The information needs of relatives of childhood cancer patients and survivors: A systematic review of qualitative evidence

Development and user evaluation of an online caregiver education resource for Malaysian parents of children with leukemia or lymphoma

“…Delivery of caregiver education to newly diagnosed pediatric cancer patients' parents often uses a combination of methods, including verbal and written information. 9 , 10 The internet is also a medium of instruction that is increasingly being used by these parents. 10 It is preferred because it allows parents to access information at their convenience.…”

“… 9 , 10 The internet is also a medium of instruction that is increasingly being used by these parents. 10 It is preferred because it allows parents to access information at their convenience. 10 However, identifying credible and easily understandable information can be challenging for parents.…”

“… 10 It is preferred because it allows parents to access information at their convenience. 10 However, identifying credible and easily understandable information can be challenging for parents. 11 A review of online resources previously found that the available resources for childhood cancer were poorly designed and difficult to read.…”

“… 25 , 29 This was supported by a systematic review on the information needs of relatives of childhood cancer patients. 10 The online format would make the information resource easily accessible to parents, whether they were in the hospital or at home, and at their own convenience. In view of the extremely broad information needs for different types of cancer, a decision was made to begin the development of this resource focusing on pediatric hematological cancers, namely leukemia and lymphoma.…”