The patient's view of recovery: An emerging tool for empowerment through self-knowledge

Stineman, Margaret G.; Kurz, Ashley E.; Kelleher, Deirdre C.; Kennedy, Bonnie L.

doi:10.1080/09638280701456112

Cited by 11 publications

(11 citation statements)

References 30 publications

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“…While clinicians consistently sought early imagined recovery of comprehension and expression, “a cerebral recovery choice pathway,” patients tended to prefer early imagined recovery in eating, bathing, and toileting functions, “a physical recovery choice pathway.” These preference differences are supported by earlier studies [27, 28], further supporting the expectation that the two groups have different outlooks about priorities in functional recovery.…”

Section: Discussionsupporting

confidence: 81%

“…Differences in subjective appraisals [13, 19, 28, 32, 33] highlight the ideographic and nonontological nature of meaning, where the QoL implications of activity limitation are driven in part through each person’s internal explanations of external life contexts as they understand them [31]. Various individuals and groups of people logically judge the relative importance of recovering through different objective frames of reference, subjective standards of comparison, and personal reference points [21].…”

Section: Discussionmentioning

confidence: 99%

“…RPE requires fairly intact cognitive skills. Recognizing this, we are developing a less cognitively demanding companion procedure [28]. Also, our study was performed among clinicians and patients living in a particular region of the USA.…”

Section: Discussionmentioning

confidence: 99%

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Disability meanings according to patients and clinicians: imagined recovery choice pathways

et al. 2009

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Objective The purpose of this study was to explore how the meaning of disability varies between patients with acute-onset activity limitations and clinicians, and between males and females. Methods Seventy-nine patients undergoing inpatient rehabilitation and 93 practicing rehabilitation clinicians in the USA developed personal recovery choice pathways through recovery preference exploration (RPE). Imagining complete dependence in 18 activities as diverse as eating and expression, each individual determined an optimal sequence of recovery. This sequence was used to determine the relative value of each activity compared with the other 17. Three comparisons were made by calculating the mean absolute difference (MAD) in median utilities, including patients versus clinicians, male versus female patients, and male versus female clinicians. The MAD shows the relative magnitude of disparity between each pair. Results The MAD value between patients and clinicians was 3.4 times larger and 4.8 times larger than the MAD values between male and female patients and male and female clinicians, respectively. Conclusions The much larger difference in recovery preferences between patients and clinicians compared with differences between genders suggests that life contexts of being a patient with disabilities versus a clinician are more potent determinants of activity limitation perspectives than being a man or woman.

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Section: Discussionsupporting

confidence: 81%

Section: Discussionmentioning

confidence: 99%

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Disability meanings according to patients and clinicians: imagined recovery choice pathways

et al. 2009

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“…This study was one of the few where the meaning of a daily occupation was targeted in a clinical context, and the findings indicated that cooking was more highly evaluated than the two other activities. Another study, focusing on recovery among patients in physical rehabilitation, reported that eating, bathing, and going to the toilet were their most valued activities (10).…”

Section: Introductionmentioning

confidence: 99%

The value and meaning of an instrumental occupation performed in a clinical setting

Bigelius

Eklund

Erlandsson

2010

Scandinavian Journal of Occupational Therapy

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The aim was to investigate how patients in a clinical setting, combining acute stroke care and rehabilitation, perceived the value and meaning attached to a commonly used instrumental occupation, namely "Brewing coffee and making an open-face cheese sandwich with sliced vegetable". Another aim was to validate the ValMO model, proposing that value and meaning are related phenomena. Upon performing the occupation, 38 participants answered questionnaires concerning perceived meaning and occupational value. The results showed that the occupation was highly valued by the participants and that it was perceived as meaningful. No age or gender differences were found. The findings confirmed the proposed link between value and meaning. In conclusion, a commonly used and supposedly meaningful occupation was indeed found to be valued and meaningful by the patients and the findings validated the targeted aspects of the ValMO model. This study was unique in its focus on value and meaning in a clinical context. Futures studies should clarify if the link between meaningful occupation and well-being, which has been shown in many studies of everyday situations and is another of the assumptions in the ValMO model, can be proved in clinical contexts as well.

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“…Functional independence measure (FIM) items arranged into domains by meaning are not necessarily grouped in the same ways as FIM items arranged into domains by ontology. 6 When creating domains of meaning, people use various strategies that differ dramatically. Some link activities performed in sequence, such as toilet transfers with toileting (from the activities of daily living (ADL) and mobility domains, respectively).…”

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confidence: 99%

Reply to JJ van Middendorp, AJF Hosman and H van de Meent's letter

et al. 2008

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The patient's view of recovery: An emerging tool for empowerment through self-knowledge

Abstract: RPE uncovers the life contexts that underlie patients' subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.

Cited by 11 publications

References 30 publications

Disability meanings according to patients and clinicians: imagined recovery choice pathways

Disability meanings according to patients and clinicians: imagined recovery choice pathways

The value and meaning of an instrumental occupation performed in a clinical setting

Reply to JJ van Middendorp, AJF Hosman and H van de Meent's letter

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