The needs of people with dementia in care homes: the perspectives of users, staff and family caregivers

Orrell, Martin; Hancock, G; Liyanage, Kumari C. Galboda; Woods, Bob; Challis, David; Hoe, Juanita

doi:10.1017/s1041610208007266

Cited by 85 publications

(97 citation statements)

References 13 publications

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“…carpet bowling, gardening, music, bingo and crafts). As such this reinforces findings that meaningful activities were important to people with dementia in care homes (Hancock, Woods, Challis, & Orrell, 2006;Orrell et al, 2008). Getting out and about, whether this was in the care home building and garden or on structured outings has also been reported previously as an important design feature (Chalfont, 2008) and important to people with dementia (Duggan et al, 2008).…”

Section: Discussionsupporting

confidence: 85%

“…Talking to people with dementia about what they like about a care home, when it happens, tends to focus on the quality of care experienced or the perceived quality of life that care home living provides (Harmer & Orrell, 2008;Orrell et al, 2008;Train, Nurock, Kitchen, Manela, & Livingston, 2005). Asking people with dementia their views on the building where they live is a new area our study set out to explore.…”

Section: What People With Dementia and Their Families Had To Say Aboumentioning

confidence: 99%

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Care home design for people with dementia: What do people with dementia and their family carers value?

Innes

Kelly

Dincarslan

2011

Aging & Mental Health

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Objectives: To report on the views of people with dementia who live in care homes and their family carers on aspects of design that are important to them, and discuss these in relation to developing physical care environments that respond to the wishes of people with dementia and their family carers. Method: Six focus groups were held: two in Northern Ireland and four in Scotland. A total of 40 people participated in the focus groups. Twenty nine people were with dementia (24 female and five male), and 11 were family carers (10 female and one male). Results: Carers discussed the features of a building they took into account when selecting a care home, and discussed this in relation to 'bricks and mortar versus people'. Key themes reported by people with dementia and their family carers included how the space in the environment is used, for example, what happens in the building and the presence or absence of certain design features. Outside space and wayfinding aids were identified as positive features of the home, along with a general lack of concern about ensuite provision. Conclusion:The results demonstrate the complexity of building design as it must provide living space acceptable to people with dementia living there and family members who visit, as well as provide a workable environment for staff. The findings highlight areas that should be considered by care home teams involved in the build of a new home or the redevelopment of an existing care home.

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Section: Discussionsupporting

confidence: 85%

Section: What People With Dementia and Their Families Had To Say Aboumentioning

confidence: 99%

Care home design for people with dementia: What do people with dementia and their family carers value?

Innes

Kelly

Dincarslan

2011

Aging & Mental Health

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“…However, previous findings demonstrate that unmet needs in the oldest old often remain underdetected and undertreated [9]. Up to date, only a few studies, mostly focusing on residential care settings, examined the care needs of older patients suffering from dementia [7,8,11,12,15,16,17,18,19,20]. However, little is known about the unmet needs of the oldest old with MCI and dementia as assessed from various perspectives in the primary care setting in Germany.…”

Section: Introductionmentioning

confidence: 99%

Unmet Care Needs in the Oldest Old Primary Care Patients with Cognitive Disorders: Results of the AgeCoDe and AgeQualiDe Study

Stein

Pabst

Luck

et al. 2017

Dement Geriatr Cogn Disord

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Background: In the future, an increase in health care needs in the elderly is expected. Reports on unmet care needs of the oldest old with cognitive disorders are pending. This study aims at exploring unmet needs in the oldest old primary care patients with mild cognitive impairment (MCI) and dementia. Furthermore, the association between sociodemographic and clinical factors and unmet needs ought to be analyzed. Methods: Based on the study “Needs, Health Service Use, Costs and Health-Related Quality of Life in a Large Sample of Oldest-Old Primary Care Patients (85+)” (AgeQualiDe), 749 patients (unimpaired, MCI, and dementia) aged 85 years and older, their relatives (n = 421), and general practitioners (GPs) (n = 607) were assessed. Descriptive, inferential, and regression analyses were run. Results: Most unmet needs were observed in dementia patients, although needs were less frequently rated as unmet by dementia patients themselves as compared to relatives and GPs. Unmet needs were associated with MCI and dementia; other risk factors were age, education, and marital status. Conclusion: This study provides first data on unmet needs according to different perceptions in the elderly with MCI and dementia in Germany. Need assessments should be part of medical examinations to ensure a high-quality health care in the elderly.

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“…A quick glance through an issue of International Psychogeriatrics pulled from my shelves at random (20 (5), October 2008), revealed that of 16 review or original research articles, five (31%) (Lyketsos et al, 2008;Mendes-Chiloff et al, 2008;Milne et al, 2008;Nakaaki et al, 2008;Orrell et al, 2008) cited Folstein's MMSE. It therefore caused me little surprise to find that that the valuable contribution of Han et al (2000) in establishing a typical rate of decline for AD patients assessed with the MMSE had received the equal sixth highest number of citations of any paper published in the journal up to the end of 2006.…”

Section: Commentarymentioning

confidence: 99%

TOP CITED PAPERS IN INTERNATIONAL PSYCHOGERIATRICS: 6c. TRACKING COGNITIVE DECLINE IN ALZHEIMER'S DISEASE USING THE MINI-MENTAL STATE EXAMINATION: A META-ANALYSIS (“MINI” IS NOT NECESSARILY TRIVIAL!)

Han

2009

Int. Psychogeriatr.

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It was well beyond my expectations when I heard from Professor Ames that our meta-analysis paper (Han et al., 2000) was among the top-cited papers in International Psychogeriatrics. As an expression of my gratitude to the editor for the invitation and to the audience of this paper, I would like to offer this informal discussion on the background of the paper and extend a few ideas that were not conveyed fully at the time, due either to insufficient knowledge or unavailability of relevant data or methodologies.

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The needs of people with dementia in care homes: the perspectives of users, staff and family caregivers

Abstract: Users' views on their needs should be sought even when the person has dementia and lives in a care home. Reliance solely on assessment by staff or carers may lead to under recognition of unmet needs.

Cited by 85 publications

References 13 publications

Care home design for people with dementia: What do people with dementia and their family carers value?

Care home design for people with dementia: What do people with dementia and their family carers value?

Unmet Care Needs in the Oldest Old Primary Care Patients with Cognitive Disorders: Results of the AgeCoDe and AgeQualiDe Study

TOP CITED PAPERS IN INTERNATIONAL PSYCHOGERIATRICS: 6c. TRACKING COGNITIVE DECLINE IN ALZHEIMER'S DISEASE USING THE MINI-MENTAL STATE EXAMINATION: A META-ANALYSIS (“MINI” IS NOT NECESSARILY TRIVIAL!)

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