The Paradox of Hope: Journeys Through a Clinical Borderland

Anderson-Fye, Eileen

doi:10.1080/00141844.2012.672445

Cited by 8 publications

(14 citation statements)

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“…For example, a child may have felt unable to refuse to participate, or they may have felt pressure to participate in connection with their treatment options. Therapeutic encounters with patients experiencing pain due to acute conditions include both verbal and nonverbal forms of communication (Livingston, 2012;Matttingly, 2010Matttingly, , 2014. I opted to develop less intrusive conversations with children, which helped me focus on verbal and nonverbal linguistic cues that became essential to understanding their humoristic expressions.…”

Section: Methodsmentioning

confidence: 99%

‘I will grab a rifle and I will kill that bug!’: The role of children's humour in navigating painful treatments in a paediatric hospital in Argentina

Wainer

2022

Children & Society

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In the Argentinian healthcare system, medical residents play a key role in producing, sustaining, and witnessing intensely painful therapeutic interventions in children's bodies. I analyse the interactions between medical residents and children to focus on children's use of humour in a paediatric public hospital as a tool to navigate raw and invasive treatments. Humour was tactically used in two critical ways to deal with power differential: as a critique of power and as a collectivizing practice. When children are undergoing painful and invasive treatment, the importance of humour becomes prominent and its social effect and knowledge production more evident.

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Section: Methodsmentioning

confidence: 99%

‘I will grab a rifle and I will kill that bug!’: The role of children's humour in navigating painful treatments in a paediatric hospital in Argentina

Wainer

2022

Children & Society

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“…As described by Charmaz [18], the first-author took an inductive approach to grounded theory when coding for themes in line with a narrative-phenomenological theoretical framework [19] to focus data collection and analyses on significant experiences. Grounded in hermeneutic philosophy and narrative theory [19][20][21], narrative phenomenology foregrounds understanding the meaning of particular experiences of particular persons from their first-person perspective. As both narrative and phenomenological, this theoretical framework can be used to guide data collection around eliciting stories [22] to understand what is at stake or really matters for particular persons [23].…”

Section: Qualitative Approachmentioning

confidence: 99%

“…AA-K, MP and M-JB then drew more heavily on narrative phenomenology to identify the significant experiences and events related to the theoretical codes, for example the use of present tense or metaphors while talking about past events, heightened emotionality [22]. These moments can also include insights into the larger cultural, historical and social discourses within particular contexts that persons use to make sense of their experiences [19], for example, heightening attention to the relationship between the accumulation of losses, negative attitudes of others, and experiences of loneliness. The theoretical codes were then discussed by the authors who each drew from different epistemologies related to their different backgrounds in psychodynamic psychotherapy, anthropology, psychology and phenomenology to provide further rigour to the analysis.…”

Section: Plos Onementioning

confidence: 99%

“Alone, there is nobody”: A qualitative study of the lived experience of loneliness in older men living with HIV

et al. 2023

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Loneliness has been shown to be a predictor of poor health and early mortality in the general population. Older men living with human immunodeficiency virus (HIV) are at heightened risk of experiencing loneliness. Here, we aim to describe the lived experience of loneliness in older men living with HIV and identify targets for intervention. We used grounded theory with a theoretical framework of narrative phenomenology to focus data collection and analysis on significant experiences related to loneliness. Based on individual narrative interviews with 10 older men living with HIV, experiences of loneliness related to “multiple losses,” “being invisible” and “hiding out” as emergent themes. Participants also described living with loneliness by “finding meaning,” “creating social experiences,” “pursuing interests and things to ‘live for’” and attending events in which “everyone is welcome.” The discussion situates experiences of loneliness within the accumulation of losses and stigmas over time and how the participants strategies for living with loneliness could inform interventions to reduce loneliness in older men living with HIV at individual and societal levels.

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“…Within the sociology of health, hope has also been conceptualised as an individual psychosocial resource central to managing illness and chronic health conditions (Mattingly, 2010; Petersen et al., 2022; Schneiderman et al., 2021). This includes notions of ‘resilience’ in the face of uncertain futures.…”

Section: Introductionmentioning

confidence: 99%

‘I just wanted a change, a positive change’: Locating hope for young people engaged with residential alcohol and drug services in Victoria, Australia

Caluzzi

MacLean

Gray

et al. 2023

Sociology Health & Illness

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In this article, we investigate young people’s involvement with residential alcohol and other drug (AOD) services as part of their broader engagement with hope. This study draws on qualitative interviews conducted with 20 young people aged 17–23 from Victoria, Australia, who were either in, or had recently left, residential AOD services. Interviews explored their experiences with AOD services and included questions about their hopes for the future. We found hope located in social relationships, productive discourses and AOD settings themselves. Hope also presented differently according to the external resources young people had available to them, giving some young people greater capacity to action their hoped‐for futures than others. Given many young people seek reimagined futures as part of their use of residential AOD services, this creates a valuable opportunity for services to help shape achievable hopes and boost service engagement. We suggest that hope can materialise in a variety of ways but caution against relying on it as a motivational strategy without providing young people with other resources. A more sustainable narrative of hope may require a solid foundation of resources, allowing young people with AOD problems to gain a sense of control over their lives and their imagined futures.

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The Paradox of Hope: Journeys Through a Clinical Borderland

Cited by 8 publications

References 0 publications

‘I will grab a rifle and I will kill that bug!’: The role of children's humour in navigating painful treatments in a paediatric hospital in Argentina

‘I will grab a rifle and I will kill that bug!’: The role of children's humour in navigating painful treatments in a paediatric hospital in Argentina

“Alone, there is nobody”: A qualitative study of the lived experience of loneliness in older men living with HIV

‘I just wanted a change, a positive change’: Locating hope for young people engaged with residential alcohol and drug services in Victoria, Australia

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