The long-term preservation of identifiable personal data: a comparative archival perspective on privacy regulatory models in the European Union, Australia, Canada and the United States

Abstract

This article analyses the extent to which archival exemptions for historical, scientific and statistical research in privacy legislation support preservation in selected European Union countries, and comparable aspects of Australian, American and Canadian law within a legal, ethical and digital archival perspective. The authors recommend that the further processing of personal data under data protection law be given a wider scope of interpretation for archival preservation purposes in both the public and private sector, coupled with the use of researcher and archival codes in relation to access to personal data. They also recommend early appraisal and integration of privacy with freedom of information and archival regimes.

Personal health records: a new type of electronic medical record

“…In 1997, Berg and Bowker (1997) authored a sociological examination of medical records as the sociomaterial locus of both the body and the body politic, noting the ways in which medical records and the body evolve together. In the 2000s, Iacovino and colleagues wrote of recordkeeping, ethics and legal principles (Iacovino, 2004;Iacovino and Reed, 2008;Iacovino and Todd, 2007). Bache et al (2013) discussed the automatic generation of provenance records for clinical data in support of reuse, while Stanberry (2011) examined the growing use of EMRs in the USA.…”

International Research on Permanent Authentic Records in Electronic Systems (InterPARES) 2: Experiential, Interactive and Dynamic Records

“…Available at http://www.interpares.org/display_file.cfm?doc=ip2(policy)privacy_report.pdf. The main contributing papers are LiviaIacovino and Malcolm Todd (2007), "The Long-Term Preservation of Identifiable Personal Data: A Comparative Archival Perspective on Privacy Regulatory Models in the European Union, Australia, Canada and the United States," Archival Science 7(1): 107-127; and MalcolmTodd (2006), "Power, Identity, Integrity, Authenticity, and the Archives: A Comparative Study of the Application of Archival Methodologies to Contemporary Privacy," Archivaria 61 (Spring): 181-214.…”