The Pediatric Quality of Life Inventory™ (PedsQL™) family impact module: reliability and validity of the Brazilian version

Scarpelli, Ana Carolina; Paiva, Saul Martins; Pordeus, Isabela Almeida; Varni, James W.; Viegas, Cláudia Marina; Allison, Paul

doi:10.1186/1477-7525-6-35

Cited by 74 publications

(84 citation statements)

References 33 publications

(38 reference statements)

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“…Renal transplantation represents the preferred form of renal replacement therapy for children from a medical perspective, as children with a renal transplant demonstrate better survival than those receiving dialysis [1]. While peritoneal dialysis may be preferable to in-center hemodialysis for children, the burden and risk of parental stress and burnout associated with providing a nightly home-based therapy should be considered by programs providing pediatric dialysis care [14][15][16][17].…”

Section: Discussionmentioning

confidence: 99%

Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis

et al. 2009

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We previously validated the 34-item PedsQL 3.0 End Stage Renal Disease (ESRD) Module designed to measure pediatric ESRD-specific health-related quality of life (HRQOL) in children and adolescents receiving maintenance dialysis or with a renal transplant. The study reported here was undertaken to assess for potential HRQOL differences between ESRD modality in children with ESRD and their parents using the PedsQL 3.0 ESRD Module. Parents of patients with a renal transplant reported a significantly higher HRQOL for their children than parents of pediatric patients receiving dialysis on all ESRD Module Scales except the Perceived Physical Appearance Scale, with the majority of the effect sizes in the medium range. Pediatric renal transplant patients self-reported comparable HRQOL to pediatric patients receiving dialysis across the ESRD Module Scales, with the exception of the Family and Peer Interaction Scale, in which pediatric renal transplant patients self-reported significantly higher HRQOL than pediatric patients receiving dialysis. Our cross-sectional data suggest that parents of children with ESRD observe a positive impact from renal transplantation on the majority of HRQOL domains compared to dialysis, whereas children self-report generally non-significant small effect size differences in favor of renal transplantation. These findings suggest that the PedsQL ESRD 3.0 Module may be used to identify ESRD- and modality-specific challenges that impact pediatric patient HRQOL.

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Section: Discussionmentioning

confidence: 99%

Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis

et al. 2009

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“…24,25 The form of the application of the instrument (self-application) was the same as that used in the original questionnaire. 10 This form of application was also used in other studies, and did not affect the psychometric evaluation of the instrument.…”

Section: Discussionmentioning

confidence: 99%

Child abuse: validation of a questionnaire translated into Brazilian Portuguese

et al. 2013

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This study sought to validate the Portuguese translation of a questionnaire on maltreatment of children and adolescents, developed by Russell et al. and to test its psychometric properties for use in Brazil. The original questionnaire was translated into Portuguese using a standardized forward-backward linguistic translation method. Both face and content validity were tested in a small pilot study (n = 8). In the main study, a convenience sample of 80 graduate dentistry students with different specialties, from Curitiba, PR, Brazil, were invited to complete the final Brazilian version of the questionnaire. Discriminant validity was assessed by comparing the results obtained from the questionnaire for different specialties (pediatric dentistry, for example). The respondents completed the questionnaire again after 4 weeks to evaluate test-retest reliability. The comparison of test versus retest questionnaire answers showed good agreement (kappa > 0.53, intraclass correlation > 0.84) for most questions. In regard to discriminant validity, a statistically significant difference was observed only in the experience and interest domains, in which pediatric dentists showed more experience with and interest in child abuse compared with dentists of other specialties (Mann-Whitney test, p < 0.05). The Brazilian version of the questionnaire was valid and reliable for assessing knowledge regarding child abuse by Portuguesespeaking dentists.

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“…18,19,28,29 Moreover, the PedsQL FIM is available in multiple languages, including Dutch. 27 The PedsQL FIM showed good psychometric properties in parents of children with complex chronic health problems 30 and was used in studies on children with Duchenne muscular dystrophy, 31 a diversity of disabilities 32 and chronic pain. 33 So far, the PedsQL FIM has not been used in studies on the family impact of ABI.…”

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confidence: 99%