The NICE guideline on recognition, referral, diagnosis and management of adults on the autism spectrum

Wilson, C. Ellie; Roberts, Ged; Gillan, Nicola; Ohlsen, Chris; Robertson, Dene; Zinkstok, Janneke

doi:10.1108/amhid-05-2013-0035

Cited by 21 publications

(6 citation statements)

References 20 publications

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“…Likewise, adaptations were made according to the needs of autistic adults, incorporating a concrete, highly structured approach and elements that facilitate generalization by enhancing skills application in real-life situations. These adaptations are in accordance with current NICE and German AWMF guidelines recommendations ( 6 , 18 , 19 ). However, further studies are needed to identify the specific elements that lead to the improvements in social functioning and determine the most effective degree of structure ( 13 ).…”

Section: Discussionsupporting

confidence: 55%

Psychosocial therapeutic approaches for high-functioning autistic adults

Schweizer,

Endres,

Dziobek

et al. 2024

Front. Psychiatry

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Autism spectrum disorder (ASD) is characterized by impaired social interaction and communication skills, repetitive behaviors, restricted interests, and specific sensory processing. Particularly, adults with high-functioning ASD often remain unrecognized, presumably due to their high compensatory skills, but at the cost of high stress, which is often linked to anxiety and depression. This may further explain the significantly high suicide rates and reduced life expectancy among individuals with ASD. Thus, providing support to high-functioning autistic adults in managing core symptoms, as well as co-occurring anxiety and depression, appears essential. To date, only a limited number of evidence-based psychosocial therapeutic options are available, and very few of them have undergone rigorous evaluation in a clinical context. To obtain a comprehensive understanding, a systematic literature search was conducted according to the PRISMA checklist, and only studies demonstrating robust methodological quality were included and discussed in this review article. Although promising initial key factors and methods have been identified, additional evidence-based studies are imperative to ascertain the optimal treatment and evaluate the long-term outcomes for adults with high-functioning ASD.

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Section: Discussionsupporting

confidence: 55%

Psychosocial therapeutic approaches for high-functioning autistic adults

Schweizer,

Endres,

Dziobek

et al. 2024

Front. Psychiatry

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“…In all, it is important to consider these broader social and health-related characteristics, as factors such as inadequate social skills or difficulties regarding independence may contribute to unstable careers, as indicated e.g., by high unemployment rates. Accordingly, the National Institute for Health and Clinical Excellence (NICE) guidelines in UK on ASD recognition, referral, diagnosis and management also highlight that particularly broad support measures are needed and that the care of people with ASD should not only focus on mental health [26,27]. As the assessment criteria of possible ASD include difficulty in obtaining and sustaining employment (or education), the guidelines further suggest supported employment programmes to thoroughly focus on all aspects of successful job integration, including help in the job application process, and matching the people with ASD with the job, adjusting working conditions to their needs, specific training in jobs, etc.…”

Section: Discussionmentioning

confidence: 99%

Unemployment Trajectories and the Early Risk of Disability Pension among Young People with and without Autism Spectrum Disorder: A Nationwide Study in Sweden

Lallukka

Mittendorfer‐Rutz

Ervasti

et al. 2020

IJERPH

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Depression and anxiety are associated with unemployment and disability pension, while autism spectrum disorder (ASD) is less studied. We aimed to first identify unemployment trajectories among young adults with and without ASD, and then to examine their social determinants. Finally, we used the trajectories as determinants for subsequent disability pension. We used a population-based cohort, including 814 people who were 19–35 years old, not on disability pension, and who had their ASD diagnosis between 2001 and 2009. A matched reference population included 22,013 people with no record of mental disorders. Unemployment follow-up was the inclusion year and four years after. Disability pension follow-up started after the unemployment follow-up and continued through 2013. We identified three distinctive trajectories of unemployment during the follow-up: (1) low, then sharply increasing (9%,) (2) low (reference, 67%), and (3) high then slowly decreasing (24%). People with ASD had higher odds of belonging belong to the trajectory groups 1 (OR 2.53, 95% CI 2.02–3.18) and 3 (OR 3.60, 95% CI 3.08–4.19). However, the mean number of unemployment days was relatively low in all groups. A disability pension was a rare event in the cohort, although memberships to groups 1 and 3 were associated with the risk of a future disability pension. More knowledge is needed about factors facilitating participation in paid employment among people with ASD.

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“…For example, the Awesomely Autistic Test (app 11) and Autism Test (app 12) have been designed for early detection of autism. They are used by doctors to assess different levels of the condition based on international guidelines for autism, such as the National Institute for Health and Care Excellence (NICE) [42] and the American Association for Child and Adolescent Psychiatry (AACAP) [43]. Additionally, medical apps shared similar functionalities to some communication apps as some of the medical-classified apps embedded speech therapy and were therefore approved as a medical device.…”

Section: Common Features Among the Apps Are Short Videos And Links To External Sources That Can Help Informal Carers Develop Their Knowlementioning

confidence: 99%

Features of Mobile Apps for People with Autism in a Post COVID-19 Scenario: Current Status and Recommendations for Apps Using AI

et al. 2021

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The new ‘normal’ defined during the COVID-19 pandemic has forced us to re-assess how people with special needs thrive in these unprecedented conditions, such as those with Autism Spectrum Disorder (ASD). These changing/challenging conditions have instigated us to revisit the usage of telehealth services to improve the quality of life for people with ASD. This study aims to identify mobile applications that suit the needs of such individuals. This work focuses on identifying features of a number of highly-rated mobile applications (apps) that are designed to assist people with ASD, specifically those features that use Artificial Intelligence (AI) technologies. In this study, 250 mobile apps have been retrieved using keywords such as autism, autism AI, and autistic. Among 250 apps, 46 were identified after filtering out irrelevant apps based on defined elimination criteria such as ASD common users, medical staff, and non-medically trained people interacting with people with ASD. In order to review common functionalities and features, 25 apps were downloaded and analysed based on eye tracking, facial expression analysis, use of 3D cartoons, haptic feedback, engaging interface, text-to-speech, use of Applied Behaviour Analysis therapy, Augmentative and Alternative Communication techniques, among others were also deconstructed. As a result, software developers and healthcare professionals can consider the identified features in designing future support tools for autistic people. This study hypothesises that by studying these current features, further recommendations of how existing applications for ASD people could be enhanced using AI for (1) progress tracking, (2) personalised content delivery, (3) automated reasoning, (4) image recognition, and (5) Natural Language Processing (NLP). This paper follows the PRISMA methodology, which involves a set of recommendations for reporting systematic reviews and meta-analyses.

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The NICE guideline on recognition, referral, diagnosis and management of adults on the autism spectrum

Cited by 21 publications

References 20 publications

Psychosocial therapeutic approaches for high-functioning autistic adults

Psychosocial therapeutic approaches for high-functioning autistic adults

Unemployment Trajectories and the Early Risk of Disability Pension among Young People with and without Autism Spectrum Disorder: A Nationwide Study in Sweden

Features of Mobile Apps for People with Autism in a Post COVID-19 Scenario: Current Status and Recommendations for Apps Using AI

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