The Pediatric Quality of Life Inventory: An Evaluation of Its Reliability and Validity for Children With Traumatic Brain Injury

McCarthy, Melissa L.; MacKenzie, Ellen J.; Durbin, Dennis R.; Aitken, Mary E.; Jaffe, Kenneth M.; Paidas, Charles N.; Slomine, Beth S.; Dorsch, Andrea; Berk, Ronald A.; Christensen, James R.; Ding, Ru

doi:10.1016/j.apmr.2005.03.026

Cited by 150 publications

(114 citation statements)

References 34 publications

Supporting

Mentioning

104

Contrasting

Order By: Relevance

“…Pediatric Quality of Life scale (Peds QL) was used as a measure of the health-related quality of life; healthy children have a mean of total score of 88 (SD 12) (Varni et al 2001). This has been shown to be a reliable and valid measure of health-related quality of life in children after TBI and musculoskeletal trauma (McCarthy et al 2005;McCarthy et al 2006). Standardized scores were calculated and used in the analysis.…”

Section: Methodsmentioning

confidence: 99%

Comparison of Telephone with World Wide Web-Based Responses by Parents and Teens to a Follow-Up Survey after Injury

Rivara

Wang

Durbin

et al. 2011

Health Services Research

Self Cite

View full text Add to dashboard Cite

Objective. To identify sociodemographic factors associated with completing a followup survey about health status on the web versus by telephone, and to examine differences in reported health-related quality of life by method of response. Data Sources/Study Settings. Survey about child health status of 896 parents of children aged 0-17 years treated in a hospital emergency department or admitted for a traumatic brain injury or arm injury, and 227 injured adolescents aged 14-17 years. Study Design. The main outcomes were characteristics of those who completed a follow-up survey on the web versus by telephone and health-related quality of life by method of response. Principal Findings. Email addresses were provided by 76.9 percent of parents and 56.5 percent of adolescents at baseline. The survey was completed on the web by 64.9 percent of parents and 40.2 percent of adolescents through email. Parents with email access who were Blacks, Hispanics, had lower incomes, and those who were not working were less likely to choose the web mode for completing the survey. Unlike adolescents, the amount of time for parents to complete the survey online was significantly shorter than completion by telephone. Differences by survey mode were small but statistically significant in some of the six functional outcome measures examined. Conclusions. Survey mode was associated with several sociodemographic characteristics. Sole use of web surveys could provide biased data.

show abstract

Section: Methodsmentioning

confidence: 99%

Comparison of Telephone with World Wide Web-Based Responses by Parents and Teens to a Follow-Up Survey after Injury

Rivara

Wang

Durbin

et al. 2011

Health Services Research

Self Cite

View full text Add to dashboard Cite

show abstract

“…Responses were obtained via a semistructured interview guide based on 5 open-ended questions (Appendix). The interview guide was based on the work of Varni et al 2 and McCarthy et al, 23 who studied the effect of acute and chronic conditions, including TBIs, on child and teen quality of life. The interview questions were reviewed for word structure and level of language by an independent researcher with experience in qualitative research using structured and semistructured interviews in rehabilitation counseling.…”

Section: Data Collectionmentioning

confidence: 99%

Qualitative Examination of Adolescent Health-Related Quality of Life at 1 Year Postconcussion

Iadevaia

Roiger

Zwart

2015

Journal of Athletic Training

View full text Add to dashboard Cite

Context: Moderate to severe traumatic brain injuries can negatively influence health-related quality of life (HRQOL) in adolescent patients. The effect of sport-related concussion on adolescent HRQOL remains unclear.Objective: To investigate the perceptions of adolescent student-athletes and their parents regarding the adolescents' HRQOL 1 year after sport-related concussion.Design: Qualitative study. Setting: Secondary school.Patients or Other Participants: Seven adolescent studentathletes (age range, 12-16 years) who sustained a sport-related concussion at least 1 year (15.3 6 2.8 months) before the study participated along with their primary care-giving parents (n ¼ 7).Data Collection and Analysis: Fourteen semistructured face-to-face interviews (7 adolescents, 7 parents) were completed. Interviews were transcribed and inductively analyzed by a team of 3 athletic trainers with 32 combined years of professional experience. Themes were negotiated through a consensual review process. Participant checks were completed to ensure trustworthiness of the results.Results: Four major themes emerged from the interviews: (1) significant effect of symptoms, (2) feelings of frustration, (3) influence on school attendance and activities, and (4) nature of interpersonal and team relationships. Participants indicated that the physical symptoms of the concussion substantially affected their emotional and academic function. The influence of the concussion on social interactions seemed to depend on the nature of interpersonal relationships.Conclusions: Sport-related concussion can negatively influence physical and emotional function, academics, and interpersonal interactions as perceived by adolescent studentathletes and their parents. Education of parents and their children, school professionals, coaches, and teammates remains critical to effectively recognize and manage sport-related concussion. Secondary school districts also play a critical role in the concussion-management process by establishing and implementing accommodation policies that alleviate student concerns about falling behind while ensuring a healthy return to normal school routines. Furthermore, adolescent support systems must be considered throughout the recovery process.

show abstract

“…More sensitive, domain-specific instruments that have been validated for use in pediatric acquired brain injuries include measures of gross motor function, 21 functional independence, 22,23 health-related quality of life 24 and neuropsychological function. 25 Recent consensus statements 26 have suggested standardized "core data elements" that should be captured by all rehabilitation re searchers to allow the comparison and aggregation of rehabilitation outcomes.…”

Section: What Factors Determine Outcome After Acquired Brain Injury?mentioning

confidence: 99%

Predicting outcome after childhood brain injury: Figure 1:

Forsyth¹,

Kirkham²

2012

CMAJ

View full text Add to dashboard Cite

The Pediatric Quality of Life Inventory: An Evaluation of Its Reliability and Validity for Children With Traumatic Brain Injury

Cited by 150 publications

References 34 publications

Comparison of Telephone with World Wide Web-Based Responses by Parents and Teens to a Follow-Up Survey after Injury

Comparison of Telephone with World Wide Web-Based Responses by Parents and Teens to a Follow-Up Survey after Injury

Qualitative Examination of Adolescent Health-Related Quality of Life at 1 Year Postconcussion

Predicting outcome after childhood brain injury: Figure 1:

Contact Info

Product

Resources

About