The Medical Home: Relationships With Family Functioning for Children With and Without Special Health Care Needs

Boudreau, Alexy D. Arauz; Cleave, Jeanne M Van; Gnanasekaran, Sangeeth; Kurowski, Daniel; Kuhlthau, Karen

doi:10.1016/j.acap.2012.06.001

Cited by 19 publications

(16 citation statements)

References 31 publications

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“…family‐centred care, shared care plans, timely referrals, care coordination activities and centralized information) were associated with better family functioning through greater access to needed resources and streamlined services, thereby reducing time and financial burdens, affording fewer childcare issues and minimizing work loss (Arauz Boudreau et al . ; Cohen et al . ; Drummond et al .…”

Section: Resultsmentioning

confidence: 99%

“…Out of these studies, four analysed data from national surveys to examine outcomes associated with medical home access (Arauz Boudreau et al . ; Drummond et al . ; Miller et al .…”

Section: Resultsmentioning

confidence: 99%

“…With respect to levels of evidence captured, studies were predominantly quasi‐experimental or non‐experimental, with small to medium sample sizes noted; with the exception of national level surveys with vast numbers of CSHCN families (Arauz Boudreau et al . ; Drummond et al . ; Miller et al .…”

Section: Discussionmentioning

confidence: 99%

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Children with medical complexity: a scoping review of interventions to support caregiver stress

Edelstein

Schippke

Sheffe

et al. 2016

Child

121

111

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Positive findings of reductions in caregiver stress were noted within an emerging body of evidence on effective interventions for families of children with medical complexity. A commonality across domains was a significant focus on streamlining services and reducing the burden of care related to varied pressures experienced, including time, finances, care needs and service access, among others. There was non-conclusive evidence however around which of the six identified intervention domains or combination thereof are most effective for reducing stress. These promising findings demonstrate that stress reduction is possible with the right support and that multiple interventions may be effective in reducing burdens of care experienced by families of children with medical complexity.

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Section: Resultsmentioning

confidence: 99%

“…Out of these studies, four analysed data from national surveys to examine outcomes associated with medical home access (Arauz Boudreau et al . ; Drummond et al . ; Miller et al .…”

Section: Resultsmentioning

confidence: 99%

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Children with medical complexity: a scoping review of interventions to support caregiver stress

Edelstein

Schippke

Sheffe

et al. 2016

Child

121

111

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“…), fewer missed school days (Arauz Boudreau et al. ; Katz et al. ), and better parental coping with the stress of caring for their child (Arauz Boudreau et al.…”

mentioning

confidence: 99%

“…), and better parental coping with the stress of caring for their child (Arauz Boudreau et al. ; Drummond, Looman, and Phillips ). Research has also established associations between medical homes and lower risks of several types of family financial burden: out‐of‐pocket medical costs, additional income needed, and other financial problems (Kuhlthau et al.…”

mentioning

confidence: 99%

Which Components of Medical Homes Reduce the Time Burden on Families of Children with Special Health Care Needs?

Miller¹,

Nugent

Russell

2014

Health Services Research

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Objectives. To examine which components of medical homes affect time families spend arranging/coordinating health care for their children with special health care needs (CSHCNs) and providing health care at home. Data Sources. [2009][2010] National Survey of Children with Special Health Care Needs (NS-CSHCN), a population-based survey of 40,242 CSHCNs. Study Design. NS-CSHCN is a cross-sectional, observational study. We used generalized ordered logistic regression, testing for nonproportional odds in the associations between each of five medical home components and time burden, controlling for insurance, child health, and sociodemographics. Data Collection/Extraction Methods. Medical home components were collected using Child and Adolescent Health Measurement Initiative definitions. Principal Findings. Family-centered care, care coordination, and obtaining needed referrals were associated with 15-32 percent lower odds of time burdens arranging/ coordinating and 16-19 percent lower odds providing health care. All five components together were associated with lower odds of time burdens, with greater reductions for higher burdens providing care. Conclusions. Three of the five medical home components were associated with lower family time burdens arranging/coordinating and providing health care for children with chronic conditions. If the 55 percent of CSHCNs lacking medical homes had one, the share of families with time burdens arranging care could be reduced by 13 percent.

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Canadian Nurse Practitioner-Led Pediatric Rehabilitation Complex Care Program

Brandon

Diaczun

2023

Worldwide Successful Pediatric Nurse-Led Models of Care

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The Medical Home: Relationships With Family Functioning for Children With and Without Special Health Care Needs

Cited by 19 publications

References 31 publications

Children with medical complexity: a scoping review of interventions to support caregiver stress

Children with medical complexity: a scoping review of interventions to support caregiver stress

Which Components of Medical Homes Reduce the Time Burden on Families of Children with Special Health Care Needs?

Canadian Nurse Practitioner-Led Pediatric Rehabilitation Complex Care Program

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