The needs of spouses caring for severely aphasic persons

Michallet, Bernard; Dorze, Guylaine Le; Tétreault, Sylvie

doi:10.1080/02687040143000087

Cited by 61 publications

(43 citation statements)

References 46 publications

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“…physical and mental exhaustion, low mood, caring related health problems, lack of time to self, having to 'take second place', changes to sense of identity) are similar to findings in previous research (Michallet, LeDorze, & Tetreault, 2001;Servaes et al, 1999, Threats, 2010. The majority of participants described feeling lonely and isolated, missing their pre-stroke partner, which to a great extent appeared to be due to the severe communication difficulties and the person with aphasia having lost their primary means of self-expression.…”

Section: Discussionsupporting

confidence: 88%

“…Most comments on family and friends were of a positive nature, for example, thanking them for their support, whereas findings in other studies showed that carers often complained about a significant loss of their social contacts and experiencing negative changes within family dynamics (Barkas et al, 2006;Grawburg et al, 2013;McGurk & Kneebone, 2013;Michallet et al, 2001;Servaes et al, 1999). The scarcity of information in this area is likely due to the public nature of the blogs, as well as the fact that part of the motivation for writing a blog was often to keep family and friends updated on the person with aphasia's condition and their progress.…”

Section: Discussionmentioning

confidence: 93%

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Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

et al. 2014

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Citation: Winkler, M., Bedford, V., Northcott, S. and Hilari, K. (2014). Aphasia blog talk:How does stroke and aphasia affect the carer and their relationship with the person with aphasia?. Aphasiology, doi: 10.1080Aphasiology, doi: 10. /02687038.2014 This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent AbstractBackground: Carers of stroke survivors with aphasia are at risk of experiencing negative bio-

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 93%

Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

et al. 2014

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“…The information needs of stroke PCF experiencing SLD are substantial and change with time, according to the time period following the stroke [36][37][38][39][40]. Despite well-documented benefits of providing written health information, stroke patients with SLD do not necessarily receive the information they require from health professionals, and information may be too complex [32,34,36,41,42], particularly among stroke patients with aphasia [43].…”

Section: The Information Needs Of Patients With Speech and Language Dmentioning

confidence: 99%

“…The SLD-related information needs, however, range from general information on the condition to practical help in communicating, and information on further speech and language therapy [26,37,40,46,48,52,53]. PCFs have information needs as regards alternative therapies, independent living, such as job retraining and volunteer opportunities [48].…”

Section: The Information Needs Of Patients With Speech and Language Dmentioning

confidence: 99%

An assessment of the quality of information on stroke and speech and language difficulty web sites

Surman

Bath

2013

Journal of Information Science

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Online healthcare information is used by patients, their carers and families (PCF) experiencing speech and language difficulties (SLD) after a stroke. This information may be of variable quality. Tools have been designed to assess the risk of poor information quality, evaluating both generic and specific concepts, yet none focus on stroke. The readability of information is also an issue when communication disorders are in consideration. The study investigated the quality and readability of information on 51 web sites pertaining to SLD following a stroke. These were assessed using two generic evaluation tools (DISCERN and the HON Code), readability tests (Flesch Reading Ease and Flesch-Kincaid Grade Level), and a specifically designed Stroke Tool based on the reported information needs of stroke PCF experiencing SLD. The tools themselves were then evaluated for their feasibility, reliability and validity. In common with previous studies, the information quality of the selected web sites was found to be extremely variable with only 59% achieving a score of 50% or more using HON, only 37% using DISCERN, and 49% using the Stroke Tool. Readability is generally very poor with only 6% of web sites scoring below the recommended grade 7. The tools did not correlate well, suggesting that they measure different domains of quality. The Internet may be a valuable resource for stroke PCF however the variable quality of information means that cautious use is recommended. The readability of information is a more serious issue that needs addressing by web site developers.

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“…Afazik hastaların bakıcıları daha fazla rol değişimleri yaşarlar. Evlilik sorunları daha fazladır ve eşlerine karşı daha fazla sayıda negatif davranışta bulunurlar (44)(45)(46). White ve ark; strok hastası ile primer bakıcısı arasındaki ilişkileri ve bakıcı yaşam kalitesini 2 yıllık bir periyodda değerlendirmiştir.…”

Section: Kaynaklarunclassified

Post stroke aphasia and quality of life

Armağan¹

2011

Türk Beyin Damar Hast Derg

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İnme sonrası hastalarının ortalama % 30' unda afazi görülür. Afazi, genellikle beyinin sol hemisferindeki kortikal veya subkortikal hastalıklarına sekonder oluşan dilin hem ifade etme hem de algılama yetenekleri ile ilgili olarak ortaya çıkan edinsel bir fokal nörolojik bozukluktur. Afazik hastaların iletişim problemleri, arkadaşlık ilişkileri, emosyonel durumları ve sosyal katılımlarını olumsuz yönde etkiler. Yani tatmin edici bir yaşam kalitesi sağlamak ve sürdürmek açısından problemlere yol açar. Yaşam kalitesi çok yönlü bir kavramdır. Sakatlığın veya hastalığın birey üzerindeki etkisini basitçe etkilenen özel bir fonksiyon veya sistem kaybı olarak değil, bir bütün olarak gözlenmesine olanak sağlar. Bu nedenle bu alanların yeterli ve güvenilir biçimde ölçülmesi çok önemlidir. Bu derlemede inme sonrası afazili hastaların yaşam kalitesini değerlendirmede kullanılan ölçekler ve yaşam kalitesine etki eden faktörler incelenmiştir. Anahtar Sözcükler: İnme, afazi, yaşam kalitesi. POST STROKE APHASIA and QUALITY of LIFE ABSTRACTAphasia occurs approximately 30% of poststroke patients. Aphasia is an acquired focal neurological disorder secondarily occurs with cortical and subcortical left hemispheric brain disorders and affects the expression and perception capability of the speech. It has some negative impacts on communication, friendships, emotional status and social relationships. Thus, it causes problems in ensuring and maintaining a satisfactory quality of life. Quality of life is a multi-dimensional concept. It enables to assess the impact of a disability or disorder on an individual as a whole rather than simply an affected specific function or loss of a system. Therefore, it is important to measure these scopes adequately and reliable. Present review evaluates the instruments used for assessing the quality of life of aphasic person, as well as investigates the factors that influence the quality of life. Key Words: Stroke, aphasia, quality of life Afazi en çok orta serebral arter ile beslenen kortikal yerleşimli perisilvian aparatı etkileyen patolojilerde ortaya çıkmaktadır. Bazı subkortikal afaziler vertebrobaziller sistemin, transkortikal afaziler ise ön, orta ve arka serebral arterin suladığı kavşak bölgelerdeki problemler sonucu ortaya çıkabilir. İntraserebral ve subaraknoid kanama yapan diğer nedenler, beyin tümörleri, kafa travması, enfeksiyon, apse, ateş ya da nöbet gibi durumlar da afaziye yol açabilir (6,7).Afazi sendromlarında en çok kullanılan Boston afazi sınıflandırılmasına göre afaziler başlıca akıcı ve akıcı olmayanlar şeklinde ayrılır. Boston sistemindeki sekiz major afazi türü Broca afazisi, Wernice afazisi, anomik afazi, iletim afazisi, global afazi ve daha az sıklıkla görülen transkortikal afazi türleridir (5). Afazi tipleri ve klinik özellikleri Tablo 1' de gösterilmiştir (2). GİRİŞİnme, serebral damarların oklüzyonu veya rüptüründen kaynaklanan kalıcı fokal nörolojik kayıpla karakterize bir klinik sendromdur (1) . İnme sonrası hastaların % 40' ında iletişim bozuklukları görülür. En sık görül...

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The needs of spouses caring for severely aphasic persons

Cited by 61 publications

References 46 publications

Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

An assessment of the quality of information on stroke and speech and language difficulty web sites

Post stroke aphasia and quality of life

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