The myth of the total institution: Written narratives of patients' views of sanatorium care 1908–1959

Bengtsson, Staffan; Bülow, Pia H.

doi:10.1016/j.socscimed.2016.02.005

Cited by 4 publications

(2 citation statements)

References 21 publications

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“…One resident (Sawan et al, 2022) found out she could not continue with her former physician. This illustrates a total institution feature (Goffman, 1961) that residents' lives are conducted under the same single authority (Bengtsson and Bülow, 2016) with outside consultation possibly endangering such authority.…”

Section: Alternative Interpretations Expanding the Research Findingsmentioning

confidence: 99%

Residents’ autonomy in long-term care facilities: the case of shared decision-making in medication management – when, for whom, and how important is it?

Koren¹

2022

Int. Psychogeriatr.

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Section: Alternative Interpretations Expanding the Research Findingsmentioning

confidence: 99%

Residents’ autonomy in long-term care facilities: the case of shared decision-making in medication management – when, for whom, and how important is it?

Koren¹

2022

Int. Psychogeriatr.

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“…At the same time, however, the CCRC is often perceived as the “last stop” (Ball et al, 2014), and as a social world (Gamliel & Hazan, 2006) characterized by a semi-totalitarian social institutional environment. Based on Goffman’s (1963) characteristics of total institutions, the following features (Bengtsson & Bülow, 2016) define the CCRC as a case of a semi-totalitarian institution: Most aspects of life are conducted in the same place and under the authority of the CCRC staff. The residents’ daily life is carried in the immediate company of other residents, who are treated in the same way.…”

Section: Introductionmentioning

confidence: 99%

“Not living together yet all the time together”: The construction of living apart together in continuing care retirement communities from perspectives of residents and CCRC staff*

Koren

Ayalon

2019

Journal of Social and Personal Relationships

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Moving to a continuing care retirement community (CCRC) and living apart together (LAT) late in life are occurrences representing new beginnings in old age. However, they may also involve restrictions related to partnership characteristics and to the semi-totalitarian features of the CCRC. From community, person-in-environment and person–environment fit/misfit approaches, we aim to examine how LAT relationships are constructed in the CCRC from perspectives of residents and CCRC staff as members of the same semi-totalitarian communities. This could provide new understandings on CCRC features and LAT relationships for enhancing residents’ quality-of-life. A total of 30 semi-structured qualitative interviews were conducted in three CCRCs in Israel: 10 with widowed LAT residents, 10 with widowed residents not LAT, and 10 with CCRC staff. The interviews were analyzed based on thematic analysis and triangulated to produce a broad and rich experience of LAT in the CCRC. Two themes that characterize LAT relationships in the CCRC were identified: (1) friendship rather than partnership characterize the LAT relationship and (2) not living together yet being all the time together. The intersection between the social environment (the CCRC) as a semi-totalitarian institution and the persons (residents in LAT and not in LAT and CCRC staff) is discussed. The discussion focuses on LAT relationships in the CCRC as representing exclusive friendship and the limited autonomy associated with not living together yet being all the time together. Implications on micro, mezzo, and macro levels are suggested.

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The Walled-in Illness: The Twentieth-Century Finnish Tuberculosis Sanatorium as Lived Space

Hakosalo

2023

Palgrave Studies in the History of Experience

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Medical historians have investigated the twentieth-century tuberculosis sanatorium as an idiosyncratic therapeutic tool and environment, while architectural historians have been interested in the development and prominent representatives of the building type. This chapter focuses on patients as active agents interacting with the sanatorium space. Relying on Michel de Certeau’s distinction between space (espace) and place (lieu), the chapter asks how the sanatorium space was used, modified, sensed, and remembered by (former) patients. The primary source material consists of written reminiscences, letters, diaries, and photographs related to and originating in Finnish twentieth-century sanatoria. The chapter argues that the experience of the institutional space formed a key part of the overall sanatorium and illness experience. Furthermore, it demonstrates that the interaction between the patient and the building was less one-directional and more multiform than commonly assumed. Patients described the sanatorium space frequently, and often in highly emotional and sensory terms, but the way they experienced the space was varied and individual. Although the sanatorium was a highly regulated space, patients could use it creatively. They modified the institutional space, often with the purpose of individualizing and de-institutionalizing it, and frequently used it in ways unintended and unforeseen by the medical and architectural authorities.

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The myth of the total institution: Written narratives of patients' views of sanatorium care 1908–1959

Cited by 4 publications

References 21 publications

Residents’ autonomy in long-term care facilities: the case of shared decision-making in medication management – when, for whom, and how important is it?

Residents’ autonomy in long-term care facilities: the case of shared decision-making in medication management – when, for whom, and how important is it?

“Not living together yet all the time together”: The construction of living apart together in continuing care retirement communities from perspectives of residents and CCRC staff*

The Walled-in Illness: The Twentieth-Century Finnish Tuberculosis Sanatorium as Lived Space

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