The Patient Factor: Involving Patient and Family Stakeholders as Advisors, Co-Designers, Citizen Scientists, and Peers

Holden, Organizers Co-Chairs: Richard J.; Valdez, Rupa S.; Anders, Panelists : Shilo; Ewart, Colleen; Lang, Alexandra; Montague, Enid; Zachary, Wayne

doi:10.1177/1071181320641141

Cited by 2 publications

(1 citation statement)

References 29 publications

(29 reference statements)

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“…9 Similarly, the calls to better understand if and how these movements, and the involvement of consumers more generally, have led to a safer and higher quality health system remains a perennial subject. 10,11,12 In a 2018 narrative review in BMJ Quality & Safety, 11 leaders in patient safety from the US and the UK wrote, "overwhelming evidence indicates that collecting patient feedback and including patients as equal partners in their care supports improvement in both patient experience of care and clinical outcomes." 13 A systematic review of 55 studies published in the BMJ in 2013 found "consistent positive associations between patient experience, patient safety and clinical effectiveness for a wide range of disease areas, settings, outcome measures and study designs … patient experience is positively associated with clinical effectiveness and patient safety, and support the case for the inclusion of patient experience as one of the central pillars of quality in healthcare."…”

Section: A Strong Consumer and Whānau Voice Are Critical In A Twenty-...mentioning

confidence: 99%

Patient experience surveys are vital in the twenty-first century: let’s put some myths to rest

Catherine Gerard,

O’Brien,

Shuker

et al. 2024

NZMJ

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Patient-reported data derived from surveys places patient feedback at the heart of quality improvement and health system responsiveness. Such surveys are not without critics, however, who contend that there are better ways to collect feedback. Criticisms assert that response rates are too low and measures are not robust, valid or reliable, that patient experience surveys are neither valid nor reliable for Māori and Pacific peoples and that such surveys do not contribute to improved outcomes for patients. We debunk these myths in the context of the Te Tāhū Hauora Health Quality & Safety Commission (Te Tāhū Hauora) patient experience survey programme. We explain the centrality of a strong consumer and whānau voice in a twenty-first century health system, and that listening to and acting on this voice—including use of patient-reported data—is now a statutory requirement for health entities under the Pae Ora (Healthy Futures) Act 2022. We describe the different surveys in the programme and explain the differences between patient satisfaction and patient experience. We address sample size and response rates, including representativeness in the surveys of Māori and Pacific peoples’ experience. We look at how survey data can be used for quality improvement and to guide us toward providing equitable, culturally safe care. We assert that, contrary to criticisms, the programme delivers valid, reliable, relevant, systematic and practical patient experience surveys and resulting data, with guides for improvement, and that we are both legally and ethically bound to listen to and use these results to improve the healthcare we deliver.

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Section: A Strong Consumer and Whānau Voice Are Critical In A Twenty-...mentioning

confidence: 99%

Patient experience surveys are vital in the twenty-first century: let’s put some myths to rest

Catherine Gerard,

O’Brien,

Shuker

et al. 2024

NZMJ

View full text Add to dashboard Cite

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Advancing approaches for patient ergonomics: understanding and leveraging the patient work network

Werner

Coller

Hughes

et al. 2022

Proceedings of the Human Factors and Ergonomics Society Annual

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For people living with chronic medical conditions, the activities of patient work are often performed by multiple actors. These actors may be formal supports (i.e., paid, professional) such as clinicians in formal clinical settings, in-home nursing and therapies, school nurses, and respite care; or informal supports (i.e., unpaid nonprofessional) such as family and friends. Although often critical to the performance of patient work, the patient work network poses many methodological challenges. The five panelists will provide prepared remarks regarding a methodological approach to studying care networks and provide a discussion of the challenges and opportunities related to using the approach. These presentations will be followed by a discussion with the panel and the audience, moderated by the chair. This discussion will be focused on eliciting further discussion on opportunities, strategies for addressing potential challenges, and additional potential approaches to studying care networks including data collection tools and analytical methods.

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The Patient Factor: Involving Patient and Family Stakeholders as Advisors, Co-Designers, Citizen Scientists, and Peers

Cited by 2 publications

References 29 publications

Patient experience surveys are vital in the twenty-first century: let’s put some myths to rest

Patient experience surveys are vital in the twenty-first century: let’s put some myths to rest

Advancing approaches for patient ergonomics: understanding and leveraging the patient work network

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