The Needs of Aging Parents Caring for an Adult with Acquired Brain Injury

Minnes, Patricia; Woodford, Lynn; Carlson, Peter M.; Johnston, Jane; McColl, Mary Ann

doi:10.1017/s0714980810000103

Cited by 13 publications

(17 citation statements)

References 22 publications

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“…We found only one statement explicitly reflecting a growing (sense of) emotional robustness in dealing with issues arising from their child's condition. Accordingly, our findings directly challenge the idea that caregiver burden can level off/decrease as adjustment to/accommodation of the brain-injured person's condition is made 11 . Although mothers described a range of 'successes' concerning their child's development, achievements, care and future, none of these were either explicitly or implicitly associated with diminution in perceived burden.…”

Section: Perpetually Grievingmentioning

confidence: 47%

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

Jordan

Linden

2013

Brain Injury

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Section: Perpetually Grievingmentioning

confidence: 47%

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

Jordan

Linden

2013

Brain Injury

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“…Many of the challenges for caregivers that were identified in the stakeholder meeting were consistent with existing evidence pertaining to the experiences of caregivers of individuals with TBI, in particular the high levels of caregiver burden, 33 lack of access to community services and supports, and the high levels of stress during transitions of care. 34,35 Although some qualitative evidence exists describing the perceptions of aging caregivers regarding their support needs, 34,35 these studies typically occur at one point in time, and lack detail regarding the contextual factors influencing caregivers' experiences and how they change over time as they and the individual with TBI age.…”

Section: Supporting Caregiver Needsmentioning

confidence: 99%

Research Priorities for Optimizing Long-term Community Integration after Brain Injury

Nalder

Zabjek

Dawson

et al. 2018

Can. J. Neurol. Sci.

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ObjectiveThis paper reports on a funded summit, which convened a multidisciplinary group of experts to provide consensus on the research priorities necessary for improving long-term community integration of individuals with traumatic brain injury (TBI) and their caregivers.MethodsThe 2-day summit was directed using the World Café Methodology, to engage stakeholders and collaboratively arrive at a consensus on the problems to be targeted in research. Participants (n=54), drawn from two Canadian provinces, included an interdisciplinary group of researchers, clinicians, representatives from brain injury associations, individuals with TBI, and caregivers. In small groups, participants discussed challenges to long-term community integration and potential initiatives that would address these barriers. Field notes from the discussions were analyzed using qualitative content analysis.ResultsThe consensus on prioritized research directions included developing interventions to optimize the functioning and participation of individuals with TBI, reducing caregiver burden, and evaluating how emerging technology can facilitate delivery of care.ConclusionsThe World Café Methodology was an effective method for developing research priorities. The breadth of expertise of participants and the collegial environment allowed for the identification of a broad perspective on important future research directions with potential to enhance the long-term community integration of individuals with brain injury.

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“… 2 Lack of proper knowledge and nursing techniques cause relatives at home to provide improper care to the TBI survivors, hence, further complications may arise in the form of secondary bacterial infections. 3 The primary responsibility of care is placed on the shoulders of the caregiver. Due to the challenges TBI survivors face, caring for them at home might be difficult, especially during the pandemic.…”

Section: Introductionmentioning

confidence: 99%

The Needs of Traumatic Brain Injury Survivors' Caregivers and the Implication Required during the Covid-19 Pandemic: Public Health Issues

Othman

Ludin

Saidi

et al. 2021

Journal of Public Health Research

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Background: Traumatic brain injury (TBI) survivors require attention and dependence from their primary caregiver. This is because TBI is a defect that affects both the psychological and physical functions of the victim. Caregivers play an essential role in providing the adequate care victims need to adjust to the new problems they may experience due to their condition, as family members alone may not be able to provide for their needs. In particular, TBI caregivers may face specific challenges when assisting their patients in handling unexpected changes to their daily routines. Therefore, this quantitative study aims to explore the needs of caregivers, their coping mechanisms towards stressful and traumatic circumstances, and how they provide care to their loved ones during the COVID-19 pandemic.Design and Methods: It was conducted with ten caregivers of individuals suffering from traumatic brain injury, that were selected using a theoretical sampling method. Data were obtained using a semi-structured interview guide, which helped the caregivers provide their responses. Meanwhile, data analysis was performed using the NVIVO analysis software.Results: The results showed that there were, three significant themes namely, (a) Support needed, (b) the information need for care, and (c) developing self-resilience. The results also showed that caregivers really need support from the various parties, and the participants lack information on specific care techniques for the severe traumatic brain injury (TBI) survivors.Conclusion: In conclusion, caregivers require approval and seek more useful information to provide excellent care to their loved ones. Being aware of the caregiver's needs would enable them to offer improved customized care.

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The Needs of Aging Parents Caring for an Adult with Acquired Brain Injury

Cited by 13 publications

References 22 publications

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury

Research Priorities for Optimizing Long-term Community Integration after Brain Injury

The Needs of Traumatic Brain Injury Survivors' Caregivers and the Implication Required during the Covid-19 Pandemic: Public Health Issues

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