The James Lind Initiative: books, websites and databases to promote critical thinking about treatment claims, 2003 to 2018

Abstract

BackgroundThe James Lind Initiative (JLI) was a work programme inaugurated by Iain Chalmers and Patricia Atkinson to press for better research for better health care. It ran between 2003 and 2018, when Iain Chalmers retired. During the 15 years of its existence, the JLI developed three strands of work in collaboration with the authors of this paper, and with others.Work themesThe first work strand involved developing a process for use by patients, carers and clinicians to identify shared priorities for research – the James Lind Alliance. The second strand was a series of articles, meetings, prizes and other developments to raise awareness of the massive amounts of avoidable waste in research, and of ways of reducing it. The third strand involved using a variety of approaches to promote better public and professional understanding of the importance of research in clinical practice and public health. JLI work on the first two themes has been addressed in previously published reports. This paper summarises JLI involvement during the 15 years of its existence in giving talks, convening workshops, writing books, and creating websites and databases to promote critical thinking about treatment claims.ConclusionDuring its 15-year life, the James Lind Initiative worked collaboratively with others to create free teaching and learning resources to help children and adults learn how to recognise untrustworthy claims about the effects of treatments. These resources have been translated in more than twenty languages, but much more could be done to support their uptake and wider use.

Forschungsprioritäten in der physiotherapeutischen Forschung in Deutschland – Eine systematische Analyse von Publikationen der physioscience der letzten 10 Jahre

“…Quelle 1: Webseite der JLA ( ) 7 30 , Bereich „Priority Setting Partnerships (PSPs)“. Beispielsweise wurden Berichte aus dem Bereich der Schlaganfallrehabilitation der JLA-Prioritätenliste „Life after stroke“ zugeordnet 31 .…”

“…▪ Quelle 1: Webseite der JLA (www.jla.nihr.ac.uk) [7,30] 3. Schritt (Zuordnung von Prioritäten): Für jeden Bericht wurde die primäre Forschungsfrage, die Hypothese und/oder der Hauptgegenstandsbereich mit der dazugehörigen Liste mit Forschungsprioritäten abgeglichen.…”

“…Von den diversen Ansätzen und Frameworks zur Erstellung von Forschungsprioritäten [1,5] ist der Ansatz der britischen James Lind Alliance (JLA) einer der etabliertesten [4,6]. Die JLA ist eine Initiative zur Gründung und Entwicklung von Partnerschaften zwischen Patient*innen, Pflegenden und Kliniker*innen zur Bestimmung von Forschungsprioritäten (Priority Setting Partnerships) [7].…”

Knowledge and Attitudes Towards Clinical Trials Among Women with Ovarian Cancer: Results of The Acto Study

“…1,2 Various materials, websites, tutorials and videos, have been developed in different languages for lay people and patients aimed to explain the fundamental concepts of clinical trials and encourage awareness and participation. [3][4][5] There are also other interesting experiences promoting active involvement and partnership. 6,7 Nevertheless, among the obstacles that researchers generally encounter in presenting and conducting clinical trials, the involvement and adhesion of patients stand out, 8,9 as well as the scant knowledge citizens and patients have about clinical research.…”

Warum wir Forschungsprioritäten zur Vermeidung von Research Waste brauchen

“…B. Patientinnen und Patienten, Pflegende, Klinikerinnen und Kliniker, Forschende und Forschungsfördernde [24]. Es stehen bereits diverse Frameworks zur Verfügung [25], wobei der Priority-Setting-Partnership-Ansatz der britischen James Lind Alliance der wohl bekannteste sein dürfte [26].…”