The most important needs of parents of critically ill children: parents' perceptions

Farrell, Michael; Frost, Charlotte

doi:10.1016/0964-3397(92)90019-g

Cited by 60 publications

(22 citation statements)

References 2 publications

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“…Several studies have provided state-of-the-art knowledge of parental needs in the PICU, as established by the modified 45-item Critical Care Family Needs Inventory [25][26][27][28]. The top 20 needs in these studies tend to focus on information provision, such as information on illness, progress, prognosis, and ''knowing what is being done'' [29].…”

Section: Discussionmentioning

confidence: 99%

Perceptions of parents on satisfaction with care in the pediatric intensive care unit: the EMPATHIC study

et al. 2009

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Purpose: To identify parental perceptions on pediatric intensive care-related satisfaction items within the framework of developing a Dutch pediatric intensive care unit (PICU) satisfaction instrument. Methods: Prospective cohort study in tertiary PICUs at seven university medical centers in The Netherlands. Participants: Parents of 1,042 children discharged from a PICU. Results: A 78-item questionnaire was sent to 1,042 parents and completed by 559 (54%). Seventeen satisfaction items were rated with mean scores \8.0 (1, completely unimportant, to 10, very important) with standard deviations C1.65, and thus considered of limited value. The empirical structure of the items was in agreement with the theoretically formulated domains: Information, Care and Cure, Organization, Parental Participation, and Professional Attitude. The Cronbach's a of the domains ranged between 0.87 and 0.94. Conclusions: Parental perceptions on satisfaction with care measures were identified and prioritized. Reliabilities of the items and domains were of high level.

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Section: Discussionmentioning

confidence: 99%

Perceptions of parents on satisfaction with care in the pediatric intensive care unit: the EMPATHIC study

et al. 2009

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“…In addressing parental stress, many studies have documented the psychological impact of a PICU admission [3]. Other researchers concentrated on parental needs and documented that hope, honesty, accessibility, and information are parents’ top priorities [4–6]. Lastly, the overarching themes identified by qualitative studies on parental experiences seem to be related to the role of parents, the parents-professional relationship, and emotional burden [1, 7].…”

Section: Introductionmentioning

confidence: 99%

A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units

et al. 2010

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PurposeTo explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).MethodQualitative method using in-depth interviews. Thematic analysis was applied to capture parents’ experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.ResultsParents were interviewed within 1 month after their child’s discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.ConclusionsThe findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.Electronic supplementary materialThe online version of this article (doi:10.1007/s00134-010-2074-3) contains supplementary material, which is available to authorized users.

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“…In the only study to measure the parent's perception of the seriousness of the child's illness, Berenbaum and Hatcher (8) found that perceptions of greater severity were related to greater distress. In qualitative studies, parents often identify social support as an important coping strategy (10,11,13). However, in a study (12) of mothers with children in the PICU, social support was not as important when the child's illness severity and cohesiveness of the family unit were controlled.…”

Section: Discussionmentioning

confidence: 99%

Parents??? reactions at 24???48 hrs after a preschool child???s head injury

Youngblut

Brooten

Kuluz

2005

Pediatric Critical Care Medicine

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The most important needs of parents of critically ill children: parents' perceptions

Cited by 60 publications

References 2 publications

Perceptions of parents on satisfaction with care in the pediatric intensive care unit: the EMPATHIC study

Perceptions of parents on satisfaction with care in the pediatric intensive care unit: the EMPATHIC study

A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units

Parents??? reactions at 24???48 hrs after a preschool child???s head injury

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