The International Dementia Alliance Instrument for Feasible and Valid Staging of Individuals with Dementia by Informal Caregivers

Abstract

Results of this study indicate good feasibility and high validity of staging dementia by informal caregivers using the IDEAL-IC.

Digital resilience monitoring of informal caregivers of persons with dementia for early detection of overburden: Development and pilot testing

“…During expert meetings, standardized questionnaires were collected, and additional questions were formulated. Standard questionnaires to measure resilience and wellbeing included the topics perseverance time, 35 burden, 36 social support, 37 physical health, 38 mental health, 39 person with dementia, 40 , 41 and resilience. 42 , 43 …”

“…During expert meetings, standardized questionnaires were collected, and additional questions were formulated. Standard questionnaires to measure resilience and wellbeing included the topics perseverance time, 35 burden, 36 social support, 37 physical health, 38 mental health, 39 person with dementia, 40,41 and resilience. 42,43 In a third meeting with end-users adjusted concept screens of the application and dashboard for case managers were presented and their relevance and user friendliness were discussed.…”

What is new within staging of care for people with dementia? The IDEAL schedule and other recent work

“…Following this, a paper was published on the inter-rater reliability of the schedule in Ireland (ICCs ranged between 0.77 and 1.0 for the individual dimensions), as well as its criterion validity whereby the 'cognitive functioning' and 'carer stress' (sub-)dimensions of the IDEAL schedule, as well as its total sum score, were correlated with the Clinical Dementia Rating (CDR) scale (ρ=0.82 for 'cognitive functioning'; ρ=0.77 for total sum score) and Zarit Burden interview respectively (ρ=0.56) as a measure of criterion validity [22]. A further study from the Netherlands reported on the development and validation of a version that is completed by informal caregivers, the IDEAL-IC, by correlating this new version with the original clinician-administered IDEAL schedule (r= 0.7) and the Clinical Dementia Rating sum of boxes (CDR-SB) (r=0.65) as a measure of construct validity [23]. In this latter study, correlation between the original IDEAL schedule and the CDR-SB was also very high (r=0.85) [23].…”

“…A further study from the Netherlands reported on the development and validation of a version that is completed by informal caregivers, the IDEAL-IC, by correlating this new version with the original clinician-administered IDEAL schedule (r= 0.7) and the Clinical Dementia Rating sum of boxes (CDR-SB) (r=0.65) as a measure of construct validity [23]. In this latter study, correlation between the original IDEAL schedule and the CDR-SB was also very high (r=0.85) [23].…”