The management of cystic fibrosis

Dack, K.; Cunha, Ana Lúcia Pereira da; Madge, Su

doi:10.12968/pnur.2007.18.9.27155

Practice Nursing

2007

DOI: 10.12968/pnur.2007.18.9.27155

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The management of cystic fibrosis

K. Dack¹,

Ana Lúcia Pereira da Cunha²,

Su Madge³

Abstract: The management of cystic fibrosis is often difficult for the 7500 children and adults living with the disease. As K Dack, A Cunha and S Madge explain, the practice nurse can play a crucial role in the provision of support for patients

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Cited by 2 publications

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Transition to adult care for young people with long-term conditions

Begley

2013

Br J Nurs

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This study aimed to clarify how the transition from child to adult healthcare is managed in young people with two long-term conditions in the Republic of Ireland.A postal survey using an adapted questionnaire (Flume et al, 2001) with closed and open questions was sent to all physicians and nurse specialists (n=132) caring for children with cystic fibrosis (CF) and insulin dependent diabetes mellitus (IDDM)in the Republic of Ireland. Data was analysed using SPSS 16.0 for Windows and the open-ended qualitative questions were analysed using content analysis. Results showed that transition management varied depending on the service, location and resources available. Comparisons were made between CF and IDDM data. Age was found to be the criterion most commonly used to determine when to transition in all services. Healthcare professionals said transition management needed to be improved. Some services managed transition following recommended guidelines.However, the management of transition nationally needs to be more streamlined.This includes a devised cohesive strategy between adult and young people's services.

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Transition to adult care for young people with long-term conditions

Begley

2013

Br J Nurs

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Theory to reality: the role of the transition nurse coordinator

Kelly¹

2014

Br J Nurs

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Transition from children's to adult services has long been recognised as challenging. Yet many young people and their families continue to have poor experiences, with a lack of collaboration and communication between the different agencies involved in the transition process. This article highlights the complexities of transition and how it is addressed for young people with complex health needs in Hertfordshire with a dedicated transition nurse coordinator providing support for the young people on the caseload; bridging the gaps between children's and adult services; and providing continuity until the young person is established in adult services.

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The management of cystic fibrosis

Abstract: The management of cystic fibrosis is often difficult for the 7500 children and adults living with the disease. As K Dack, A Cunha and S Madge explain, the practice nurse can play a crucial role in the provision of support for patients

Cited by 2 publications

References 10 publications

Transition to adult care for young people with long-term conditions

Transition to adult care for young people with long-term conditions

Theory to reality: the role of the transition nurse coordinator

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