The judged, not the judges: An insider's view of mental retardation.

Bogdan, Robert; Taylor, Steven J.

doi:10.1037/0003-066x.31.1.47

Cited by 89 publications

(49 citation statements)

References 2 publications

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“…The qualitative approach to research on quality of life assumes that by listening to people with disabilities relate their experiences, we can better understand the challenges and issues they face and how services can support them more effecExceptional Children tively (Bogden & Taylor, 1976Covert & Carr, 1988;Crutcher, 1990;Devereux, 1988;Weick, 1988). Edgerton (1990) stated that any discussion of quality of life is culturally and individually interpreted by both the researcher and the respondent, and he argued for longitudinal ethnographic and naturalistic studies of quality of life.…”

Section: Qualitative Approachmentioning

confidence: 97%

Quality of Life as Context for Planning and Evaluation of Services for People with Disabilities

Dennis

Giangreco

Cloninger

1993

Exceptional Children

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Quality of life has become a dominant theme in planning and evaluating services for people with disabilities. This article reviews definitions of quality of life, explores the concept from the perspective of the optimal theory of personal well-being, and surveys the research on the concept and its implications for planning and evaluating services. This article explores the subjective nature of life quality, particularly for people with disabilities, and relates the concept to both cultural norms and universal human values and needs. Each person experiences life, and disability, in unique ways. Practitioners need to consider quality-of-life issues as a context in planning and evaluating quality services.

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Section: Qualitative Approachmentioning

confidence: 97%

Quality of Life as Context for Planning and Evaluation of Services for People with Disabilities

Dennis

Giangreco

Cloninger

1993

Exceptional Children

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“…Perhaps since Bogdan & Taylor (1976) published their widely cited article consisting largely of the oral testimony of a man diagnosed as retarded, and challenged readers to grant him the authority to speak about his understanding of his life, researchers have increasingly sought to have retarded people speak for themselves . These researchers are urging a conceptual reorientation not only out of a sense of fairness or of the need to recognize the human dignity of retarded people, but as an essential step in recasting social welfare policy .…”

mentioning

confidence: 99%

Listening to Disabled People: The Problem of Voice and Authority in Robert B. Edgerton's the Cloak of Competence

Gerber

1990

Disability, Handicap & Society

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“…selfinjurious behaviour, limited sensory and/or communicative capacity, and lack of verbal skills) arise from the variability in mental retardation and associated medical conditions (Dosén, 1993;Gillberg et al, 1986;Granlund and Olsson, 1993). Another problem may be the effects of early institutionalization on an individual's abilities and life experience (Bogdan and Taylor, 1976), and that people with developmental disabilities may be unable to give sufficiently informed self-reports about the abilities they have (Sigelman et al, 1981).…”

Section: Assessment Of People With Developmental Disabilitymentioning

confidence: 97%

Content validity and clinical applicability of the Irena Daily Activity assessment measuring occupational performance in adults with developmental disability

Dychawy-Rosner

Eklund

2003

Occupation Therapy Intl

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The purpose of this study was to investigate the validity of the Irena Daily Activity (IDA) assessment which measures occupational performance in adults with developmental disabilities. The instrument's content validity was investigated by elucidating its general appropriateness, its clinical applicability and the feasibility of the measurement procedure. Data were collected from a multidisciplinary panel of clinical experts working in day activity centres. Each expert independently judged and reviewed the IDA instrument's content validity. The results show that the content validity index (CVI) values ranged from 0.8 to 1.0 for the instrument's general appropriateness and clinical applicability, and from 0.7 to 1.0 with respect to the significance of the IDA domains' clinical applicability. The applicability of the IDA items were judged as satisfactory (CVI > 80) with respect to their importance for planning treatment and intervention. The feasibility of the measurement procedure was estimated as satisfactory in relation to the items (CVI > 0.70) and satisfactory with respect to the time needed and material used, with CVI values ranging from 0.8 to 1.0. The results of this study support the use of the IDA as a feasible and time-efficient assessment that provides insights regarding the occupational performance of adults with developmental disabilities. A limitation of this study was that it could not illuminate all-important aspects of validity. In conclusion, the IDA has the potential to become a reliable and valid clinical assessment, but additional research on psychometric properties is still needed.

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The judged, not the judges: An insider's view of mental retardation.

Cited by 89 publications

References 2 publications

Quality of Life as Context for Planning and Evaluation of Services for People with Disabilities

Quality of Life as Context for Planning and Evaluation of Services for People with Disabilities

Listening to Disabled People: The Problem of Voice and Authority in Robert B. Edgerton's the Cloak of Competence

Content validity and clinical applicability of the Irena Daily Activity assessment measuring occupational performance in adults with developmental disability

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