The lived experience of female academics with long-term conditions impacting on energy levels and/or cognitive function

Brewer, Gayle

doi:10.1080/09687599.2023.2287412

Cited by 1 publication

(1 citation statement)

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“…26 The concept of ELC arose from research led by disabled people within and outside of the UK academy 25 26 and thus represents an example of the potential value of 'disability standpoint' in contributing to health and healthcare-related research gaps. Nevertheless, there is very little peer-reviewed academic literature explicitly focusing on ELC (for recent exceptions see ref [32][33][34]. To our knowledge, and motivating this paper, there is no research exploring academic exclusions in the ELC arena through a lens of epistemic injustice.…”

Section: Extended Essaymentioning

confidence: 99%

Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research

Hunt,

Blease

2024

J Med Ethics

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People with disabilities are subject to multiple forms of health-related and wider social disparities; carefully focused research is required to inform more inclusive, safe and effective healthcare practice and policy. Through lived experience, disabled people are well positioned to identify and persistently pursue problems and opportunities within existing health provisions that may be overlooked by a largely non-disabled research community. Thus, the academy can play an important role in shining a light on the perspectives and insights from within the disability community, and combined with policy decisions, these perspectives and insights have a better opportunity to become integrated into the fabric of public life, within healthcare and beyond. However, despite the potential benefits that could be yielded by greater inclusivity, in this paper we describe barriers within the UK academy confronting disabled people who wish to embark on health research. We do this by drawing on published findings, and via the lived experience of the first author, who has struggled for over 3 years to find an accessible PhD programme as a person with energy limiting conditions who is largely confined to the home in the UK. First, we situate the discussion in the wider perspective of epistemic injustice in health research. Second, we consider evidence of epistemic injustice among disabled researchers, focusing primarily on what philosophers Kidd and Carel (2017, p 184) describe as ‘strategies of exclusion’. Third, we offer recommendations for overcoming these barriers to improve the pipeline of researchers with disabilities in the academy.

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Section: Extended Essaymentioning

confidence: 99%