The influence of the significant other on treatment adherence in chronic pain management: a qualitative analysis

Brown, Olivia K; Newton‐John, Toby

doi:10.1080/08870446.2022.2032058

Cited by 5 publications

(5 citation statements)

References 52 publications

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“…Self-care maintenance in NCCP entails adopting behaviours that contribute to physical and emotional wellbeing. Behaviours to maintain physical and psychological stability include, among others, to stop isolating, be physically active (166), seek social support (169), maintain a healthy lifestyle (170), and deal with fears instead of avoiding them (71). The iCBT intervention and psychoeducation can augment traditional approaches by providing education on symptom recognition and promoting physical activity (171).…”

Section: Icbt As a Tool To Support Self-care In Patients With Nccpmentioning

confidence: 99%

The effects and experiences of internet-delivered cognitive behavioural therapy : The perspectives of patients with non-cardiac chest pain and healthcare professionals in the emergency and cardiac care

Eriksson-Liebon

2024

Linköping University Medical Dissertations

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BackgroundNon-cardiac chest pain (NCCP) is a common issue, accounting for roughly half of all emergency department visits related to chest pain. Patients afflicted with NCCP often endure cardiac anxiety, misinterpreting the pain as heart-related and fearing it, despite the absence of any life-threatening cardiac issues. This anxiety often leads to the avoidance of physical activities, negatively impacting their quality of life. Cognitive behavioural therapy (CBT) has been shown to be effective in managing psychological distress such as anxiety and depression. CBT is a structured process that helps patients identify and restructure their negative thoughts, get a corrected and more realistic perception of their symptoms, and learn to manage their thoughts about chest pain. Despite its effectiveness, CBT is resource-intensive, and therefore internet-delivered cognitive behavioural therapy (iCBT) may be an alternative as it increases accessibility and is more cost-effective compared to traditional therapy methods. However, there is a lack of research on the effectiveness of this treatment approach for patients with NCCP and cardiac anxiety. Moreover, digital care technologies are still relatively unfamiliar in clinical practice, particularly in emergency departments, and the successful implementation of iCBT relies on healthcare professionals' acceptance and integration of digital care into clinical practice. AimThe overall aim of this dissertation was to evaluate the short-and longterm effects of a nurse-led iCBT program on psychological distress in patients with NCCP, and to explore their experiences participating in the iCBT program. In addition, the study aimed to describe healthcare professionals' perceptions of digital care in the emergency and cardiac care for patients with NCCP. MethodsThis dissertation comprises two quantitative and two qualitative studies. A randomised clinical trial (RCT) (studies I, II, and III) was conducted to evaluate cardiac anxiety, measured with the Cardiac Anxiety Questionnaire Healthcare professionals express a mixture of caution and optimism towards digital care, emphasising the importance of clear leadership, education, technical competence, and positive attitudes to ensure successful implementation and maximise benefits for patients with NCCP.

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Section: Icbt As a Tool To Support Self-care In Patients With Nccpmentioning

confidence: 99%

The effects and experiences of internet-delivered cognitive behavioural therapy : The perspectives of patients with non-cardiac chest pain and healthcare professionals in the emergency and cardiac care

Eriksson-Liebon

2024

Linköping University Medical Dissertations

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“…Overall, research points to links between a more negative family relationship quality (i.e., characterized by greater strain and less support) and worse pain cognitions, disability, and intensity (Akbari et al, 2016; Signs & Woods, 2020). Conversely, positive family relationship quality (i.e., marked by less strain and greater support) is concurrently associated with less pain, especially via improved pain coping (Che et al, 2018) and pain self-management adherence (O. Brown & Newton-John, 2022).…”

Section: Present Studymentioning

confidence: 99%

“…Conversely, positive family relationship quality (i.e., marked by less strain and greater support) is concurrently associated with less pain, especially via improved pain coping (Che et al, 2018) and pain self-management adherence (O. Brown & Newton-John, 2022). The research is generally limited, however, by cross-sectional analyses, with a focus on persons with preexisting chronic pain-related conditions.…”

mentioning

confidence: 99%

Family strain, but not family support, is linked to worse pain interference among midlife adults reporting new chronic pain.

Woods,

Roberson,

Abdelkhaleq

2023

Families, Systems, & Health

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Introduction: Although family relationship quality has been linked to later chronic pain incidence for aging adults, it is unclear whether the quality of these relationships is linked to the impact of pain. We estimated longitudinal associations between family relationship quality (i.e., family support and family strain) and pain interference for adults who develop novel chronic pain across 10 years of midlife. Method: We conducted a secondary analysis of data from the Midlife in the United States (MIDUS) study. Using path analysis, we tested whether family support and strain reported by participants (54% female, age M = 54.8 years) who denied having chronic pain at the study's second wave (MIDUS 2, 2004(MIDUS 2, -2006 but reported chronic pain 10 years later (MIDUS 3, 2014(MIDUS 3, -2016; N = 406) was associated with the interference of that pain with daily activities after accounting for key covariates, including sociodemographics, depression symptoms, global physical health, and MIDUS 3 reports of family support and strain. Results: The hypothesized model demonstrated good fit to the data based on multiple model fit indices. Greater family strain at baseline, but not family support, was significantly associated with greater pain interference 10 years later. Discussion: Findings build on prior studies to suggest that not only are stressful family relationships likely associated with the odds of developing chronic pain, but they are also linked to the interference of that chronic pain when it develops. We recommend biopsychosocial screening in primary care that captures family relationship quality and can inform best practices for nonpharmacological, family-based pain management. Public Significance StatementThough family relationship quality has been linked to later pain incidence for aging adults, it remains unclear whether family relationships are also linked to the impact of that pain once it develops, compromising our ability to develop effective nonpharmacological pain management interventions. This study leveraged data from an existing project on aging health to find that family strain, but not family support, was significantly associated with greater pain interference 10 years later, among aging adults who developed novel chronic pain during that time. The results imply the importance of biopsychosocial screening in primary care to capture family relationship quality and inform family-based pain self-management interventions to ameliorate aging adult pain.

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“…Spouses of patients with chronic illnesses including chronic pain, have been shown to suffer from psychosocial burden and loneliness and to struggle with feelings like anger, guilt, helplessness, worry, lost faith in the future and going unrecognized or unacknowledged by healthcare professionals (Chistell et al., 2023; Montesó‐Curto et al., 2022). The family plays an important role in the management of chronic pain and their involvement should be balanced between what is feasible and beneficial for the couple (Brown & Newton‐John, 2023; Swift et al., 2014). However, interactions between the family and the patient with chronic pain are usually complex, as pain has been shown to have an impact on all aspects of their everyday life, which results in changes for family members.…”

Section: Introductionmentioning

confidence: 99%

Living with non‐cardiac chest pain – An inductive qualitative interview study of spouses' perspectives

Eriksson‐Liebon,

Kärner Köhler,

Johansson

et al. 2024

Nursing Open

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AimTo explore spouses’ experiences of living with a partner suffering from non‐cardiac chest pain (NCPP).DesignAn inductive qualitative study.MethodsIndividual interviews (n = 10) were performed with spouses of partners having NCCP and cardiac anxiety. The analysis was performed according to Patton's guide for content analysis of qualitative data.ResultsThree categories and seven subcategories were identified. First, ‘a feeling of being neglected’, where spouses felt ignored by healthcare professionals and excluded by their partners. Secondly, ‘a tension between hope and despair’ encompassed feelings of faith, support, unpreparedness for chest pain and situational frustration. Lastly, in ‘a threat to ordinary life’, spouses noted chest pain‐induced changes impacting daily life, finances, leisure and relationships. To conclude, NCCP in partners significantly affects their spouses emotionally and practically. Spouses felt neglected and isolated, oscillating between hope and despair and experiencing faith, powerlessness and frustration. They also faced challenges in daily life and relationships.

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The influence of the significant other on treatment adherence in chronic pain management: a qualitative analysis

Cited by 5 publications

References 52 publications

The effects and experiences of internet-delivered cognitive behavioural therapy : The perspectives of patients with non-cardiac chest pain and healthcare professionals in the emergency and cardiac care

The effects and experiences of internet-delivered cognitive behavioural therapy : The perspectives of patients with non-cardiac chest pain and healthcare professionals in the emergency and cardiac care

Family strain, but not family support, is linked to worse pain interference among midlife adults reporting new chronic pain.

Living with non‐cardiac chest pain – An inductive qualitative interview study of spouses' perspectives

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