The lived experience of psychosis in Nicaragua: a qualitative examination of the views of service users

Lyons, Minna; Evison, Patrick; Berrios, Roberto; Castro, Sara; Brooks, Helen

doi:10.1080/09638237.2020.1844871

Cited by 4 publications

(3 citation statements)

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“…Indeed, normalising experiences do not only reduce internalised stigma, but can also be used to combat stigma from others (French et al, 2011). This could have particular relevance to participants in the current study who highlighted the high levels of societal stigma within Nicaragua (see also Lyons et al, 2020). Studies on service user experiences of stigma, especially in the LMIC context, are conspicuous in their absence (Thornicroft et al, 2016), and it is unclear what approach (e.g.…”

Section: Discussionmentioning

confidence: 84%

“…In total, ten service users participated in the research (six men, four women). They were a subsample from a group of 28 (mean age = 41.80 years, mean time since diagnosis = 11.90 years) who took part in focus groups around lived experience of psychosis in Nicaragua (reported in Lyons et al, 2020). Participants from the focus group study were invited to take part in the current study, and the recruitment stopped when ten people had expressed their interest.…”

Section: Participants and Recruitmentmentioning

confidence: 99%

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A qualitative exploration of the acceptability of a cognitive behavioural therapy self-help book for people with psychosis in Nicaragua

et al. 2021

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Background: Cognitive Behavioural Therapy (CBT) self-help interventions have become a popular tool in High-Income Countries (HIC) to support people living with psychosis. There is limited research of this in Low-and Middle-Income Country (LMIC) contexts. We report findings of a qualitative investigation of a self-help book for psychosis in Nicaragua in Central America. Methods: Ten service users who self-identified as having psychosis were recruited from a mental health non-governmental organisation (NGO). Participants were given a Spanish version of a popular self-help book developed in the UK. They had four weeks to familiarise themselves with the book. Following this, we asked participants about their experiences of the book via an open ended questionnaire and a focus group discussion. Results: We conducted an inductive content analysis on the data. Evaluations of the book were positive. The book was considered easy to understand. The exercises were useful for coping with symptoms, as well as for recognising and managing relapse. Case studies were perceived useful in terms of reducing stigma and promoting self-acceptance. Conclusion:The data highlight potential acceptability of CBT self-help books in the Nicaraguan context. We make recommendations for further research and evaluation to build on this signal of acceptability.

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Section: Discussionmentioning

confidence: 84%

Section: Participants and Recruitmentmentioning

confidence: 99%

A qualitative exploration of the acceptability of a cognitive behavioural therapy self-help book for people with psychosis in Nicaragua

et al. 2021

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“…Tee et al [31] combined the perspectives of patients, carers and professionals to identify concrete points to consider while developing an intervention aimed at reducing social isolation in people with psychosis. Cultural aspects are also addressed through qualitative investigation, as illustrated by the study by Lyons et al [32] exploring the lived experience of psychosis in Nicaragua underlining local aspects such as religious and magical forces or community support networks.…”

Section: Qualitative Researchmentioning

confidence: 99%

Lived experience of psychosis: challenges and perspectives for research and care

Sibéoni

2022

Current Opinion in Psychiatry

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Purpose of reviewThere is currently a recognition of the first-personal knowledge of people with lived experience of schizophrenia as an epistemic privilege that can influence and improve the quality of research and care. This review aims to identify and better understand the actual challenges and perspectives of this field.Recent findingsTwo main themes are present in the recent literature: first, the direct involvement of persons with lived experience of psychosis both in research (first person accounts, lived experience and participatory research) and care with the development of new professional positions such as expert patients and peer workers; second, the field of research on lived experience of psychosis based mostly on phenomenological psychiatry and qualitative research.SummaryBoth involvement of persons with lived experience in care and research, and research on lived experience of psychosis have direct impact and outcomes such as leading to a better understanding of psychotic phenomena and to reduced stigma and providing more person-centered and holistic care and better social support. This review also highlights the conceptual and ethical challenges to overcome, especially the risk of tokenism.

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"COVID-19 spreads round the planet, and so do paranoid thoughts". A qualitative investigation into personal experiences of psychosis during the COVID-19 pandemic

et al. 2021

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The COVID-19 pandemic is likely to affect people who have had previous experiences of psychosis – either positively or negatively. A research gap exists in looking at qualitative experiences of the pandemic. In the present study, we address the research gap in those who self-identified as having psychosis via Reddit discussion forum posts, collecting data from a popular online community. Sixty-five posts were analysed using inductive thematic analysis. Five overarching themes were identifie; declining mental health, changed psychosis experiences, personal coping experiences, social connectedness and disconnectedness, and COVID-19 as a metaphor. The data show that there are varied experiences associated with the pandemic. People who have experiences of psychosis do not only have vulnerabilities but may also perceive themselves as having strengths that allow them to cope better.

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The lived experience of psychosis in Nicaragua: a qualitative examination of the views of service users

Cited by 4 publications

References 46 publications

A qualitative exploration of the acceptability of a cognitive behavioural therapy self-help book for people with psychosis in Nicaragua

A qualitative exploration of the acceptability of a cognitive behavioural therapy self-help book for people with psychosis in Nicaragua

Lived experience of psychosis: challenges and perspectives for research and care

"COVID-19 spreads round the planet, and so do paranoid thoughts". A qualitative investigation into personal experiences of psychosis during the COVID-19 pandemic

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