The measurement of burden of care in serious mental illness: A qualitative review

Vella, Shae-Leigh C

doi:10.1177/0004867412468494

Cited by 37 publications

(28 citation statements)

References 41 publications

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“…After providing informed consent, participants completed an online survey anonymously, completing a set of questions relating to demographics, their relationship with the supportee, the support they provide and the presence of other sources of support. The Experience of Caregiving Inventory (ECI) and the Involvement Evaluation Questionnaire (IEQ) have been identified as suitable scales for measuring the consequences of caregiving (Vella & Pai, 2013).…”

Section: Procedures and Materialsmentioning

confidence: 99%

Supporting a friend, housemate or partner with mental health difficulties: The student experience

Byrom

2017

Early Intervention Psych

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Aims When experiencing mental health difficulties, university students turn to their friends for support. This study assessed the consequences of caregiving among a university sample, identifying predictors of caregiving burden among students. Methods A total of 79 students with experience of supporting a friend with mental health difficulties were recruited through a UK student mental health charity to complete an online survey. Alongside qualitative data, the online survey used the Experience of Caregiving Inventory and the Involvement Evaluation Questionnaire as measures of the consequences of caregiving. Results Students supporting friends, housemates or partners were found to experience significant consequences of caregiving. Frequency of face‐to‐face contact and duration of illness predicted more negative consequences of caregiving, but these relationships were not straightforward. The presence and intensity of professional support did not influence the experience of caregiving. Conclusions The study suggests that the impact of supporting friends with mental health difficulties is not insubstantial for students. Broadening the network of informal social support may help improve the experience for students supporting a friend, but currently, contact with professional services appears to have a limited effect.

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Section: Procedures and Materialsmentioning

confidence: 99%

Supporting a friend, housemate or partner with mental health difficulties: The student experience

Byrom

2017

Early Intervention Psych

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“…Both trauma exposure and the experience of adverse childhood experiences, including loss, abuse, and neglect, are strong predictors of depression (Kendler, Kessler, Neale, Heath, & Eaves, 1993; Kim et al, 2013; Sen, Exworthy, & Forrester, 2014; Tang, Liu, Liu, Xue, & Zhang, 2014; Young, Harford, Kinder, & Savell, 2007). Interpersonal traumas or adult adversities contribute to increased depression and other mental health problems, including the adult adversities or trauma of intimate partner violence (Devries et al, 2013; Farris, Zvolensky, Beckham, Vujanovic, & Schmidt, 2014; Lagdon, Armour, & Stringer, 2014) and the chronic stress of caregiving for family members with mental illness or substance abuse problems (Jiang, Callinan, Laslett, & Room, 2015; Kate, Grover, Kulhara, & Nehra, 2013; Priestley & McPherson, 2015; Vella & Pai, 2013). There are complex and interdependent relationships between adversities and trauma across the developmental lifespan.…”

Section: Introductionmentioning

confidence: 99%

Life adversity is associated with smoking relapse after a quit attempt

Lemieux

Olson

Nakajima

et al. 2016

Addictive Behaviors

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Multiple cross-sectional studies have linked adverse childhood events and adult adversities to current smoking, lifetime smoking, and former smoking. To date, however, there have been no direct observation studies assessing the influence of adversities on smoking relapse. We prospectively followed 123 participants, 86 of whom were habitual smokers, from pre-quit ad libitum smoking to four weeks post quit. Thirty-seven non-smokers were also tested in parallel as a comparison group. Subjects provided biological samples for confirmation of abstinence status and self-report history of adversities such as abuse, neglect, family dysfunction, incarceration, and child-parent separation. They also completed mood and smoking withdrawal symptom measures. The results indicated that within non-smokers and smokers who relapsed within the first month of a quit attempt, but not abstainers, females had significantly higher adversity scores than males. Cigarette craving, which was independent from depressive affect, increased for low adversity participants, but not those with no adversity or high adversity. These results demonstrate that sex and relapse status interact to predict adversity and that craving for nicotine may be an important additional mediator of relapse. These results add further support to the previous cross-sectional evidence of an adversity and smoking relationship. Further studies to clarify how adversity complicates smoking cessation and impacts smoking behaviors are warranted.

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“…Schizophrenia is a debilitating mental illness, and patients may experience hallucinations, delusions, disorganized thought patterns, and behavior with impaired occupation or social functioning (Villa & Pai, 2013). Schizophrenia tends to be a chronic, lifelong illness and creates a considerable socioeconomic burden due to pharmacotherapy (Zeidler, Slawik, Fleischmann, & Greiner, 2012).…”

Section: Introductionmentioning

confidence: 99%

Effect of an art brut therapy program called go beyond the schizophrenia (GBTS) on prison inmates with schizophrenia in mainland China—A randomized, longitudinal, and controlled trial

Qiu

Liang

et al. 2017

Clin Psychology and Psychoth

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Art brut therapy can reduce emotional distress and negative psychiatric symptoms among Chinese inmates. Arts brut therapy can enhance Chinese inmates' compliance with rules, socialization with peers, compliance with medicines, and regular sleeping patterns. Arts brut therapy in conjunction with medication is highly recommended for recovery of Chinese inmates with schizophrenia, especially for patients with negative symptoms.

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The measurement of burden of care in serious mental illness: A qualitative review

Abstract: It was apparent that many of the measures lacked a strong theoretical basis and sound psychometric properties. Further, some of the measures lacked utility, feasibility and specificity. The article concludes with recommendations for future research.

Cited by 37 publications

References 41 publications

Supporting a friend, housemate or partner with mental health difficulties: The student experience

Supporting a friend, housemate or partner with mental health difficulties: The student experience

Life adversity is associated with smoking relapse after a quit attempt

Effect of an art brut therapy program called go beyond the schizophrenia (GBTS) on prison inmates with schizophrenia in mainland China—A randomized, longitudinal, and controlled trial

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