The meaningfulness of time; Narratives of cancer among chronically ill older adults

Hannum, Susan M.; Rubinstein, Robert

doi:10.1016/j.jaging.2015.12.006

Cited by 26 publications

(26 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Closely aligned with this work, Charmaz (1983: 168) suggests that progressive functional and social losses with chronic illness can catalyse a 'crumbling away' of former self-images, whilst also undermining opportunities to develop equally valued alternatives. The concept of biographical disruption has been applied to people's experiences of a multitude of acute and chronic conditions, including rheumatoid arthritis, sensory impairment, multiple sclerosis, stroke and cancer (for example, Dyck, 1995;Leve€ alahti et al, 2007;Roberts and Clarke, 2009;Grassman et al, 2012;Hannum and Rubinstein, 2016).…”

Section: Biographical Disruptionmentioning

confidence: 99%

Ménière's disease and biographical disruption: Where family transitions collide

Bell

Tyrrell

Phoenix

2016

Social Science & Medicine

View full text Add to dashboard Cite

People's lived experiences of chronic illness have garnered increasing research interest over the last 30-40 years, with studies recognising the disruptive influence of illness onset and progression, both to people's everyday lives and to their biographical selves. We extend this body of work, drawing on the experiences of people living with Ménière's disease; a long-term progressive vestibular disorder characterised by unpredictable episodes of debilitating vertigo, tinnitus and permanent sensorineural hearing loss. In response to calls for more critical examination of the wider biographical contexts in which chronic illnesses are encountered, we draw on 28 in-depth narrative interviews with Ménière's patients and their family members to discuss how personal chronic illness experiences may be closely entwined with, and deeply shaped by, the life transitions (illness-related and otherwise) of 'linked others'. Interviews were conducted in south west England from January to June 2015. Focusing on intersecting transitions of parenthood, caregiving and retirement, we explore how and why familial relationships can both facilitate and hinder adaptation to a lifetime of chronically disrupted normalities, contributing to fluctuating experiences of 'cherished time', 'anomalous time' and 'turbulent time'. In so doing, we suggest that the onset and progression of chronic illness could usefully be re-conceptualised as one of many 'biographical oscillations' encountered during the life course that serve to re-route us between continually shifting life trajectories. In recognising life's dynamism and challenging the identity-limiting and self-damaging nature of entrenched cultural life course constructions, we suggest value in recognising alternative ways of 'living well' when negotiating the wide-ranging biographical maps that life can follow.

show abstract

Section: Biographical Disruptionmentioning

confidence: 99%

Ménière's disease and biographical disruption: Where family transitions collide

Bell

Tyrrell

Phoenix

2016

Social Science & Medicine

View full text Add to dashboard Cite

show abstract

“…Dicha reconciliación entre tiempo-enfermedad probablemente ocurra debido a que el diagnóstico de cáncer cambia significativamente la forma en que paciente y cuidador piensan acerca de sí mismos y de sus vidas (8,6,35).…”

Section: Consideraciones Finalesunclassified

“…Tiempo fragmentado en pacientes con cáncer: hacia un mayor entendimiento del impacto de la enfermedad Como resultado de un estudio previo en pacientes con cáncer, se evidencia que un elemento crítico que posiblemente emerge consistentemente en respuesta a la enfermedad es la forma en que el tiempo se fragmenta (6). Una hipótesis que da cuenta de ello plantea que es factible que el tiempo sea fragmentado por el paciente y, en algunos casos, por el cuidador debido a la carga emocional y física del cáncer, junto con la incertidumbre causada por la experiencia individual de la enfermedad.…”

Section: La Experiencia De La Enfermedad Y Su Impacto En La Percepcióunclassified

“…En estos componentes del tiempo subjetivo también se ha encontrado que corresponden con períodos similares en los que los pacientes están tratando enfermedades crónicas preexistentes, ya sea a través de visitas médicas, de horarios adicionales, de control de síntomas o de llamadas telefónicas frecuentes (6,14).…”

Section: La Experiencia De La Enfermedad Y Su Impacto En La Percepcióunclassified

“…Para muchos pacientes con cáncer, se sabe, el tiempo antes de la enfermedad se refiere al pasado recordado (tiempo pasado), el tiempo marcado por una enfermedad crónica y el tratamiento se conoce como el presente percibido (tiempo de enfermedad) y el futuro como representación de lo que aún está por venir se asume como el futuro imaginado (tiempo futuro) (6). En este sentido, indagar sobre cómo el cáncer impacta la calidad de vida, relacionada con la salud tanto física como mental, debería incluir el estudio de la percepción del tiempo tanto en pacientes como en cuidadores, siendo claro que las dimensiones del tiempo son centrales para las experiencias individuales de la enfermedad.…”

Section: La Experiencia De La Enfermedad Y Su Impacto En La Percepcióunclassified

See 2 more Smart Citations

El tiempo en el cuidador del paciente con cáncer, un abordaje cualitativo

Camargo-Sánchez

Pachón-Rodríguez²,

Azevedo

et al. 2018

Rev. cienc. cuidad.

View full text Add to dashboard Cite

ResumenEl tiempo, como magnitud física en su concepción más clásica, es para el ser humano una construcción y una representación mental subjetiva que moldea la percepción del mismo en relación a su velocidad. De ahí que es susceptible de variación de acuerdo a una multiplicidad de conceptos, incluyendo creencias, el propio estado de ánimo y la percepción de salud física y mental. Igualmente, el pasado, el futuro y el presente son representaciones subjetivas que dependen de factores como la percepción de tiempo, la cultura y el tiempo biológico de cada persona. Basado en lo anterior, el objetivo del presente artículo fue refl exionar sobre el concepto de tiempo y su importancia para el cuidador del paciente con cáncer, durante las fases de la enfermedad. Para lograr dicho objetivo se planteó la realización de una investigación de tipo cualitativo a través de la narrativa, el relato biográfi co y la lectura intertextual, apoyándose del libro "Los Sueños de Einstein". Se encontró que no existe una única forma de defi nir el tiempo como una medida rígida, lineal y secuencial, sino que cada persona defi ne y vive su propio concepto de tiempo a través de su propia experiencia e historia temporal, pudiendo ser un determinante, los procesos de salud-enfermedad. Se concluye, entonces, que la percepción del tiempo se construye por medio de la interacción del tiempo externo, los sucesos a lo largo de la vida y el tiempo interno que permite al ser humano adaptarse y afrontar los desafíos cotidianos Palabras Clave: Tiempo, Cuidadores, Enfermedad, Percepción. AbstractThe time as a physical magnitude in its most classical conception, is for the human being, a construction and a subjective mental representation that molds its perception related to its velocity. From there it is susceptible to variation according to the multiplicity of concepts, including beliefs, the state of mind and the perception of physical and mental health. Similarly, the past, the future and the present are subjective representations that depend on factors such as time perception, culture and biological time of each person. Based on this, the objective of this article was to refl ect on the concept of time and its importance for the caregiver of a patient diagnosed with cancer, during the phases of the disease. To accomplish this objective a qualitative research was performed though the narrative, the bibliographical story, and the intertextual reading, relying on the book "The Dreams of Einstein". It was found that a unique form to measure time as a rigid, lineal, and sequential measure does not exist, but that each person defines and lives its own concept of time throughout their own experiences and temporal history, with the processes of health-disease being a possible determinant. It is concluded, then, that the perception of time is constructed through the interaction of external time, the events throughout life and the internal time that allows the human being to adapt and face the daily challenges.Keywords: Time, Caregivers, Disease, Perception Re...

show abstract

Self‐management in older people living with cancer and multi‐morbidity: A systematic review and synthesis of qualitative studies

et al. 2020

View full text Add to dashboard Cite

Objective: Many older people with cancer live with multimorbidity. Little is understood about the cumulative impact of old age, cancer and multimorbidity on selfmanagement. This qualitative systematic review and synthesis aimed to identify what influences self-management from the perspective of older adults living with cancer and multimorbidity. Methods: Six databases were systematically searched for primary qualitative research reporting older adults' experiences of living with cancer and multimorbidity (eg, Medline, Embase, and CINAHL). A thematic synthesis was guided by Shippee's model of cumulative complexity. Text labelled as results in the included papers was treated as data. Results: Twenty-eight studies were included. While the included studies varied in their focus, our analysis highlighted a number of important themes consistent across the studies. Health conditions with the greatest negative impact on independent living assumed the greatest importance, sometimes meaning their cancer was a low priority. Self-management practices seen as likely to interfere with quality of life were deprioritized unless viewed as necessary to maintain independence. When burden outweighed capacity, people were reluctant to ask for help from others in their social network. The contribution of formal healthcare services to supporting self-management was relatively peripheral. Conclusions: Old age and multimorbidity together may complicate self-management after cancer, threatening health and well-being, creating burden and diminishing capacity. Older adults prioritized self-management practices they considered most likely to enable them to continue to live independently. The protocol was registered with Prospero (CRD42018107272).

show abstract

The meaningfulness of time; Narratives of cancer among chronically ill older adults

Cited by 26 publications

References 39 publications

Ménière's disease and biographical disruption: Where family transitions collide

Ménière's disease and biographical disruption: Where family transitions collide

El tiempo en el cuidador del paciente con cáncer, un abordaje cualitativo

Self‐management in older people living with cancer and multi‐morbidity: A systematic review and synthesis of qualitative studies

Contact Info

Product

Resources

About