The Pathways fertility preservation decision aid website for women with cancer: development and field testing

Woodard, Terri L.; Hoffman, Aubri; Covarrubias, Laura; Holman, Deborah; Schover, Leslie R.; Bradford, Andrea; Hoffman, Derek B; Mathur, Aakrati; Thomas, Jerah; Volk, Robert J.

doi:10.1007/s11764-017-0649-5

Cited by 43 publications

(59 citation statements)

References 32 publications

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“…The studies were published between 2009 and 2018 and originated from six countries. One study utilised mixed‐methods design (questionnaires and interviews) while all others were quantitative, utilising online or paper‐based questionnaires . Study type was categorised according to an efficacy and effectiveness rating tool .…”

Section: Resultsmentioning

confidence: 99%

“…Study type was categorised according to an efficacy and effectiveness rating tool . One study was developmental, five contained both stages of development and efficacy, five were efficacy or effectiveness studies, and one was an implementation study …”

Section: Resultsmentioning

confidence: 99%

“…Ten studies recruited cancer patients, one study recruited survivors, and one recruited parents of cancer patients . A variety of health care professionals involved in the care of cancer patients (including oncologists, gynaecologists, and nurses) were recruited by four studies largely to evaluate acceptability and usability of the PtDAs . One study recruited healthy women within the community, and specifically healthy women with lower education, who were asked to make a hypothetical decision about fertility preservation if they were diagnosed with cancer.…”

Section: Resultsmentioning

confidence: 99%

“…The format of PtDAs differed between online (n = 5) and paper‐based booklets (n = 2) . One PtDA was integrated within a computerised educational tool .…”

Section: Resultsmentioning

confidence: 99%

“…Five of the tools were in English, and there was one each in Portuguese, Dutch, German, and Japanese . The PtDAs typically consisted of informative sections and interactive sections with values clarification exercises, quizzes to assess patient knowledge, and space for notes or questions . Video testimonials from female cancer survivors who had made decisions about fertility preservation in the past were also included …”

Section: Resultsmentioning

confidence: 99%

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Systematic review of fertility preservation patient decision aids for cancer patients

2018

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Objective Despite recommendations internationally for the timely provision of fertility information, cancer patients report unmet information needs, with poor provision and inadequate written information to assist in fertility preservation decision‐making. Patient decision aids (PtDAs) may be a useful resource in this setting to inform patients and guide decision‐making. A systematic review of the literature on decision aids for fertility preservation in cancer patients would determine the effectiveness of these tools in supporting decision‐making about fertility preservation and indicate their current use in clinical care. Methods A systematic review was conducted in March 2018, within electronic search databases Medline, EMBASE, PSYCH Info, PubMed, and Web of Science. An initial search identified 718 potentially relevant articles from databases and screening of relevant reference lists. Results A total of 12 papers, detailing 11 studies with a total of 772 participants, evaluating nine decision aids, were included within the review. PtDAs were shown to significantly increase fertility preservation knowledge and decrease decisional conflict. Overall satisfaction with decision aids was high. Currently, only two reviewed decision aids are available for cancer patients. Another tool has been integrated into a web page, and one implementation study has been completed. Conclusions PtDAs can serve as effective complements to current fertility counselling practices by increasing information satisfaction and decision‐making outcomes. More research is needed into the appropriateness of these resources for patients across the reproductive age range. Future implementation studies may assist in aiding dissemination of these tools into clinical practice.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…The format of PtDAs differed between online (n = 5) and paper‐based booklets (n = 2) . One PtDA was integrated within a computerised educational tool .…”

Section: Resultsmentioning

confidence: 99%