The influence of clarification and threats on life situation: patients’ experiences 1 year after TSCI

Noe, Bodil Bjørnshave; Bjerrum, Merete; Angel, Sanne

doi:10.1038/scsandc.2017.6

Cited by 5 publications

(15 citation statements)

References 29 publications

(49 reference statements)

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“…Our previous study revealed that these personal factors often seem to be neglected in professionals’ communication during rehabilitation. 20,21…”

Section: Discussionmentioning

confidence: 99%

“…The ICF model is used with specific attention to the ICF component interactions. The interviews were conducted in a previous study 19–21 and the study was conducted in accordance with the consolidated criteria for reporting qualitative studies (COREQ) 32-item checklist. 22…”

Section: Methodsmentioning

confidence: 99%

“…In the previous study, 19–21 eight interviewees (two women and six men; aged between 27 and 73 years; one complete paraplegia, seven incomplete tetraplegia), signed an informed consent. The interviewees, who had been admitted to The Spinal Cord Injury Centre of Western Denmark, were asked about their expectations, wishes and worries prior to discharge from the rehabilitation centre.…”

Section: Methodsmentioning

confidence: 99%

“…Previously, we found that individuals with TSCI had difficulties in addressing sensitive issues related to their daily lives, and that, in turn, they were neither understood nor given adequate support. 19–21 These findings demand that more attention be paid to approaches taken by professionals in regard to complex issues faced during rehabilitation.…”

Section: Introductionmentioning

confidence: 99%

“…1 The model is attentive to the interactions between these components, may have the potential to capture the complexity of issues that individuals face during rehabilitation, and may be a useful tool in communication. Our previous studies 19–21 revealed that complex interactions seemed to add to the problems and barriers that the individuals experienced in their daily lives. Therefore, addressing ICF component interactions could be useful in communication in order to achieve person-centred rehabilitation that meet individuals’ needs.…”

Section: Introductionmentioning

confidence: 99%

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The ICF model as a practical tool to facilitate holistic communication with individuals during their rehabilitation: A qualitative study

Noe¹,

Angel

Bjerrum

2021

Nordic Journal of Nursing Research

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During rehabilitation, professionals and patients experience difficulties addressing complex issues. In a hermeneutical approach we examine how the ICF model can capture the complexity of the rehabilitation process using secondary deductive content analysis of transcripts from a previous interview study in line with COREQ. When focusing on interactions, the ICF model captures the complexity of individuals’ issues in a convincing way. Three themes were identified: ‘The influence body function, activity, participation and environment have on an individual’s ability to handle daily tasks of personal importance’, ‘The influence the environment in combination with body function, activity, and personal factors have on an individual’s ability to maintain their social roles’, and ‘The influence personal factors and body functions have on an individual’s confidence in participating in activities they like’. The findings show that the ICF model could provide a useful tool to facilitate communication regarding individuals’ complex issues that are often neglected.

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“…Our previous study revealed that these personal factors often seem to be neglected in professionals’ communication during rehabilitation. 20,21…”

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

The ICF model as a practical tool to facilitate holistic communication with individuals during their rehabilitation: A qualitative study

Noe¹,

Angel

Bjerrum

2021

Nordic Journal of Nursing Research

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Ten years of living with an injured spinal cord: A qualitative longitudinal study

Angel¹

2022

International Journal of Nursing Studies Advances

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Uses and abuses of the concept of acceptance in rehabilitation and recovery.

Angel,

Halling

2023

The Humanistic Psychologist

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Although acceptance may be a crucial step in responding to catastrophic losses, such as those resulting from spinal cord injuries, a careful analysis of case studies and psychological literature supports the notion that acceptance is a place that one arrives at and not something one can make happen. We present five responses to loss with the goal of enabling helpers, whether professionals or family, to address the situation of patients in a nuanced, empathic, and helpful way: (a) Resisting, denying, and the value of fighting, (b) putting aside the painful awareness of loss allows forward moving action, (c) giving up and stopping the fighting while remaining distressed in an unacceptable situation, (d) resignation as a reluctant yes to a life situation that cannot be changed, and (e) reconciliating; coming to terms and finding peace with the way the world, which is what we mean by acceptance. Since acceptance is not an act of the will, it is crucial that helpers respect the difficult and lengthy process that patients move through in their individual way and at their own pace. Here we draw upon the philosopher Emmanuel Levinas's interpersonal philosophy of ethics to elaborate on what it means to treat persons with respect and emphasize the critical importance of listening deeply to patients as fellow human beings. Public Significance StatementThis article provides a careful evaluation of the emphasis on encouraging people with spinal cord injuries to accept their new circumstances. Based on literature and extensive interviews we have concluded that while acceptance may be an important step in responding to catastrophic loss, it is not an action but a place that one may arrive at. Accordingly, we recommend that helpers be responsive to the particular situation and experiences of people who struggle with tragic life changes and consider how "denial" and "resistance" may be adaptive at both a physical and a practical level. Furthermore, those who have been injured may benefit significantly from having someone accompany them on their journey.

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The influence of clarification and threats on life situation: patients’ experiences 1 year after TSCI

Cited by 5 publications

References 29 publications

The ICF model as a practical tool to facilitate holistic communication with individuals during their rehabilitation: A qualitative study

The ICF model as a practical tool to facilitate holistic communication with individuals during their rehabilitation: A qualitative study

Ten years of living with an injured spinal cord: A qualitative longitudinal study

Uses and abuses of the concept of acceptance in rehabilitation and recovery.

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