The NCRI Cancer Experiences Collaborative: Defining self management

Foster, Claire; Brown, Janice; Killen, Maureen; Brearley, Sarah

doi:10.1016/j.ejon.2007.08.002

Cited by 36 publications

(31 citation statements)

References 11 publications

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“…Moreover, the TSSM accounts for the many facets of symptoms and includes Self-Efficacy Theory to address the facets that can be affected by PSE enhancing interventions. Foster, Brown, Killen, and Brearly 63 note that self-management research is a key area for the innovative management of complex symptoms experienced by persons with cancer and that self-management for persons with cancer is poorly defined and lacks a theoretical framework. Empirical evidence that supports the model components and relationships described in the TSSM includes a study by Wells-Federman, Arnstein, and Caudill.…”

Section: Leveraging the Theory Of Symptom Self-management For Clinicamentioning

confidence: 99%

Enhancing Self-efficacy for Optimized Patient Outcomes Through the Theory of Symptom Self-management

Hoffman¹

2013

Cancer Nursing

156

113

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Background In today’s world, greater patient empowerment is imperative since 90 million Americans live with one or more chronic conditions such as cancer. Evidence reveals that healthy behaviors such as effective symptom self-management can prevent or reduce much of the suffering from cancer. Oncology nurses play a pivotal role in developing a symptom self-management plan that is critical to optimizing a patient’s symptom self-management behaviors. Objective This article uses exemplars to describe how oncology nurses can apply a tested middle-range theory, the Theory of Symptom Self-Management, to clinical practice by incorporating interventions to increase a patient’s perceived self-efficacy to optimize patient outcomes. Methods The Theory of Symptom Self-Management provides a means to understand the dynamic aspects of symptom self-management and provides a tested framework for the development of efficacy enhancing interventions for use by oncology nurses in clinical practice. Results Exemplars based on the Theory of Symptom Self-Management that depict how oncology nursing can use perceived self-efficacy enhancing symptom self-management interventions to improve the functional status and quality of life of their patients. Conclusion Guided by a theoretical approach, oncology nurses can have a significant positive impact on the lives of their patients by reducing the symptom burden associated with cancer and its treatment. Implications for Practice Oncology nurses can partner with their patients to design tailored approaches to symptom self-management. These tailored approaches provide the ability to implement patient specific behaviors that recognize, prevent, relieve, or decrease the timing, intensity, distress, concurrence, and unpleasant quality of symptoms.

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Section: Leveraging the Theory Of Symptom Self-management For Clinicamentioning

confidence: 99%

Enhancing Self-efficacy for Optimized Patient Outcomes Through the Theory of Symptom Self-management

Hoffman¹

2013

Cancer Nursing

156

113

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“…In 2006, there were over 720 000 prevalent cancer patients who were up to 5 years postdiagnosis 2. The National Cancer Survivorship Initiative, National Cancer Research Institute and National Institute for Health and Clinical Excellence recognise the importance of research to develop strategies for encouraging effective self-management for cancer survivors3 4 and to improve care planning and targeted service delivery 5. However, the definition of survivorship is broad.…”

Section: Introductionmentioning

confidence: 99%

Defining chronic cancer: patient experiences and self-management needs

Harley

Pini

Bartlett

et al. 2012

BMJ Support Palliat Care

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Objective Chronic cancer is poorly defined and strategies for supporting patients during this disease phase are lacking. This research defines chronic cancer, explores patient experiences, and reviews patients' support needs against those described in the 2007 Department of Health Generic Choice Model for Long-term Conditions (DoH-GCM).Design Semi-structured interviews were audio-recorded, transcribed, and data explored for emergent themes. A-priori themes from the DoH-GCM were applied: clinical support; self-care and self-management; supporting independence; psychological support; and social and economic factors.Results 56 patients >12 months post-diagnosis of advanced cancer were recruited from five clinics at a Yorkshire cancer centre: breast (n=11); renal (n=11); colorectal/gastrointestinal (n=12); gynaecological (n=12); prostate (n=10). Most patients aspired to living normal lives. Challenges included frequent and lengthy hospital appointments, long-term symptom control, and uncertainty. Only renal and prostate patients reported routine access to specialist nursing. Uptake of support services was varied and there was generally poor understanding of support pathways for non-medical problems and issues occurring when patients were not receiving active treatment. There was variation in coping strategies and ability of patients to attain a positive outlook on life.Conclusion For patients to do well in this cancer phase requires good self-management of symptoms plus taking an active role in accessing appropriate services as needed. Care planning at the point of transition to the chronic phase of cancer should focus on evaluating patients' needs, clarifying support pathways, increasing the profile and involvement of community services and organisations, and supporting patients and families develop effective self-management skills.

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“…A second concept, self-management, refers to a survivor's ability to manage the reali- ties of living with cancer and involves completion of skills and tasks. This concept primarily focuses on educating survivors in adhering to a disease management plan (Barlow et al 2002, Cimprich et al 2005, Foster et al 2007). On the other hand, self-advocacy originates with the survivors' intentions to stand up for his or her values throughout all choices.…”

Section: Related Conceptsmentioning

confidence: 99%

Self‐advocacy and cancer: a concept analysis

Hagan

Donovan

2013

Journal of Advanced Nursing

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Aim This paper is a report of an analysis of the concept of self-advocacy among individuals with cancer to clarify its meaning, to differentiate this meaning with related concepts and to unify understanding of the concept in cancer research and practice. Background Cancer survivors are increasingly required to assume an active role in their healthcare. A thorough analysis of how survivors advocate for themselves is a crucial aspect in supporting survivors’ ability to engage and manage their care throughout all stages of cancer survivorship. Design Walker and Avant’s eight-step process of conducting a concept analysis was used. Data Sources PubMed, PsycINFO and CINAHL databases were searched for articles, reviews, editorials and gray literature directly addressing self-advocacy. Review Methods A broad inquiry into the literature from 1960 – 2012 that produces a definition of self-advocacy. Model and contrary cases of self-advocacy demonstrate the concept’s application and intricacies. Results Antecedents to self-advocacy include particular personal characteristics, learned skills and attainable support. The essential element of self-advocacy and what differentiates it from related concepts, is the internalization of these antecedent resources into self-advocacy thoughts and actions while incorporating personal values and priorities in a way that upholds the survivors’ goals and beliefs. A full realization of self-advocacy facilitates a cancer survivor attaining a strong self-concept, sense of control and adaptation to a life with cancer. Conclusions Self-advocacy is a process of internalizing skills and resources to act in a way that supports survivors’ needs and goals.

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The NCRI Cancer Experiences Collaborative: Defining self management

Cited by 36 publications

References 11 publications

Enhancing Self-efficacy for Optimized Patient Outcomes Through the Theory of Symptom Self-management

Enhancing Self-efficacy for Optimized Patient Outcomes Through the Theory of Symptom Self-management

Defining chronic cancer: patient experiences and self-management needs

Self‐advocacy and cancer: a concept analysis

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