The Neurogenic Bladder Symptom Score (NBSS): a secondary assessment of its validity, reliability among people with a spinal cord injury

Welk, Blayne; Lenherr, Sara; Elliott, Sean P.; Stoffel, John T.; Presson, Angela P.; Zhang, Chong; Myers, Jeremy B.

doi:10.1038/s41393-017-0028-0

Cited by 46 publications

(31 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The categorizing question was slightly modified to differentiate between voiding into a toilet, and voiding into diapers/pads. The QOL question is scored separately, and because it was unchanged, it's validation and measurement characteristics should not be different from previous studies 3,5 …”

Section: Methodsmentioning

confidence: 99%

“…It can be used for patients who void spontaneously, use indwelling catheters, clean intermittent catheterization (CIC), condom catheters, or those who have reconstructive bladder surgery or urinary diversions. It is responsive to change, 4 has been validated in multiple datasets, 5,6 used in several studies, 7,8 and licensed to more than 75 investigators in over 30 countries.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The creation and validation of a short form of the Neurogenic Bladder Symptom Score

Welk

Lenherr

Elliott

et al. 2020

Neurourology and Urodynamics

Self Cite

View full text Add to dashboard Cite

Aim: To develop a short form (SF) of the 24-item Neurogenic Bladder Symptom Score (NBSS). Methods:We used three previously published datasets. First, we selected the most responsive questions within each of the domains. Internal validity of the NBSS-SF was assessed using Cronbach's α. External validity was assessed by evaluating hypothesized relationships with other questionnaires and testing correlations with the full NBSS domains. Test-retest reliability of the NBSS-SF domains was determined using an intraclass coefficient (ICC).

show abstract

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The creation and validation of a short form of the Neurogenic Bladder Symptom Score

Welk

Lenherr

Elliott

et al. 2020

Neurourology and Urodynamics

Self Cite

View full text Add to dashboard Cite

show abstract

“…6 The Neurogenic Bladder Symptom Score (NBSS) has been validated for neurological patients to measure urinary symptoms, signs, quality of life and consequences/complications of NLUTD, thus, NBSS evaluates the effects of a broad range of bladder problems. 7,8 Therefore, the NBSS appears to be an optimum all-in-one measurement tool for all physicians, non-urologists and urologists, in the overall assessment of this specific patient population. Because strong concerted efforts are needed to improve NLUTD patient prognosis and quality of life, the aim of this study was to translate, culturally adapt and validate a Polish version of the NBSS to support all physicians in Poland who care for NLUTD patients or who perform NLUTD research.…”

Section: Introductionmentioning

confidence: 99%

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Przydacz

Dudek

Gołąbek

et al. 2020

Int. J. Clin. Pract.

View full text Add to dashboard Cite

Introduction There is no comprehensive and specific questionnaire translated, adapted and validated in the Polish language for evaluating symptoms, quality of life and complications associated with the neurogenic lower urinary tract dysfunction (NLUTD). The aim of this study was to translate, culturally adapt and validate a Polish version of the Neurogenic Bladder Symptom Score (NBSS) for patients who experience NLUTD. Material and Methods Standardised guidelines and well‐established methods were used for translation and cross‐cultural adaptation of the NBSS. Adult patients with multiple sclerosis and spinal cord injury completed the NBSS, the International Consultation on Incontinence Questionnaire‐Short Form (ICIQ‐SF), the International Prostate Symptom Score (IPSS) and the SF‐Qualiveen. Responses were recorded twice within a 14‐day period. Results Two hundred seventy‐four Polish‐speaking patients with NLUTD were included in the study. Content validity was optimal. Significant relationships between NBSS (Incontinence) and ICIQ‐SF, NBSS (Storage and Voiding) and IPSS, and NBSS (Quality of Life) and SF‐Qualiveen confirmed good construct/criterion validity. An intercorrelation study revealed that internal consistency was good for the total NBSS and specific domains (Cronbach's alpha >0.7). Test‐retest reliability (reproducibility) demonstrated strong stability (intra‐class correlation coefficients >0.7 for the total NBSS). No ceiling or floor effects were present. Conclusions The Polish NBSS demonstrated good measurement properties for a large cohort of patients with NLUTD. It is a suitable tool to assess NLUTD symptoms, consequences and quality of life. The Polish NBSS will support routine clinical practice of all types of physicians in Poland who care for patients with NLUTD.

show abstract

“…Traditionally, objective outcome measures such as number of infections, number of incontinence episodes, etc, were used to report or evaluate the success of a specific treatment. One of the ways to gain the patients’ perspective in the evaluation of treatment has been the creation of new outcomes measures, ie, patient‐reported outcome measures (PROMs) . These PROMs assess how the different domains of symptoms affect the QoL of patients, such as urinary incontinence, fecal incontinence, and sexuality .…”

Section: Introductionmentioning

confidence: 99%

“…One of the ways to gain the patients' perspective in the evaluation of treatment has been the creation of new outcomes measures, ie, patient-reported outcome measures (PROMs). 6,7 These PROMs assess how the different domains of symptoms affect the QoL of patients, such as urinary incontinence, fecal incontinence, and sexuality. 8 These patient-centered outcomes can be used in the design of future research.…”

Section: Introductionmentioning

confidence: 99%

Are EAU/ESPU pediatric urology guideline recommendations on neurogenic bladder well received by the patients? Results of a survey on awareness in spina bifida patients and caregivers

Doğan

Stein

Hoen

et al. 2019

Neurourology and Urodynamics

View full text Add to dashboard Cite

Aims The Paediatric Urology Guidelines Panel reports initial experience with patient involvement in spina bifida patient groups to gather information on their awareness of the guidelines and reflection of guideline recommendations. Methods The survey was delivered to spina bifida patients/parents via the national society groups in Turkey, Germany, and The Netherlands. Questions included demographic features, medical status, awareness, and agreement on the recommendations given in the guidelines and future expectations. Results A total of 291 patients from 3 countries responded to the survey. Mean age was 13.9 ± 12.2 years, male/female ratio 138/151, 75% of all surveys were completed by the caregivers. The medication was taken by 78% of patients (64% anticholinergics). Complete dryness rates for urine and stool were 24% and 47%, respectively. The agreement rates on the recommendations regarding urodynamics, intermittent catheterization, anticholinergics drug use, bowel management, and life‐long follow‐up were 97%, 82%, 91%, 77%, and 98%, respectively. Only 8% of responders were aware of the European Association of Urology/European Society for Pediatric Urology guidelines. The priorities of patients for future expectations were as the following: quality of life (QoL), surgical techniques, development of new medications and sexuality/fertility issues. Male spina bifida patients preferred new medications and sex/fertility issues more, whereas females favored QoL issues improvement more. Conclusions Although the native language of the involved patients was different from English, awareness of guidelines was 8%. The general approval of the recommendations given in the guidelines is quite high. The national society groups showed a great interest to get involved in the creation of the guidelines to improve health care for spina bifida patients.

show abstract

The Neurogenic Bladder Symptom Score (NBSS): a secondary assessment of its validity, reliability among people with a spinal cord injury

Abstract: Patient-Centered Outcomes Research Institute (PCORI) Award CER14092138.

Cited by 46 publications

References 21 publications

The creation and validation of a short form of the Neurogenic Bladder Symptom Score

The creation and validation of a short form of the Neurogenic Bladder Symptom Score

Neurogenic bladder symptom score: Polish translation, adaptation and validation of urinary disorder‐specific instrument for patients with neurogenic lower urinary tract dysfunction

Are EAU/ESPU pediatric urology guideline recommendations on neurogenic bladder well received by the patients? Results of a survey on awareness in spina bifida patients and caregivers

Contact Info

Product

Resources

About