The life and times of 'Asperger's Syndrome': A Bakhtinian analysis of discourses and identities in sociocultural context

Davies, K.

doi:10.14264/uql.2016.162

Cited by 4 publications

(3 citation statements)

References 79 publications

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“…In short, the findings show the Bakhtinian ‘dialogic principles’ (White, 2013, p. 5) that mattered to these autistic participants. Within this conceptual framing, there is also methodological strength and validity in observing and reflecting on conversations with autistic people in more naturalistic contexts to understand their discursive reality or ‘lived world’ (Davies, 2015, p. 45). Consequently, we argue that the study has ‘epistemic integrity’ (Bottema-Beutel et al, 2018, p. 961).…”

Section: Discussionmentioning

confidence: 99%

Perspectives of autistic adults on the strategies that help or hinder successful conversations

Silver

Parsons

2022

Autism & Developmental Language Impairments

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Background & aims There is increasing recognition of the importance of challenging deficit-focused, medical model approaches to supporting autistic people in daily life, however there is a lack of inclusion of autistic perspectives to inform approaches that may empower autistic people in conversations. Methods This multiple case study used a participatory approach to explore the conversation experiences and exchange in dyads of five autistic and five non-autistic adults over four to 12 months. The study was grounded in the perspectives of autistic people through a series of semi-structured interviews, observations, reflective conversations, and diary records. Results The findings focus on autistic participants’ existing knowledge of conversations that they reported could be useful to them, including the communication environment, and type and structure of talk. The study also helped participants to identify and use previously unrecognised metacognitive abilities (what they already knew about conversations) within naturalistic interactive contexts. Conclusions These findings provide novel insights as to how the ‘interactional expertise’ of non-autistic people could be strengthened to enable the effective contribution of the voices of autistic people in everyday conversations. Implications The identification and use of successful conversation strategies identified by autistic adults gave them a greater sense of empowerment within the conversation based on their accounts of their experiences. Understanding these strategies has valuable implications for staff training, for working with families and for learning by autistic adults.

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Section: Discussionmentioning

confidence: 99%

Perspectives of autistic adults on the strategies that help or hinder successful conversations

Silver

Parsons

2022

Autism & Developmental Language Impairments

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“…Besides the forum, the community features articles and how-to guides, and maintains a youtube channel. Wrong Planet users have been the object of previous research (Davies 2015;Ekblad 2013;Caldwell-Harris and Jordan 2014;Jordan 2010), but this is the first study that analyses the entire forum.…”

Section: Wrong Planetmentioning

confidence: 99%

“…At the same time, research in human-computer interaction has yielded better understanding of behaviours associated with autism, and of how information technology may assist individuals in the autistic spectrum. Online health communities help deliver information and social support to such individuals and to their families (De Choudhury and De 2014), and foster the creation of advocacy groups involving both affected and unaffected participants (Davies 2015). Computer-mediated communication helps individuals with autism engage in rewarding interactions by mitigating difficulties they may experience with aspects of face-toface communication, such as timely processing of nonverbal cues, or lack of control over the interaction environment (Jordan 2010).…”

Section: Introductionmentioning

confidence: 99%

How User Condition Affects Community Dynamics in a Forum on Autism

Samory

Pizzi

Peserico

2017

ICWSM

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Individuals on the autistic spectrum and their families look for peer support in specialized online forums. These venues also attract advocates and people interested in autism, providing valuable first-hand experience. Previous research focused on quantifying how autistic individuals interact in online communities, and if they benefit from computer-mediated communication. However, there is limited quantitative understanding of the different roles that diagnosed individuals, family members, and neurotypical users play in these communities. This paper analyses Wrong Planet, a large online autism forum where users may openly state their condition in their profile. The sentiment, discourse, and network characteristics of content users contribute (and respond to) differs by user condition. Also, interaction patterns between users with different conditions shed light on the dynamics of the forum community. Content exchanges between family members and neurotypical users are emotionally charged and supportive; however, this support is less present in exchanges with diagnosed members. This paper gives insights on what factors facilitate participation of diagnosed users.

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The consequences of ADHD diagnosis: integrating scaffolding and perezhivanie to redesign pedagogy for ADHD-diagnosed children

Renshaw

2019

Emotional and Behavioural Difficulties

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The life and times of 'Asperger's Syndrome': A Bakhtinian analysis of discourses and identities in sociocultural context

Abstract: This thesis is an examination of the sociocultural history of 'Asperger's Syndrome' in a Global North context. I use Bakhtin's theories

Cited by 4 publications

References 79 publications

Perspectives of autistic adults on the strategies that help or hinder successful conversations

Perspectives of autistic adults on the strategies that help or hinder successful conversations

How User Condition Affects Community Dynamics in a Forum on Autism

The consequences of ADHD diagnosis: integrating scaffolding and perezhivanie to redesign pedagogy for ADHD-diagnosed children

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