The Life Journeys of Adults with Intellectual and Developmental Disabilities: Implications for a New Model of Holistic Supports

Neuman, Ran

doi:10.1080/01488376.2020.1802396

Cited by 10 publications

(18 citation statements)

References 50 publications

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“…Furthermore, the sample includes few females; future studies should explore the identified patterns in larger samples with more females to examine potential interactions with gender. Finally, we believe future DD studies should continue to take a strengths‐based or capabilities approach (Pellicano et al, 2022) and emphasize a “humanistic” perspective by researching subjective quality of life (e.g., well‐being) to better understand adulthood experiences in this population (Neuman, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Multiple factors are thought to contribute to mental health concerns in autistic people and people with DD, including experiences, such as rejection, bullying, reduced social participation, or feelings of loneliness and lack of autonomy or sense of control over one's own life (Merrells et al, 2019; Neuman, 2020; Schiltz et al, 2021; Smith & White, 2020; Zablotsky et al, 2013). External factors, such as autism acceptance (Cage et al, 2018), and social stigma surrounding people with DDs (Han et al, 2022; Havercamp & Scott, 2015) and individual factors such as emotion dysregulation (Conner et al, 2020), camouflaging (Hull et al, 2021), and neurobiological/genetic differences (McVey, 2019; Thapar et al, 2022) can also play a role in mental health in this population.…”

mentioning

confidence: 99%

“…Although there is a growing body of literature on negative mental health outcomes in autism and DD, relatively less is known about positive aspects of functioning (Pellicano et al, 2022). The call for a focus on more strengths‐based, as opposed to deficit‐based, research is echoed throughout the autism and DD communities and highlights a need to better understand factors such as positive well‐being among people with DDs (Neuman, 2020; Urbanowicz et al, 2019). One study of employed autistic adults found that, after accounting for stability in well‐being over time, depressive symptoms did not predict well‐being 2 years later – with well‐being defined broadly in terms of positive thoughts, feelings, and experiences (Hedley et al, 2019).…”

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confidence: 99%

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Anxiety, depression, and well‐being in autistic adults and adults with other developmental disabilities: A longitudinal cross‐lagged analysis

et al. 2023

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Autistic people and people with other developmental disabilities (DD) are at high likelihood for anxiety and depression, which can negatively affect adult life. Therefore, this study sought to understand temporal links between anxiety and depression over time in autistic adults and adults with DDs, and how these conditions impact specific aspects of positive well-being. A sample of 130 adults with autism or other DDs and their caregivers were drawn from a longitudinal study. Participants complete measures of anxiety (Adult Manifest Anxiety Scale), depression (Beck Depression Inventory, 2nd Edition), and well-being (Scales of Psychological Well-Being). Cross-lagged panel analyses revealed significant autoregressive effects for anxiety and depressive symptoms over time, based on both caregiver and self-report (all p < 0.01). Additionally, although findings differed across reporter, cross-lagged links between anxiety and depression emerged over time. Based on caregiver-report, anxiety symptoms predicted later depressive symptoms (p = 0.002) but depressive symptoms did not predict later anxiety (p = 0.10); the opposite pattern was identified for self-report. Aspects of positive well-being (purpose in life, self-acceptance, personal growth) demonstrated differential links with anxiety and depression (p = 0.001-0.53). These findings highlight the utility of a transdiagnostic approach to mental health services for autistic adults and adults with DDs, and the need to monitor for anxious or depressive symptoms in autistic adults and adults with DDs presenting with depression or anxiety, respectively. Lay SummaryAutistic people and people with DDs often experience mental health challenges. This study highlights the connections between anxiety, depression, and well-being among autistic adults and adults with DDs. These results suggest there is a need for treatment approaches that target commonalities across multiple mental health conditions in autistic adults and adults with DDs.

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Section: Discussionmentioning

confidence: 99%

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confidence: 99%

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confidence: 99%

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Anxiety, depression, and well‐being in autistic adults and adults with other developmental disabilities: A longitudinal cross‐lagged analysis

et al. 2023

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“…One had focused their research on verbal violence toward adults with disabilities and had previously used the CIL model in studies with children with IDD (Karni, 2014). The second researcher had engaged primarily in qualitative research of strategies to support adults with disabilities (Neuman, 2020a(Neuman, , 2020b.…”

Section: Discussionmentioning

confidence: 99%

How People With Intellectual or Development Disabilities Cope With Verbal Violence

Karni-Vizer

Neuman

2023

J Interpers Violence

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Violence against people is a widespread phenomenon and violence against people with disabilities even more common. Studies have examined different types of violence toward people with disabilities, but there has been almost no research to date on verbal violence involving people with intellectual or development disabilities (IDD). The present research focused on this subject. A qualitative study was conducted using an intervention program. The research questions were (a) what can help people with IDD expand their understanding of verbal violence and differentiate different situations of verbal violence and (b) what can help people with IDD expand their means for handling verbal violence of their own and that directed toward them? The sample included 64 people (45 males, 19 females; ages 22–75) with mild IDD, who were divided into four groups of 16 participants each in the intervention program. The findings indicate that the participants’ conceptualization of verbal violence improved after the intervention program. Three main themes were identified: (a) differentiation between good and bad; (b) choosing how to handle verbal violence; and (c) helping others cope with verbal violence. Consistent with the humanistic perspective, the findings show that people with IDD can learn to handle verbal violence toward them in a way that promotes their understanding, enables them to choose their reactions, and affects those around them, as well as strengthening their self-efficacy. The research contributes to the sparse knowledge regarding verbal violence, especially against people with IDD, and offers ways of intervening to help them handle verbal violence.

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“…It is unclear whether the humanistic orientation serves as guidelines for service providers in Israel who are involved in the daily support of persons with IDD, and if so, to what extent it correlates with the sense of autonomy of service users (with IDD). Meaningful life is often identified with independent behavior rather than with the promotion of a sense of autonomy (Neuman, 2021).…”

Section: Introductionmentioning

confidence: 99%

Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities

Neuman,

Reiter,

Karni‐Vizer

2023

Policy Practice Intel Disabi

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The study investigated the influence of the humanistic orientation on the perspectives of service providers working with individuals with intellectual and developmental disabilities (IDD) and the self‐evaluation of service users. The humanistic orientation, which emerged in the 1990s, emphasizes the rights of people with IDD to lead a meaningful life based on their personal needs and desires. However, challenges persist as some service providers prioritize the acquisition of normative life skills over fostering autonomy. The study was based on quantitative methodology and included 61 service providers and 95 of their service users. The study's findings indicate that the humanistic orientation was endorsed by nearly one half of the service providers compared with one third who endorsed a medical orientation. Those endorsing a humanistic orientation also reported that their service users had higher levels of efficacy than those with a medical perception of IDD. Positive correlations were found regarding the assessments made by service providers and their service users on self‐efficacy. Findings suggest that a humanistic orientation encourages optimism among service providers and a positive dyadic interaction between providers and users. It is suggested that the humanistic orientation be applied as a guiding principle underlying the daily support provided to adults with IDD.

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The Life Journeys of Adults with Intellectual and Developmental Disabilities: Implications for a New Model of Holistic Supports

Cited by 10 publications

References 50 publications

Anxiety, depression, and well‐being in autistic adults and adults with other developmental disabilities: A longitudinal cross‐lagged analysis

Anxiety, depression, and well‐being in autistic adults and adults with other developmental disabilities: A longitudinal cross‐lagged analysis

How People With Intellectual or Development Disabilities Cope With Verbal Violence

Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities

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