The Need to Appear Healthy: Concealment of Chronic Illness, Privacy, and Self-Sufficiency Among Chronically Ill Older Nigerians

Abstract

Background and objectives Prior research has highlighted the beneficial impact of social networks and social support on older adults' physical and psychosocial well-being. However, the impact of the relationship between chronic illness and social networks on the psychosocial well-being of older Nigerians remains understudied. This study explored how older Nigerians with chronic illnesses navigate the physical, mental, and emotional changes due to their chronic disease diagnosis within their social contexts. Research design and method The current qualitative study used semi-structured in-depth interviews with 19 purposively sampled older adults, aged 50 years and over, chronically ill, and receiving clinical care to examine the role of social networks in how chronically ill older Nigerians cope with their diagnosis. Results Three main themes reflecting participants’ experiences emerged from the findings: 1) closely-knit circles, 2) privacy and self-sufficiency, and 3) body image. Results show that chronically ill older Nigerians prefer to keep the knowledge of their conditions strictly within their close family circles. It was considered horrific to inform friends, community members, and religious groups about one’s chronic illness. Findings further reveal that the need to appear healthy to one’s social network stems from the fear of being discriminated against and attempts to maintain some level of normalcy when interacting with others. Additionally, feelings of inferiority and shame limited their participation in social activities and social network maintenance. Discussion and implication We discuss the implication of the results for the mental well-being and quality of life of chronically ill older Nigerians and make recommendations for policies and resources that can improve the well-being of chronically ill Nigerians.

Sankofa: Learning From the Past to Build the Future—Introduction to the Special Issue on Aging in Sub-Saharan Africa

“…Rich qualitative data from five papers further elucidate the influence of culture on perceptions of illness, the dying process, caregiving, and coping. First, in a qualitative study examining how older chronically ill Nigerians cope with their diagnosis, Mahmoud and colleagues (Mahmoud, 2024 ) found that older Nigerians do not want individuals outside their close family circle to know that they are ill. Individuals conceal their illness because they fear discrimination and want to maintain normalcy when interacting with others.…”