registering with PROSPERA, Medline (Ovid), EMBASE, PSYCHINFO, CNAHL and SCOPUS databases were searched using the title keyword 'intestinal atresia'. Abstracts were ltered for inclusion if they included the duodenum. Papers of ltered abstracts were included if they reported post-discharge outcomes. Methodological Index for Non-Randomized Studies was used to grade the papers. RESULTSOf the 1068 abstracts were screened, 32 papers were reviewed. Eleven studies were included. Thirty additional papers were included after reviewing references, for a total of 41 papers. The average MINORS was 7/16. CONCLUSIONSThere is good evidence that children with congenital duodenal obstruction do well in terms of survival, growth and general well-being. Associated cardiac, musculoskeletal and renal anomalies should be ruled-out. Care providers should be aware of anastomotic dysfunction, blind loop syndrome, bowel obstruction and re ux. Re ux may be asymptomatic. Laparoscopic repair does not change long-term outcomes, and associated Trisomy 21 worsens neurodevelopmental outcomes. Identi cation of studiesWe performed a literature search of the databases Medline (Ovid), EMBASE, PSYCHINFO, CINAHL and SCOPUS using the keywords 'intestinal atresia', 'apple peel', 'jejunal atresia' and 'intestinal atresia'. Including 'ileal', 'duodenal' and 'colonic' did not change the results. We initially included studies for any site of intestinal atresia then divided the papers by the site of intestinal atresia: duodenal, jejuno-ileal and colonic. This review includes our summary of the duodenal literature. Jejuno-ileal and colonic reviews will be addressed in separate manuscripts. The original search was performed in June 2020 and a second search was performed in June 2022. No limitations were placed on publication date or language. Abstracts were uploaded to Rayyan, an online systematic review website [4].Within Rayyan, abstracts were independently ltered for possible inclusion by two authors (MI, SLM). The same two authors then agreed on which complete studies to review based on the ltered abstracts. Complete papers were independently assessed for possible inclusion by two authors (MI, SLM). If a con ict arose regarding inclusion or exclusion, papers were assessed by a third reviewer (AS). References of included papers were manually searched to identify papers that met the inclusion criteria but were not identi ed through the electronic database searches.

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The Perception of the Quality of Life in Turkish Children Who Have Undergone Surgical Correction of a Congenital Gastrointestinal and Abdominal Anomaly

Cited by 4 publications

References 23 publications

Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis

Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis

Incontinence Results of Patients with Anorectal Malformation and Their Response to Treatment

Post-discharge follow-up of congenital duodenal obstruction patients: a systematic review

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