The lived experiences of young people (13–16 years) with Type 1 diabetes mellitus and their parents – a qualitative phenomenological study

Spencer, Joy; Cooper, Helen; Milton, Beth

doi:10.1111/dme.12021

Cited by 59 publications

(62 citation statements)

References 33 publications

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“…The behaviours previously identified as perceived as nagging (Luyckx et al, 2013;Spencer et al, 2013) align closely with those detailed by the DSSQ-Friends as supportive. Previous research has highlighted that seemingly innocuous behaviours have been interpreted as intrusive and an accusation of incapability by adolescents when delivered by parents .…”

Section: Hypothesis 3: Glycaemic Controlsupporting

confidence: 59%

An analysis of the relationships between peer support and diabetes outcomes in adolescents with type 1 diabetes

Doe

2016

J Health Psychol

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1BFThe present study explores the relationships between the various subtypes of global and diabetes-specific peer support and health outcomes in adolescents with type 1 diabetes.Global peer support significantly predicted self-care and HbA1c, though no associations were identified for diabetes-specific support overall, nor its factors. When comparing participants with above or below average glycaemic control, significantly greater diabetes-specific support was reported in those with poorer control. It is suggested that this may be related to feelings of nagging, in which diabetes-specific support is perceived as harassment.

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Section: Hypothesis 3: Glycaemic Controlsupporting

confidence: 59%

An analysis of the relationships between peer support and diabetes outcomes in adolescents with type 1 diabetes

Doe

2016

J Health Psychol

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“…This can infl uence negatively the adaptation of the adolescent in relation to diabetes, cooperating or not with the disease control [9][10][11][12][13][14][15] . The family then worry in an exaggerated manner, and to convey feelings of anxiety and fear in relation to immediate and late complications of the disease, not only when the adolescent doesn't follow treatment properly, causing the same feel and think the same way 22 .…”

Section: "The Complications and Some Injury In Some Organ Scare Me" (mentioning

confidence: 99%

“…Health professionals must recognize their abilities and have the duty to support and educate the adolescents and family to selfcare, to facilitate proper treatment 15 . It is evidenced that the stress of family that comes from the complex treatment of DM1 can generate a bad glycemic control in adolescence and, so if you see that the family must be ready to support and assist in adhesion of the 16 treatment.…”

Section: Introductionmentioning

confidence: 99%

Problems with adherence to treatment among adolescents with diabetes mellitus type 1

Pires¹,

Bani²,

Lima³

et al. 2016

J. Hum. Growth Dev.

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Introduction: Diabetes Mellitus type 1 (DM1) is a chronic degenerative disease with high impact on the lives of children and adolescents. The DM1 affects mainly children and young adults under 30 years old, with a predominance from 10 to 14 years old. As a chronic disease, involves changes in daily habits, being following the recommendations of health professionals one of the main conducts to achieve such changes, however, this follow-up is not easy and can directly infl uence the glycemic control and lead to complications. Objective: Identify the diffi culties of adolescent with DM1 to treatment adherence. The recommendations of this treatment are related to the blood glucose measurements, using a diet plan and insulin application. Methods: The study included 15 adolescent with DM1, of both genders, aged 10-19 years participating in a multidisciplinary group at an outpatient unit in São Paulo, Brazil, aged 13,93 ± 2.4 years, diagnosed with DM1 with an average time of 4.5 years. The following evaluations were employed:1) individual interviews for identifi cation and clinical characterization; 2) characterization of cardiovascular and metabolic parameters; 2) anthropometric assessment and 4) application of a questionnaire with questions about problems of blood glucose measurements, diet plan and insulin application. Data collection was performed before medical appointment with an endocrinologist in a hospital in São Paulo state. Results: The identifi ed diffi culties and cardio-metabolic variables showed the adolescents presented uncontrolled blood glucose levels, doing the rotation of insulin incompletely and face many daily difficulties to perform the appropriate treatment, being the most frequently reported the insulin application and proper nutrition. Conclusion: Adolescents with type 1 diabetes presented diffi culties in adherence to treatment, mainly o follow insulin treatment and proposals for changes in eating habits by following a diet. It is necessary that health professionals offer strategies and orientation to these individuals to improve the handling of their diffi culties that directly affect the course of the disease and leave them more susceptible to developing complications.

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“…Despite constantly striving for normalcy, children and young people often report feeling different from their peers (Spencer, Cooper, & Milton, 2013;Taylor et al, 2008). Successful management of long term conditions in childhood and adolescence can significantly impact on condition outcomes in adulthood (Kirk, Beatty, Callery, Milnes, & Pryjmachuk, 2012), however, in an effort to avoid being seen as different by their peers, young people may engage in passive coping strategies such as withdrawal, avoidance of activities and non-adherence to treatment regimens (Gauntlett-Gilbert & Connell, 2012;Smith, Taylor, Newbould, & Keady, 2008).…”

Section: Introductionmentioning

confidence: 99%

Striving to Live a Normal Life: A Review of Children and Young People’s Experience of Feeling Different when Living with a Long Term Condition

Lambert

Keogh

2015

Journal of Pediatric Nursing

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The lived experiences of young people (13–16 years) with Type 1 diabetes mellitus and their parents – a qualitative phenomenological study

Cited by 59 publications

References 33 publications

An analysis of the relationships between peer support and diabetes outcomes in adolescents with type 1 diabetes

An analysis of the relationships between peer support and diabetes outcomes in adolescents with type 1 diabetes

Problems with adherence to treatment among adolescents with diabetes mellitus type 1

Striving to Live a Normal Life: A Review of Children and Young People’s Experience of Feeling Different when Living with a Long Term Condition

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