The OrphanAnaesthesia Project

Becke, Karin; Aymé, Ségolène; Strau, Jochen; Veyckemans, Francis; Emmig, Uta

doi:10.1097/eja.0b013e32834a28ee

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Seltene Erkrankungen Orphananesthesia1

Clinical Signs and Symptoms Possibly Associated With A Muscl1

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2011

2023

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Article7

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Cited by 8 publications

(3 citation statements)

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“…Oftmals sind die Familien bereits "Experten" für das jeweilige Krankheitsbild. Eine verlässliche Quelle für anästhesierelevante Informationen zu seltenen Erkrankungen ist die Plattform "Orphananesthesia" ( [13], www. orphananesthesie.eu).…”

Section: Seltene Erkrankungen Orphananesthesiaunclassified

Präoperative Vorbereitung in der Kinderanästhesie

Becke‐Jakob

Eich

Röher

2020

Monatsschr Kinderheilkd

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Tab. 1 Risikofaktoren für perioperative Komplikationen. (Nach Becke [3]) Patientenbezogen Alter <1 Jahr, im Speziellen <1 Monat Ehemalige Frühgeborene Schwerwiegende Komorbiditäten Kinder mit hyperreagiblem Atemweg Kinder mit Herzerkrankungen und/oder pulmonaler Hypertension Eingriffsbezogen Atemwegsnahe Eingriffe (Hals-, Nasen-, Ohren-, Augen-, Zahn-, Mundund Kieferoperationen) Abdominal-, Thorax-oder Kardiochirurgie Notfalleingriffe Anlage eines zentralen Venenkatheters Anästhesie-/ Teambezogen Individuelle und institutionelle Kompetenz

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Section: Seltene Erkrankungen Orphananesthesiaunclassified

Präoperative Vorbereitung in der Kinderanästhesie

Becke‐Jakob

Eich

Röher

2020

Monatsschr Kinderheilkd

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“…Concerns of anesthesiologists caring for a patient with a rare disease may not be addressed by registries developed by other medical professionals or patient‐driven groups. The OrphanAnaesthesia project aims to address this issue through a portal that has been accessed daily by 20 000 people using six European languages . OrphanAnaesthesia provides short reports in a standardized format, peer‐reviewed by anesthesiologists (http://www.orphananesthesia.eu, 7 July, 2013).…”

Section: Clinical Signs and Symptoms Possibly Associated With A Musclmentioning

confidence: 99%

Neuromuscular diseases in children: a practical approach

Brandom

Veyckemans

2013

Pediatric Anesthesia

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“…It was launched at the ESPA meeting in Berlin in 2011. Two German anesthesiologists, Uta Emmig and Jochen Strauss, and Ségolène Aymé and Ana Rath, the heads of Orphanet in France, founded it with the Scientific Working Group of Pediatric Anesthesia of the German Society of Anesthesiology and Intensive Care Medicine . This peer‐review process requires time and expertise.…”

mentioning

confidence: 99%