The Mentally Retarded Child in the Home and the Family Cycle

Birenbaum, Arnold

doi:10.2307/2948454

Cited by 52 publications

(13 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In several past studies, parents expressed less confidence about the normality of their disabled children's futures. For example, mothers of older children predicted their children would be living at home and involved in a community-based day program in five years and they could not imagine their children's futures in ten years (Birenbaum, 1971). These findings, like those of Zeitlin and Turner (1985), portray parents of children with disabilities as becoming increasingly perplexed about the future of their child.…”

Section: Discussionmentioning

confidence: 99%

Mother's Expectations for Adolescent Children: A Comparison Between Families of Adolescents with Disabilities and Those with Non-labeled Adolescents

Lehmann¹,

Baker²

1994

Career Development for Exceptional Individuals

View full text Add to dashboard Cite

Section: Discussionmentioning

confidence: 99%

Mother's Expectations for Adolescent Children: A Comparison Between Families of Adolescents with Disabilities and Those with Non-labeled Adolescents

Lehmann¹,

Baker²

1994

Career Development for Exceptional Individuals

View full text Add to dashboard Cite

“…Years ago Birenbaum (1971) suggested that family coping becomes more difficult as the child ages and as families face support network shrinkage over time, supporting the notion of the 'wear and tear' hypothesis. However, by contrast, the 'adaptation' hypothesis suggests that people adjust to caregiving over time, and acquire skills and competencies which help them to cope better, even when their own support networks may indeed be more depleted (Seltzer & Krauss 1989;Grant 1993).…”

Section: Stresses Of Caringmentioning

confidence: 93%

Views and Experiences of People with Intellectual Disabilities and Their Families. (2) The Family Perspective

Grant

Ramcharan

2001

Research Intellect Disabil

View full text Add to dashboard Cite

The aim of the present paper is to distil findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. The present paper traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.

show abstract

“…Numerous authors have documented management behaviours associated with normalization (Anderson 1981, Barsch 1968, Benoliel 1975, Birrenbaum 1970, 1971, Darling 1979, Davis 1963, Hewett et al 1970, Holoday 1978, Krulick 1980, Roskies 1972, Quint 1969, Wortis & Margolies 1955, Voysey 1972, 1975). Krulik's and Anderson's research is specifically relevant.…”

mentioning

confidence: 99%

The process of parenting a child with a disability: normalization through accommodations

Deatrick

Knafl

Walsh

1988

Journal of Advanced Nursing

View full text Add to dashboard Cite

Professionals commonly advise parents of disabled children to raise their children as they would children who were not disabled. The purpose of this study was to describe the management styles used by the parents of 15 children and adolescents with osteogenesis imperfecta. In particular, the behavioural strategies related to providing a normalized existence for the child and the family are discussed. Sources of threats, validation, and support for the process are also described. The convenience sample of parents was selected from the appointment calendar of a specialty clinic in a midwestern philanthropic, paediatric-orthopaedic referral hospital. Qualitative interview data were gathered using a semi-structured guide. During interviews parents described behavioural strategies they used to normalize their child's and family life. Data were analysed using a previously developed framework of normalization. This work of normalization was described as a constant process of active accommodation to the changing physical and emotional needs of the child or adolescent. It was initiated out of practical necessity at birth as a conscious solution to problems with activities of daily living, relating to the child, and engaging in family activities. Certain events constituted 'threats' to normalization and served as an impetus for parents to alter behavioural strategies. Implications for clinical practice and research are explicated.

show abstract

The Mentally Retarded Child in the Home and the Family Cycle

Cited by 52 publications

References 0 publications

Mother's Expectations for Adolescent Children: A Comparison Between Families of Adolescents with Disabilities and Those with Non-labeled Adolescents

Mother's Expectations for Adolescent Children: A Comparison Between Families of Adolescents with Disabilities and Those with Non-labeled Adolescents

Views and Experiences of People with Intellectual Disabilities and Their Families. (2) The Family Perspective

The process of parenting a child with a disability: normalization through accommodations

Contact Info

Product

Resources

About